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Dermatomyositis
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Dermatomyositis
I have a friend who was recently diagnosed with
Dermatomyositis
. Is this group appropriate for this diagnosis?
I have a friend who was recently diagnosed with
Dermatomyositis
. Is this group appropriate for this diagnosis?
Zompopo1987
in
Myositis UK
8 months ago
Dermatomyositis - is it cyclical?
I’m still awaiting formal diagnosis. Tested positive for Anti Mi2, ANA 360 and had rashes across my neck, shoulders, eyebrows, behind ears and side of head since October. have had 12 weeks of steroids which finished and not now on any meds. My question is does your dm go in cycles? I feel like I have
I’m still awaiting formal diagnosis. Tested positive for Anti Mi2, ANA 360 and had rashes across my neck, shoulders, eyebrows, behind ears and side of head since October. have had 12 weeks of steroids which finished and not now on any meds. My question is does your dm go in cycles? I feel like I have
Mumofthreeandadog
in
Myositis UK
4 months ago
support/ help
My husband has been in hospital since the 26th of May, he was a patient for 6 days before we had a diagnosis of
dermatomyositis
. He is currently in intensive care, he has a feeding tube and is bed bound.
My husband has been in hospital since the 26th of May, he was a patient for 6 days before we had a diagnosis of
dermatomyositis
. He is currently in intensive care, he has a feeding tube and is bed bound.
Cornwall24
in
Myositis UK
3 months ago
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I have
dermatomyositis
, raynauds and sjogrens which started around 5 years ago. I also have another autoimmune condition called Myasthenia Gravis which I’ve had for 30 years. They say if you have one autoimmune condition you are likely to get more. So here we are😀.
I have
dermatomyositis
, raynauds and sjogrens which started around 5 years ago. I also have another autoimmune condition called Myasthenia Gravis which I’ve had for 30 years. They say if you have one autoimmune condition you are likely to get more. So here we are😀.
LiliaM
in
Myositis UK
3 months ago
family member in ICU
They have diagnosed
dermatomyositis
. He’s not doing well. They wanted to put him in an induced coma but he has aware enough to say no. The family are terrified and don’t know what questions we should be asking. Any insight would be gratefully received.
They have diagnosed
dermatomyositis
. He’s not doing well. They wanted to put him in an induced coma but he has aware enough to say no. The family are terrified and don’t know what questions we should be asking. Any insight would be gratefully received.
Talulah23
in
Myositis UK
8 months ago
Hi Guys
Because of my skin problem already I had access to my dermatologist and took pictures of my eyes and he had a look and said he suspects I have "
Dermatomyositis
" he did a test for this in 2021 as I was having skin problems. Came back negative.
Because of my skin problem already I had access to my dermatologist and took pictures of my eyes and he had a look and said he suspects I have "
Dermatomyositis
" he did a test for this in 2021 as I was having skin problems. Came back negative.
mrdarcy1
in
Myositis UK
3 months ago
Life insurance with Dermatomyositis
Has anyone with
Dermatomyositis
taken out life insurance cover since their diagnosis and if so, who with please? I’ve tried a few different companies and it seems that no one wants to cover me! Thanks in advance 😊
Has anyone with
Dermatomyositis
taken out life insurance cover since their diagnosis and if so, who with please? I’ve tried a few different companies and it seems that no one wants to cover me! Thanks in advance 😊
amp0124
in
Myositis UK
1 year ago
Getting blood test for nutrients not found in common blood test
I have hashimotos, CLL and they are well controlled and /or stable It’s the
dermatomyositis
and a few other disorders that seems to flare up. I will be going to a naturalpath & nutritionist/dietitian.
I have hashimotos, CLL and they are well controlled and /or stable It’s the
dermatomyositis
and a few other disorders that seems to flare up. I will be going to a naturalpath & nutritionist/dietitian.
Eliotf
in
Myositis UK
11 months ago
Getting blood test for nutrients not found in common blood test
I have hashimotos, CLL and they are well controlled and /or stable It’s the
dermatomyositis
and a few other disorders that seems to flare up. I will be going to a naturalpath & nutritionist/dietitian.
I have hashimotos, CLL and they are well controlled and /or stable It’s the
dermatomyositis
and a few other disorders that seems to flare up. I will be going to a naturalpath & nutritionist/dietitian.
Eliotf
in
Thyroid UK
11 months ago
Recent diagnosis and Shocked
Hi I’m new to this site, I was diagnosed yesterday with
Dermatomyositis
, I’m having trouble pronouncing it let alone the spelling so hope I’ve got it correct.
Hi I’m new to this site, I was diagnosed yesterday with
Dermatomyositis
, I’m having trouble pronouncing it let alone the spelling so hope I’ve got it correct.
Bkart
in
Myositis UK
20 hours ago
I’ll health retirement
an MRI scan waiting results Tbh I am absolutely blazing I was going over my letters from different consultants and one was from my rheumatologist last year stating I have a positive Ana blood but I know this can be common in people and also a positive Anti mi 2 b positive and her words indicates
dermatomyositis
an MRI scan waiting results Tbh I am absolutely blazing I was going over my letters from different consultants and one was from my rheumatologist last year stating I have a positive Ana blood but I know this can be common in people and also a positive Anti mi 2 b positive and her words indicates
dermatomyositis
10x10
in
Fibromyalgia Action UK
3 months ago
Dermatomyositis self help group/ anyone in existence ?, please send me contact. I am based in Swansea, Wales. 07804849206
josecifuentes
josecifuentes
angelsue
in
Myositis UK
8 months ago
Feeling so alone
I don't even know where to start after "getting better" when I was early teens from
Dermatomyositis
life has been pretty good I had two beautiful boys after being told I couldn't have children.
I don't even know where to start after "getting better" when I was early teens from
Dermatomyositis
life has been pretty good I had two beautiful boys after being told I couldn't have children.
Ho0lio76
in
Myositis UK
11 months ago
Is there a dr at Ninewells who deals with APS?
I have auto immune disease,
dermatomyositis
with anti Synthetase syndrome and also urticarial vascultis. I am at a loss as to what to do. I would have expected as a minimum to have had the blood tests repeated. I’m speaking to my GP on Friday about this as he informed me by text.
I have auto immune disease,
dermatomyositis
with anti Synthetase syndrome and also urticarial vascultis. I am at a loss as to what to do. I would have expected as a minimum to have had the blood tests repeated. I’m speaking to my GP on Friday about this as he informed me by text.
roony13
in
Hughes Syndrome APS Forum
1 year ago
Covid Vaccination Study
Diseases that fall under this category include lupus, an autoimmune disease affecting the skin, joints, and internal organs, and myositis and
dermatomyositis
, which manifest as muscle and tissue inflammation. Two patients died of their conditions.
Diseases that fall under this category include lupus, an autoimmune disease affecting the skin, joints, and internal organs, and myositis and
dermatomyositis
, which manifest as muscle and tissue inflammation. Two patients died of their conditions.
noslak
in
PMRGCAuk
11 months ago
Phase 2 Trial Tests Daxdilimab as Potential DLE Therapy
“Daxdilimab is also being investigated in other autoimmune conditions that are driven by high levels of interferon, including alopecia areata,
dermatomyositis
, lupus nephritis and systemic lupus erythematosus,” Podrebarac said.
“Daxdilimab is also being investigated in other autoimmune conditions that are driven by high levels of interferon, including alopecia areata,
dermatomyositis
, lupus nephritis and systemic lupus erythematosus,” Podrebarac said.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
RAISE STUDY recruitment
RAISE STUDY recruitment (I have personally taken part in one focus group earlier this year) Are you a person with systemic vasculitis, systemic lupus erythematosus, inflammatory myositis (such as
dermatomyositis
or polymyositis) or Scleroderma?
RAISE STUDY recruitment (I have personally taken part in one focus group earlier this year) Are you a person with systemic vasculitis, systemic lupus erythematosus, inflammatory myositis (such as
dermatomyositis
or polymyositis) or Scleroderma?
zoe69
Vasculitis UK
in
Vasculitis UK
2 years ago
Anyone with an autoimmune, with a diagnosis of Endometriosis! Does periods flare your autoimmune too?
Just been diagnosed with highly suspected
dermatomyositis
! Awaiting to rule out what is causing the weight loss and rashes! Currently having infection, autoimmune and cancer ruled out! Anyway, I have noticed all this is linked to what Drs are calling Endometriosis!
Just been diagnosed with highly suspected
dermatomyositis
! Awaiting to rule out what is causing the weight loss and rashes! Currently having infection, autoimmune and cancer ruled out! Anyway, I have noticed all this is linked to what Drs are calling Endometriosis!
Heloo85
in
Endometriosis UK
2 years ago
Medication weight gain
Hi All, I have
dermatomyositis
diagnosed in November and started on meds in December. High doses of prednisolone at first but have now reduced to 10mg. I’m also on 200mg hydroxychloraquine daily and 25mg methotrexate weekly.
Hi All, I have
dermatomyositis
diagnosed in November and started on meds in December. High doses of prednisolone at first but have now reduced to 10mg. I’m also on 200mg hydroxychloraquine daily and 25mg methotrexate weekly.
Parisian13
in
Myositis UK
2 years ago
Dermatomyositis
Hi All, just been diagnosed with
Dermatomyositis
-been on my medication a month. I think I’m responding ok in relation to the side effects….so far, so good! Just wondering what things people might be using to make life easier? Has anyone applied for a blue badge, is there any help out there?
Hi All, just been diagnosed with
Dermatomyositis
-been on my medication a month. I think I’m responding ok in relation to the side effects….so far, so good! Just wondering what things people might be using to make life easier? Has anyone applied for a blue badge, is there any help out there?
Parisian13
in
Myositis UK
3 years ago
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