Dermatomyositis

[Zompopo1987]

I have a friend who was recently diagnosed with Dermatomyositis. Is this group appropriate for this diagnosis?

[Staff11]

oh yes, very much so. There are lots of fellow travellers here, just ask

[Zompopo1987 in reply to Staff11]

Excellent. Thank you.

[Jo-Goode Administrator]

This forum is for a UK based charity, you may find more suitable information such as specialist USA doctors on the USA based Myositis Association (TMA). Also groups on facebook if you search. Here's a link to TMA myositis.org/

[Zompopo1987 in reply to Jo-Goode]

Thank you very much.

[hopegalore20]

Hi Zompopo1987,I live in Scotland. I was diagnosed with Dermatomyositis over 9 and half years ago.

I have been on various Immuno Suppressants, along with Steroids and various topical treatments. I have also undergone biological infusions.

My disease remains very active. I struggle from day to day to deal with this condition. Muscles grow weaker & weaker.

I try my utmost to remain positive, but some days it is extremely difficult as this disease is robbing me of my quality of life.

Each person with this particular condition reacts in different ways to treatments.

I pray that you are on a path to getting better.

Take care.