New here: I think I put this in the wrong thread... - Myositis UK

Myositis UK

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New here

LiliaM profile image
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I think I put this in the wrong thread originally so I’m re sending, hopefully in the right place.

Hello. I’m new here. My name is Lilia. I have dermatomyositis, raynauds and sjogrens which started around 5 years ago. I also have another autoimmune condition called Myasthenia Gravis which I’ve had for 30 years. They say if you have one autoimmune condition you are likely to get more. So here we are😀. I look forward to chatting with you and I too am interested in any meetings. Thanks for reading.

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LiliaM profile image
LiliaM
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Jo-Goode profile image
Jo-GoodeAdministrator

Hello Lilia,

Like you I have also collected auto immune conditions for the last 30 years.

The Myositis UK conference is on 14th July, here's the info myositis.org.uk/events/agm/

There is a larger & more active UK Myositis group over on facebook, The Myositis Community of Great Britain & Ireland facebook.com/groups/themyos...

Kind regards,

Jo (Myositis UK Trustee)

LiliaM profile image
LiliaM in reply toJo-Goode

Hello Jo

Thank you for the information. I will have a look.

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