Advice needed

[Bevolls]

I am currently waiting for biopsy results from a colonoscopy, which I had for suspected Crohns/IBD/UC. I have previously been told I have a Connective Tissue Disorder, also RA and maybe Sjogrens. I don’t think they actually know which. I am currently concerned as I have inflamed eyes, the whites are bluesy/grey and I have an very red, prominent and sore vein on my eyeball. My knees are stiff and puffy. My bowels/stomach/intestines are painful and feel like they are constantly grumbling and off. Can anyone advise what I should or could do? Do these symptoms sound like any autoimmune disorder in particular? The GP is not very helpful and my Rheumatologist is waiting on the biopsies. I could cry my eyes are so uncomfortable, my usually eye gel is just not easing them. I would appreciate any support or advice or words of wisdom.

TIA

[bantam12]

Google Uveitis, it can occur alongside an IBD, if it is that you need it treated.

[Bevolls in reply to bantam12]

Thanks, I’ll have a look

[Bevolls in reply to bantam12]

I’ve had episcleritis and scleritis before but not uveitis. It’s not painful but uncomfortable and dry.

[Jayhawkswimmer]

I have used Restasis twice a day for several years. It doesn’t work all day, but helps a bit with my dry eyes. I am a suspected Sjogrens diagnosis, despite a negative lip biopsy. The doctor said I clearly have Sicca Syndrome, basically a lesser degree with the same symptoms.

My colonoscopy and endoscopy in April were helpful. The biopsies identified what medications I needed to help with my intestinal problems. I am certainly improved. I still struggle, but am not restricted to the house because of my issues any longer. My diet is also drastically changed. Not by choice, but due to what the GI doctor and I eliminated and realized helped me the most. It has been a major process, but it does help me.

Best of luck to you.

[Bevolls in reply to Jayhawkswimmer]

Thank you for your reply.

I have received the all clear from my biopsies. So the excessive amount of mucus I have is unexplained.

My eyes are still sore and my joints stiff.

Hoping to speak to GP or my Rheumatologist next week.