So, how do you deal with doctors/the health service in general when it comes to treating endo?
I'm 26 and have recently had my second laparoscopy to treat my endometriosis.
I had the first one in 2010 and the gynacologist was very surprised to find a 'significant amount' in my abdomen, which he lasered away. I was not surprised, and neither was my mum, who had managed to find endo as a possible cause for my pain after being sent home from school since I was 12.
The first 6 months after that first round of surgery were blissfully pain free. At the 6 month mark I had a horrendous period with heavy bleeding and intense pain. The gyn said the endo had grown back, and for the past 6 years I have been put on various treatments to quell the pain (including the mirena coil and 10 week depot injection at the same time, can I hear you say weight gain?)
It was decided last month to 'rinse me round' again, but after the surgery they told me they found nothing except a small amount on some illiac (sp?) vessels that they didnt risk removing. I was too out of it and too shocked by the news to question them further, but after reading some of the information on here it sounds like they did not have a 'proper look' so to speak, and I need to get checked for deep endo.
Anyway, as above, how do you cope with trying to get treated properly? It seems like its always an uphill climb getting the proper treatment for endo, so does anyone have any tips for dealing with that one doctor who insists its 'just' IBS?