Hi all, I was fifty earlier this year and have lived with Crohn's for approx 36 years, so consider myself something of a Crohn's veteran now. Until last year I thought I was doing okay on Azathioprine and a low dose of Pentasa, following my last surgery 11 years ago, which left me with only approx 1.1 metres of small bowel. Any occasional 'glitches', I would increase my Pentasa as I saw fit, but these were few and far between. I had my regular blood tests and B12 injections as ordered. Then last year my docs changed my medication to Methotrexate as they thought I'd been on the Azathioprine long enough, and it was adversely affecting my skin (increasing sensitivity to UV in sunlight causing severe keratosis). The changeover went without too many issues apart from one blood test which showed my liver function was a bit off the scale. This settled down gradually.
Last week I had the results of an MRI scan from 2 months ago, to see the current state of my insides on Methotrexate. This has unfortunately shown active Crohn's inflammation around the surgical anastomosis and a 5 cm concentric stricture. It's difficult to know how long it's been there. I hadn't really been aware of any new symptoms up to that point, though perhaps with hindsight there had been a bit more rumbling and gurgling going on after eating - which could be attributable to a stricture forming - but nothing major. My docs are now recommending changing my medication again to one of the biological therapies - just not sure which one yet.
So after a relatively long, mostly settled period it seems I'm about to embark on another unwelcome Crohn's journey. This time, however, with so little small bowel remaining, I feel it will probably be my last chance to maybe find an alternative means of treating my current symptoms and preventing the same thing from happening again. One of the things about being 'settled' on prescribed meds, is that it can lull us into a false sense of security. 'Normal life' takes over when we feel well, and I had become very complacent with my diet again - eating pretty much whatever I wanted without any apparent ill effects. Some things I had been made aware of over the last ten years or so, including more intolerance to cow's milk and fat in foods generally. I had changed to lactose free milk and then more recently to almond milk (unsweetened) as I actually prefer the taste.
I have just increased my Pentasa to 3 gms a day and am taking over-the-counter turmeric capsules twice daily, while waiting to hear what my docs' next move will be. However, I am particularly concerned about having a new found stricture, as these have always led to my needing surgery in the past (my last operation was my 6th for these and related fistulas). I really can't afford for this to get worse again, or to lose any more small bowel!
I have just been reading about some Crohn's sufferers relief from strictures in taking glutamine and colloidal silver, and I wondered if anyone here has any experience from taking either of these as supplements?