Trying different therapies. Feedback appreciated

[CV119]

Writing this on behalf of my uncle to see if anyone has any thoughts on tweaking this protocol

He has been battling PD for 5 years

Last 2 years the condition has progressed

Main issues: Balance, Drooling, and Freezing.

Below is standard treatment along with alternative treatment we have been implementing from research.

Standard Medical Treatment

Glycopyrrolate 1 mg 3 times a day

Carbidopa/levodopa 25-100mg 2 tablets three times daily

ENTACAPONE 200 MG 1 tablet Orally three times a day 90 days

Supplements/Additional Therapy

He is trying the following supplements and therapy below. If anyone has any thoughts on how to improve, we appreciate the feedback

Organic Diet - 2+ years. Mostly consisting on lean meat, vegetables, and clean carbs (no junk food, no highly processed snacks)

Redlight from WellRed 3 months ongoing

B1 sublingual 2+ months ongoing

Acupuncture 3 months ongoing

PS128 - Probiotic from Bened Life . 6 days ongoing

Mobility exercises

Creatine monohydrate - less than 2 grams a day. 2 days ongoing

NR supplements from Tru Niagen 1 month ongoing

Omega-3 Plus EPA/DHA Fish Oil

Choline

Magnesium Threonate

Alpha-Lipoic Acid

Acetyl L-carnitine

CoQ10 UBIQUINOL

Vitamin C 1000 mg

Vitamin D 125mcg

Complex B

Reishi and lion mane supplements

[MBAnderson]

Personally, I stay away from anticholinergics (Glycopyrrolate) as they may increase the risk of developing dementia. Otherwise the rest looks good.

[CV119 in reply to MBAnderson]

thank you for the feedback

[MarionP]

Does he have COPD?

[CV119 in reply to MarionP]

Not to our knowledge

[LindaP50]

Good morning, I note you wrote Mobility exercises. Has your Uncle included music therapy, art therapy, mindfulness, relaxation techniques such as Tai Chi, Yoga, Qi Gong? The last 3 are great for helping with balance and many can be done while sitting in a chair. Bring joy and laughter into his daily life?

Sometimes too much focus is spent on medicines and supplements without working on the body, mind and soul and living a fulfilled life.

Perhaps I'm responding this way as I just read Park_Bear's post "On suffering."

[CV119 in reply to LindaP50]

We just learned about Qi Gong. Trying some moves along with daily mobility excercises

[LagLag37]

Has he tried Rock Steady Boxing(RSB)? It works to keep symptoms from progressing. I was diagnosed 20 yrs ago I've been doing RSB for 18. Just recently my tremors have progressed. I can still drive and do most activities. My neurologist said if I'm going to try DBS, now is the time. So on the 17th, I had DBS surgery. So far everything has gone well with it. I go Thursday for my first programming.

I would definitely recommend RSB. They have several levels. They will assess you before you start to determine which level of class you should start out in.

rocksteadyboxing.org

🥊🥰

[CV119 in reply to LagLag37]

He tried RSB for 1.5 years. I wasnt pleased with the workout routine. It seems they were not doing a lot.

[TracyLaine in reply to CV119]

I have taken Rock Steady Boxing classes at about four locations. It’s very location dependent lame might search for another location that has better programming.

[LagLag37 in reply to CV119]

I'm sorry they didn't give you the proper workout. I live a 1/2 hr away from headquarters and I know the founder, Scott Newman. If you want me to mention the affiliate's location and I could let them know. I think they would like to know if their affiliates are doing a good job or not. 🥊

[Lizzo30]

Alcohol gives the biggest dopamine hit , my husband has drug induced Parkinsons he has an alcoholic drink every evening before his dinner he likes whisky but only has it once a week he has a couple of glasse of red wine which has proven health benefits