PREDNISONE

[preith17022]

hi all. Is anyone on DAILY prednisone long term? II've been on 20 mg daily for about a year now. After a recent exacerbation, I am now at 40 mg. Pulmonolgist wants me off completely eventually but since the flare is over, I really feel much better and am wondering how long I should continue on the 40 MG? A month to let the body adjust and then start the taper by maybe .5 at a time of 1 month, etc?

Opinions?

[R2B_Joe Partner]

I am one of the Admins here - I am not on prednisone so I can't provide any insight. I can recommend if you do not find an answer here, you could join in on the Right2Breathe patient support group called Pulmonary Chat. We meet 3X per month at 4:30 PM New York Time (Eastern Standard Time in the US).

If that would be helpful, I can provide the information to register...

Joe

[preith17022 in reply to R2B_Joe]

Yes please

[R2B_Joe Partner in reply to preith17022]

The next meeting is on Tuesday December 12th at 4:30 PM Eastern Time (New York Time). To register, you can fill out the google form here: forms.gle/T1PgCMhUSWuDqD7z5

The meetings are FREE and open to anyone living with lung disease, caregivers, or medical professionals who work with people living with lung disease.

Let me know if you have any questions.

[preith17022 in reply to R2B_Joe]

Everyone seems so supportive I'm just surprised that no one has commented. Maybe I just need to move along to a different forum.

[R2B_Joe Partner in reply to preith17022]

Not sure why some topics get more responses than others. I do encourage you to join Right2Breathe live for the Pulmonary Chat support group. It is a wonderful community of patients who support each other. I feel this group is good, and am grateful for the COPD Friends group, and the Pulmonary Chat support group is complimentary to this one.

[preith17022 in reply to R2B_Joe]

I am very hard to understand when I speak due to various mouth issues along with voice issues from COPD meds. I don't know that I could ask