Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

26,504 members•27,915 posts

All posts for November 2023

Using B1 therapy

HI, Everyone. I'm hoping you can help analyze our problem. My PwP was diagnosed 2 years ago. He has never taken prescription medications for PD. He started on...

HI, Everyone. I'm hoping you can help analyze our problem. My PwP was diagnosed...

Parkwarrior

•1 year ago

11 Replies

Funmy. A talented lady I reckon

very funny. Made me laugh out loud. I found this via Buckholts link to her post on 10 Years on Levadopa. https://youtu.be/_dD5HOmIfNQ?si=OQU2ZvUPR-6D3hNT

very funny. Made me laugh out loud. I found this via Buckholts link to her post ...

jeeves19

•1 year ago

2 Replies

The "UP-study" phase 2 trial of UDCA Co funded by Cure Parkinson's led by Prof Oliver Bandmann

This looks pretty interesting. UPRDS results did not show any benefit, but UPRDS seems to be like measuring ants using a yardstick. They did show gait...

This looks pretty interesting. UPRDS results did not show any benefit, but UPRDS...

Bolt_Upright

•1 year ago

8 Replies

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Wearables Track Parkinson’s Better Than Human Observation, Study Finds

"An Oxford University researcher and her team showed that digital wearable devices can track the progression of Parkinson’s disease in an individual more...

"An Oxford University researcher and her team showed that digital wearable devic...

MBAnderson

•1 year ago

4 Replies

What to do next

As in my previous post, I took Gabapentin 5 nights and I feel shakey and my nerves raw. How can I get this crap out of my body faster? I tried an Epsom salts...

As in my previous post, I took Gabapentin 5 nights and I feel shakey and my nerv...

Butterflygrandma

•1 year ago

10 Replies

Parkinson’s summit details

https://drtalks.com/natural-parkinsons-solutions-summit/?oid=58&ref=2476&uid=617&inf_contact_key=a0453afb351607f393e3f45c15e95811 Hi all, Here’s a link to...

https://drtalks.com/natural-parkinsons-solutions-summit/?oid=58&ref=2476&uid=617...

melodie

•1 year ago

3 Replies

K0706 Clinical Trial

I'm recently diagnosed and have not started any PD meds, though my neurologist says Sinemet would probably help my symptoms. I'm not having terrible or...

I'm recently diagnosed and have not started any PD meds, though my neurologist s...

Salted

•1 year ago

9 Replies

Dyskinesia question

Is peak-dose dyskinesia essentially the same as wearing-off dyskinesia? In other words, are they both just a response to fluctuations in dopamine levels, and...

Is peak-dose dyskinesia essentially the same as wearing-off dyskinesia? In other...

1LittleWillow

•1 year ago

10 Replies

cannabis and PD

Has anyone tried cannabis to improve PD symptoms?

michelagvolpe

•1 year ago

9 Replies

Interesting Paper on Propranolol for Dyskinesia Relief

The link is here : https://www.mdpi.com/2076-3425/10/12/903 Anecdotally, I have been taking it for dyskinesia relief and it def works.

The link is here : https://www.mdpi.com/2076-3425/10/12/903 Anecdotally, I hav...

pdpatient

•1 year ago

2 Replies

BREAKTHROUGH! Parkinson's Progression HALTED by Inhibiting Enzyme!

Summary: Researchers discovered that inhibiting a specific enzyme, USP30, in a mouse model protects dopamine-producing neurons, which are typically lost as the...

Summary: Researchers discovered that inhibiting a specific enzyme, USP30, in a m...

PDWarrior1900

•1 year ago

9 Replies

How much Levadopa after 7 years of Parkinson's?

Hello everyone, and thank you for taking a look at my post.I have had Parkinson's now for nearly 7 years and have over the last year had more difficulties with...

Hello everyone, and thank you for taking a look at my post.I have had Parkinson'...

Unicorn500

•1 year ago

68 Replies

Is this website BULLSH*T?

This is PDWarrior1900 I can't seem to login to my normal HealthUnlocked account from my downstairs computer. I subscribe to DOZENS of PD newsletters,...

This is PDWarrior1900 I can't seem to login to my normal HealthUnlocked account...

NewGuywithPD

•1 year ago

5 Replies

Recording available for NoSilverBullet interview of Dr Wayne Markman, CEO of SYMBYX, on "Light therapy for Parkinson's".

Thank you to Dr Wayne Markman for this very detailed interview on the topic of "Light Therapy for Parkinson's". It was a fascinating presentation with an...

Thank you to Dr Wayne Markman for this very detailed interview on the topic of "...

Michel0220

•1 year ago

11 Replies

DrTalks Parkinsons Summit 11/14 to 11/20

Hello all,Just an FYI, DrTalks has the "Parkinsons Solution Summit" starting today 11/14 to 11/20 discussing Parkinsons through an integrative and functional...

Hello all,Just an FYI, DrTalks has the "Parkinsons Solution Summit" starting tod...

TealWater

•1 year ago

Be the first to reply

DrTalks PD Summit

I am posting a link (below) to this summit in case there is anyone interested. The only comment I’ll make is that I think they have some really good...

I am posting a link (below) to this summit in case there is anyone interested. ...

Lizzy9

•1 year ago

1 Reply

Cervical Dystonia

I was diagnosed with cervical dystonia 4 years ago before getting my Parkinsons diagnosis . I tried multiple massages, acupuncture, PT and multiple drugs with...

I was diagnosed with cervical dystonia 4 years ago before getting my Parkinsons ...

Gigi_12

•1 year ago

10 Replies

add THC tincture to CBD Salve

Several drops of THC sold as under the tongue tincture mixed thoroughly with Topical CBD salves seems to activate the CBD. Rubbing small amounts of the mix on...

Several drops of THC sold as under the tongue tincture mixed thoroughly with Top...

BurntGlass

•1 year ago

Be the first to reply

viral infections

https://youtu.be/lOUldiXQ83k?si=suyDvvHCouhgt0IO

akgirlsrock

•1 year ago

4 Replies

BenJazz

GwendolineJ: noted that you had a neurologist with wider experience than most. I understood that that person might practice in Melbourne, Australia. If...

GwendolineJ: noted that you had a neurologist with wider experience than most. ...

Benjazz

•1 year ago

3 Replies

Bioinorganic Chemistry of Micronutrients Related to Alzheimer’s and Parkinson’s Diseases

Recent interesting article (July 2023). I was researching a bit more on B6 because there is still negative research about supplementing with B6, and came...

Recent interesting article (July 2023). I was researching a bit more on B6 beca...

Sydney75

•1 year ago

1 Reply

Cerevance Doses First Patient in ASCEND Phase 2 Clinical Study of CVN424, a First-in-Class, Non-Dopaminergic Therapy for the Treatment PD

Here is a link to press release regarding a Phase 2 PD trial that is recruiting in the United States - currently two centers - one in Arizona and one in...

Here is a link to press release regarding a Phase 2 PD trial that is recruiting ...

Canddy

•1 year ago

Be the first to reply

For People With Parkinson's Taking Levodopa Medication: The Danger of B6 Deficiency Is Dire and Vastly Outweighs the Danger of B6 Excess

Vitamin B6 is an essential cofactor for over 100 enzymatic reactions. We need abundant B6 to keep what is left of our dopaminergic neurons as healthy as...

Vitamin B6 is an essential cofactor for over 100 enzymatic reactions. We need ab...

park_bear

•1 year ago

148 Replies

Gabapentin

I recently started taking 1 gabapentin 300 mg nightly because of my severe nerve pain and to help me sleep as nothing I have tried has helped only for a little...

I recently started taking 1 gabapentin 300 mg nightly because of my severe nerve...

Butterflygrandma

•1 year ago

14 Replies

B6 - advice

I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed...

I’m confused about B6. is the advice with Co-Careldopa not to take, at all. ...

Nb11

•1 year ago

11 Replies

Flavor change

Hello, I've had a weird phenomenon recently. I normally enjoy sweet and sour chicken from a local restaurant. Last time I had it, around a month ago I didn't...

Hello, I've had a weird phenomenon recently. I normally enjoy sweet and sour chi...

Karmaone

•1 year ago

7 Replies

This should give us all some hope, Treating neurodegenerative diseases in a metabolic way.

Please advise if I have stuffed up the link. https://youtu.be/5MM62kXYBaE?si=0YvQoI4z3Y7LzLli

Please advise if I have stuffed up the link. https://youtu.be/5MM62kXYBaE?si=...

AaronS

•1 year ago

5 Replies

Get off Sinemet?

My husband does not have tremors, but definitely has drooling, is stooped, is stiff and slow, at times has fast gait and/ or severe hesitation with moving, all...

My husband does not have tremors, but definitely has drooling, is stooped, is st...

Kat343

•1 year ago

7 Replies

Red light and tremor

Anyone here have any success with red light helping with tremor? Specifically, anyone who is not on meds that could possibly be the reason for tremor success....

Anyone here have any success with red light helping with tremor? Specifically, ...

gomelgo

•1 year ago

12 Replies

Father has developed chronic hiccups

Hi, Sorry if this is the wrong forum but was hoping for advice or some signposting. My father had double knee surgery a few years ago. After the operation...

Hi, Sorry if this is the wrong forum but was hoping for advice or some signpos...

santiagomark

•1 year ago

6 Replies

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

All posts for November 2023

Using B1 therapy

Funmy. A talented lady I reckon

The "UP-study" phase 2 trial of UDCA Co funded by Cure Parkinson's led by Prof Oliver Bandmann

Wearables Track Parkinson’s Better Than Human Observation, Study Finds

What to do next

Parkinson’s summit details

K0706 Clinical Trial

Dyskinesia question

cannabis and PD

Interesting Paper on Propranolol for Dyskinesia Relief

BREAKTHROUGH! Parkinson's Progression HALTED by Inhibiting Enzyme!

How much Levadopa after 7 years of Parkinson's?

Is this website BULLSH*T?

Recording available for NoSilverBullet interview of Dr Wayne Markman, CEO of SYMBYX, on "Light therapy for Parkinson's".

DrTalks Parkinsons Summit 11/14 to 11/20

DrTalks PD Summit

Cervical Dystonia

add THC tincture to CBD Salve

viral infections

BenJazz

Bioinorganic Chemistry of Micronutrients Related to Alzheimer’s and Parkinson’s Diseases

Cerevance Doses First Patient in ASCEND Phase 2 Clinical Study of CVN424, a First-in-Class, Non-Dopaminergic Therapy for the Treatment PD

For People With Parkinson's Taking Levodopa Medication: The Danger of B6 Deficiency Is Dire and Vastly Outweighs the Danger of B6 Excess

Gabapentin

B6 - advice

Flavor change

This should give us all some hope, Treating neurodegenerative diseases in a metabolic way.

Get off Sinemet?

Red light and tremor

Father has developed chronic hiccups

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