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constipation with PD

Parkwarrior profile image
27 Replies

Recently, a member asked for help with constipation. My partner Bill has PD and suffered with bouts of rather scary constipation for a long time. We tried many things and finally found a couple of remedies that really work:

1. Sublingual, high dose thiamine (Source Naturals, 100 mg; about $7 at Amazon). After about two weeks, this really cured the problem and has helped with other PD symptoms as well. We learned about it from Daphne Bryan’s book Parkinson’s and the B1 Therapy, which tells you all about it. Bill takes one-half sublingual tablet three times a week. He no longer needs other remedies for constipation!

2. Beet Blast smoothie. This is a recipe from the PD clinic. B drank an 8-oz. glass once a day, and it was usually fairly effective, plus it tastes pretty good. The recipe makes enough for about 3 glasses. Be aware that senna tea has a laxative effect and can be used alone for that purpose.

1 cup diced cooked beets, chilled

1 ½ cups diced frozen pineapple

½ avocado, diced

6 oz. carton of pineapple yogurt (other fruit flavors can also be used)

½ cup orange juice

½ cup senna tea (brewed for about 5 min. for mild effect and cooled)

Put everything in a blender and blend until smooth. Store in refrigerator.

3. One or two kiwi fruit and 4 dried prunes every day, plus exercise. This is not perfect but helps.

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Parkwarrior
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park_bear profile image
park_bear

Additional information on the subject can be found here: healthunlocked.com/cure-par...

kaypeeoh profile image
kaypeeoh

I've tried a bunch of stuff. What seems to work the best is the prescription drug Motegrity once daily plus an occasional Bisacodyl.

chartist profile image
chartist

Taking senna long term can cause an electrolyte imbalance which would not be healthful at all :

nhs.uk/medicines/senna/side....

On the other hand, taking B1 long term has already proven highly useful on this forum.

Art

PDWarrior1900 profile image
PDWarrior1900

i'm glad you found what helps but that is a LOT of work... Many of us struggle with constipation ... me, too... very badly for a couple of months until I found a combination of things that worked 100% of the time with NO drugs or over-the-counter-stuff that can have a long term NEGATIVE effect on your intestines and colon

---------------------------

1. I bought this situp machine from Amazon. About $100.00

It's not advertised 'as' a situp bench, but as a 'weight bench.' I really shopped HARD for an back-adjustable bench as I'm not able to do a 'full situp'. This machine is PERFECT.

I do 4 sets of 20 (3/4 -- not the full 100% lay down) situps ... in 2 sets of 20. Then a few hours before eating, I'll do another 40.

amazon.com/Teclor-Adjustabl...

---------------------------------------------------

HERE's the REAL magic trick! A vibration plate machine! It has saved me many times from excruciating foot and lower leg cramps. As I was trying to devise my "constipation solution" ... I started to stand on my vibration plate machine immediately after doing my situps.

BUT... I learned the BEST WAY to get my 'insides pumping'...

TRICK:

1) My machine has 2 motors for two different types of vibrations. I turn one of the motors OFF.

2) I stand with BOTH FEET on the SAME SIDE (normally you straddle your feet ... one to the left and one on the right side of the plate).

3) I set it on the LOWEST setting (a '1' -- it goes as high as '60'!). I have an Amazon echo and I tell Alexa: "2 minute timer." And now the machine shakes my body UP and DOWN ... UP and DOWN ... UP and DOWN ....

And you better believe... that i'm RUNNING TO THE TOILET pretty damn soon!

-------------------------------------------------------------

This is NOT my machine -- but you can check it out and there are a million of them on Amazon and Craigslist

amazon.com/Lifepro-vibratio...

both
Racerk profile image
Racerk

Am taking Magnesium Citrate 250 mg ( Only 1 tablet/ day which is only 125mg), it helps with bowel movement and also helps my foot cramping. I also eat 5 dry plumes regularly. Eating avocado is also good for us, bc it is very high in fiber and also help us produce more dopamine. You can get all this stuffs from Costco.

ssrs profile image
ssrs

My husband take a diatomaceous earth pill each morning and he also has a couple of prunes. He usually has no issues with constipation.

pdbuzzboard profile image
pdbuzzboard

my partner’s neurologist recommended 1 part applesauce, 1 part prune juice, 1 part bran cereal. She would eat about a 1/2 cup each day for decent, but not magical, results.

Fb41445 profile image
Fb41445

Thanks for your post. I’ve tried everything ft

Fb41445 profile image
Fb41445

I’ve tried everything from Metamucil to B1 thiamine and find that bisacodyl suppositories 10mg gives me quick results but I’m concerned about long term use. I’ve been taking B1 regimen along with Magnesium every day for 3 years. I will read your suggested books.

Zardoz profile image
Zardoz

To a cup of warm water, add psyllium husks powder, ascorbic acid and a splash of apple cider vinegar. The psyllium forms a gel and softens matter in the colon.

cgreg profile image
cgreg

It turns out that I was doing it the wrong way. I tried this approach and it has helped. youtube.com/watch?v=QXjOzJc...

moleman68 profile image
moleman68

We found 1 fiber tablet and 1 probiotic tablet in morning, and magnesium at night and my husband now currently goes most days... at least 6 out of 7, and mostly every day. He's had PD for 25 years and earlier would be maybe once a month.

Santana35 profile image
Santana35

I am surprised that noone has mentioned eating an apple everyday . It is so simple and it totally puts me right. If I miss having an apple in the evening I pay the price the next day.

Dianne266 profile image
Dianne266

My PD husband takes about 2 tablespoons of ground flax seed each morning with 1 - 2 teaspoons of extra virgin olive oil sprinkled on his oatmeal or other cereal every morning. He swears by this. He also takes magnesium which helps with cramping of the legs.

Thal profile image
Thal

Becoming vegan helps me.

whiststev profile image
whiststev

could you send me a link for the sublingual B1 can’t seem find it on Amazon

Thanks

Parkwarrior profile image
Parkwarrior in reply to whiststev

amazon.com/dp/B004X4WM8W?re...

Hope this link works for you. Here's the descriptor Amazon uses, just in case you need to paste it in the search box:

Superior Source Vitamin B1 (Thiamin), 100 mg, Under The Tongue Quick Dissolve Sublingual Tablets, 100 Count, Increased Metabolism and Energy Production, Nervous System Support, Non-GMO

whiststev profile image
whiststev in reply to Parkwarrior

Thanks for the link which worked, but unfortunately the product is currently unavailable.

Thanks anyway

Parkwarrior profile image
Parkwarrior in reply to whiststev

Are you located outside the U.S.? That might be the reason, because I just checked Amazon and it's still available here. You might want to try contacting the company directly at superiorsourcevitamins.com

whiststev profile image
whiststev in reply to Parkwarrior

yes I’m in the UK . Can buy them from the US but cost $35 ,It seems they have become popular hence them being unavailable.

Breezyb0502 profile image
Breezyb0502 in reply to Parkwarrior

I also use this vitamin. It melts really easily and doesn’t taste as bitter as I thought it would.

dkdc profile image
dkdc

How about constipation caused by gastroparesis?

Breezyb0502 profile image
Breezyb0502

I wasn’t able to find anything to help with the constipation. No diet or medicine touched it. I started using Dulcolax suppositories, but they contain bicosydryl, so I stated doing a saline enema every other day and have been doing that for at least a year. Plus I carry my own water bottle everywhere and drink water all day. GI dr says to do whatever it takes to get the waste out.

JCRO profile image
JCRO in reply to Breezyb0502

White bread is a disaster for me. Two tablespoons of olive oil on an empty stomach first thing and pears/bananas help me greatly.

Butterflygirles profile image
Butterflygirles

I’ve tried many things. What seems to work best: DAILY coconut oil in first cup of coffee, and stool softener(s). Can’t let a day go by without success. Then ducolax. Remember EVERYTHING SLOWS DOWN!! Add a regular touch of walking and KEEP MOVING. (And keep smiling).

pyckle_syckle profile image
pyckle_syckle

Hello, Parkwarrior. Can you please clarify the description of vitamin B1 that you use?

Your initial post mentions brand Source Naturals, 100mg sublingual, which I could only find in non-sublingual forms when I searched Amazon . However, further down in the replies, you supply a link for brand Superior Source, which IS available in sublingual form. Also, the Superior Source version is Thiamin Mononitrate. Does anyone know how that differs from the suggested Thiamin Hydrochloride?

Julie

Parkwarrior profile image
Parkwarrior in reply to pyckle_syckle

My apologies for the mistake in linking sublingual B1 to Source Naturals. The correct brand is Superior Source. Before you use it, I strongly urge you to read Daphne Bryan's book "Parkinson's and the B1 Therapy," also available at Amazon for only about $10. It explains the reasons for taking B1, the mononitrate/hydrochloride differences, and gives the protocol.

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