Cervical Dystonia : I was diagnosed with... - Cure Parkinson's

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Cervical Dystonia

Gigi_12 profile image
10 Replies

I was diagnosed with cervical dystonia 4 years ago before getting my Parkinsons diagnosis . I tried multiple massages, acupuncture, PT and multiple drugs with little help. I have tried Botox several times with mixed results. The first Dr gave me too much and i couldn't hold up my head for 5 months. The second Dr was very conservative and I did great for about 18 mo ths and then started having swallowing problems. I have not had any fir 6 months and my neck keeps getting worse. Has anyone found a successful treatment?

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Gigi_12 profile image
Gigi_12
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10 Replies
Mimer profile image
Mimer

Have you tried Dr Farias’ online dystonia recovery program?

Gigi_12 profile image
Gigi_12 in reply toMimer

No, how do I find that?

Gigi_12 profile image
Gigi_12 in reply toGigi_12

I found it. Thank you. Has anyone else tried this?

Sallyderek profile image
Sallyderek in reply toGigi_12

I’m going to ask about this

Sallyderek profile image
Sallyderek in reply toMimer

I just had a read on this …. Very interesting

Sallyderek profile image
Sallyderek

I had Botox on 14th Dec and I have really bad neck pain and I can’t lean my head forward as I can’t take the weight. Brushing my teeth I have to hold my head up and lean g down to pick something up is pretty difficult…is this normal

Gigi_12 profile image
Gigi_12 in reply toSallyderek

That sounds like they gave you too much botox. The shots shouldn't make you worse if given correctly.

Sallyderek profile image
Sallyderek

Thanks Gigi. Should I let them know. They have been upping my dose every three months as my head was still nodding.

Gigi_12 profile image
Gigi_12 in reply toSallyderek

I would let them know so they can track the dosage. My Dr also said the shots build up so you need to be careful about overdosing.

Sallyderek profile image
Sallyderek in reply toGigi_12

Right great… thank you

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