Gabapentin: I recently started taking... - Cure Parkinson's

Cure Parkinson's

25,523 members26,843 posts

Gabapentin

Butterflygrandma profile image
14 Replies

I recently started taking 1 gabapentin 300 mg nightly because of my severe nerve pain and to help me sleep as nothing I have tried has helped only for a little while. I was desperate. Its great for sleep but after only 3 or 4 nights I am waking up to not just nerve pain in my left tremor arm but also my right and both shoulders. Has anyone heard of this..that gabapentin can actually make your nerve pain worse ? I am panicking because I will have nothing to help me sleep if I quit this but more pain is a nightmare as I already have excruciating pain .

Written by
Butterflygrandma profile image
Butterflygrandma
To view profiles and participate in discussions please or .
Read more about...
14 Replies
Babydriver13 profile image
Babydriver13

Hi Butterfly Grandma I am a wife of aPWP

I injured my knee 3 years ago and was prescribed gabapentin as I am allergic to codeine based and other pain killers

The gabapentin did absolutely nothing for the pain, disrupted my sleep further and ‘put me on edge’

I stopped taking them and other than having to tolerate the pain again felt back to normal 😊

I hope this helps a little and you find some proper relief soon BD

Butterflygrandma profile image
Butterflygrandma in reply to Babydriver13

Did you have withdrawal symtoms? I have only taken them about 5 nights. My nerves feel raw. How do I get this crap out of my body ? Would an Epsom salts bath help ?

healthabc profile image
healthabc

Have you tried THC? Works well for me-

beehive23 profile image
beehive23

gaba makes my symptoms worse to say the least. you can try a low dose, 25 mg, of seroquel....works well for me most of the time. hang tough.

Butterflygrandma profile image
Butterflygrandma in reply to beehive23

Does seroquel help pain ? I read it has a. Black box label for suicidal thoughts.

beehive23 profile image
beehive23 in reply to Butterflygrandma

no help with pain for me....the black box applies to doses for psychosis which i dont have. the low dose im using is for sleep.

Butterflygrandma profile image
Butterflygrandma in reply to beehive23

How much sleep do you get and what dose ?

beehive23 profile image
beehive23 in reply to Butterflygrandma

25 mg and 7 hrs sleep.......

Butterflygrandma profile image
Butterflygrandma in reply to beehive23

How long have you been taking it and does it develop tolerance and stop working as a sedative ?

beehive23 profile image
beehive23 in reply to Butterflygrandma

i have been taking the same dose since 2009. no tolerance build up for me.

1LittleWillow profile image
1LittleWillow

Is THC an option for you? I use THC gummies ("edibles," and always indica strain, not sativa) for sleep, and they help with pain as well. About 7-8 mg per night works well for me, but when I first started (several years ago), I only took about 5 mg.

amykp profile image
amykp

Maybe you could try Lyrica (Pregabalin)? It is another drug for nerve pain that for some people is absorbed better, thus works better than Gabapentin. It is more expensive, unfortunately, and is theoretically addictive, so some Drs are reluctant to prescribe it, but when it works it's like a miracle. It can make you dizzy/sleepy, which is nice for bedtime, though of course you have to be careful during the day.

My husband takes it long term for nerve damage from foot surgery...after Gabapentin did nothing. (And he happens to be a pain Dr. himself. Just sayin :o)

Troongolfer profile image
Troongolfer

Hi when I was diagnosed with of my

Neurologist thought that I had a trapped

Nerve in c 5 /c6 which can cause tremor

My gp prescribed pregabalin which helped

I took it for about a year then came off it

Physical exercise in that area can help

Nerve pain along with deep massage

I have every 4 weeks , it’s the usual you have to chuck your own money at it good luck

AaronS profile image
AaronS

Hey Butterfly Grandma,

Could I suggest this channel to you on YouTube? I watch regularly, Personally, I don't suffer from sore nerves, However, these guys seem to be able to assist in the long term management or even "reverse" Damaged/painful nerves. I hope This channel can help you out.

youtu.be/zRm76xTWsJ4?si=YNf...

You may also like...

Gabapentine

Any PD peeps that used gabapentin for pain in body? Good/bad effects? People have been telling me...

Gabapentin for Parkinson disorder treatment

com/open-access/gabapentin-in-treatment-of-two-parkinsons-disease-patients-with-pain-a-case-report.p

Parkinson sufferer looking insomnia cure

per night … I am looking for advice on any medication people found helpful or any tips that helped...

Problems, problems, problems

Quietapine before I go to sleep, and after 2 or 3 hours, I wake up and realize that I have...

levodopa or not levodopa

nice people, I have been diagnosed 2 years ago, I have mild symptoms I believe, only left arm...