Navigating HealthUnlocked: Introduction (For a... - CLL Support

CLL Support

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Navigating HealthUnlocked

AussieNeil
AussieNeilAdministrator

Introduction (For a quick menu summary, page down to HU Menus in a nutshell)

Our CLL Support community on HealthUnlocked, is the online support forum for the UK based charity CLL Support: cllsupport.org.uk . With over 16,500 members, we are the largest online international community for those with CLL/SLL, carers and others interested in this chronic blood cancer. Over 4,000 members are active per month, with most active members checking what's happening at least every couple of days.

We are just one of around 700 health and well-being communities on HealthUnlocked en.m.wikipedia.org/wiki/Hea... , so you are likely to find other communities of relevance to your personal health and well-being interests here: healthunlocked.com/search/c...

Most of us access our CLL Support community via a browser app on a smartphone or tablet or via the iPhone App, where reduced screen size requires a different menu layout to that seen on a PC/laptop. This post will only cover browser access, e.g. via Chrome, Safari, Firefox, Edge, etc, with notes on the difference between the menu presentations on desktops and laptops with full sized displays and the smaller smartphones and tablets.

The HealthUnlocked Dual Menu system

Most of us come to this site after reading our emailed Daily Digest and selecting a post of personal interest. That view just shows us the post of interest, any replies to that post, plus Related and Pinned Posts. Other pages are accessed through the Site and Community menus.

- The HU site top menu

The home location on HealthUnlocked: healthunlocked.com has just the one menu bar. This HealthUnlocked site top menu (from left to right) provides access via the icons for Home, My hub, Chat (Private Messages), Alerts (previously called notifications), Search (all of HU) and via your Avatar image, More. A yellow dot containing a number may appear to the right of Chat icon. This just shows how many unacknowledged Chats (Private Messages) you have waiting from other members in all your HealthUnlocked communities. Click on the Chat icon to go to your Inbox, then either click on the Home icon to return to Newsfeed to see what's been happening in all your communities, or the My hub icon to go to a specific community. Similarly, a yellow dot containing the number or responses (Likes, Replies to your posts and post of yours that others have saved) appears to the right of the Alert Bell icon.

The top menu Home icon healthunlocked.com presents you with a choice of following the latest activity (Newsfeed) or a view of your Saved Posts (previously Followed Posts). Newsfeed is the best way to see the latest posts and replies to earlier posts from all of the communities you follow. (Newsfeed is a constantly updated Web page of any activity - new posts or replies to existing posts, in any of the communities you follow). At busy times, screen refreshes will see posts quickly moving down the Newsfeed display as new replies arrive.

Please take the time to complete your profile (via Update profile on this page), as it enables others to check your relevant background and provide you with better replies to your questions.

My hub allows you to switch between the different communities you follow, plus you can select the blue text twice to switch from '+ View all my communities' to '+ Find a community' to search for (unlocked) posts of interests anywhere on HealthUnlocked. healthunlocked.com/search/c... Note that you can use filters to more selectively find posts of interest.

- The second community menu (below the community banner)

When you go to a specific community (e.g. via My hub), a lower community menu bar provides access to community specific locations of (Community) Home, Posts, Members and About (see below for more information on these). Above the community menu bar, you can select 'Write' in the blue box to write a post. On a small display device, More gives you access to About and Polls. (Selecting the tick box to the left of 'Write' is how you leave a community.

A community banner separates the two menus. (The banner helps you quickly recognise which community you are in if you follow more than one community. Also, each community can slightly change their community page layout, so other communities may have slightly different layouts). Most of us are only members of the CLL Support community, so we'll see the 'blood cell' menu banner above our community menu.

On the community Posts page healthunlocked.com/cllsuppo... you can filter posts by Latest, Unanswered, Popular, Pinned, Recently active and Polls.

The Pinned Post tab is a particularly important section of our community, as this is where we keep our most helpful posts for ready access. Check it out here: healthunlocked.com/cllsuppo... See also: How to find previously posted answers to your questions: healthunlocked.com/cllsuppo...

One very useful way of searching for past posts in a given month is via the Calendar option, which is available on the Posts page.

Under a Post, you have the options to 'Reply', 'Like', 'Save post', 'Report', or access more options via 'More v'. These options include being able to edit or delete the post if it is yours, or provide Sentiment feedback. If you save a post, you'll be notified about any replies to that post. You can also change the font of selected text via the Bold, Italic and Underline symbols, notify a person about your reply via the @ symbol or add emoticons via the smiley face. Coming soon will be the ability to include images in replies.

Selecting Members, gives you access to three views of our membership; Most contributions, New and Admins and Moderators and Similar to me. Selecting a member enables you to read what that member has decided to share about themselves as well as their recent activity. Please take the time to update your profile, in particular sharing your country of residence here: healthunlocked.com/profile/... On this page you can '+ Follow' a member to be notified of their new posts or send a member a private message by selecting 'Message'. Importantly, this the recommended way of sharing contact information for your privacy.

Using Members search. Type in a few characters from a member's username, then press the Search icon to the right. You should see all members that match that string of characters, including the person you are after. You can then select their name and you'll get the same profile page I covered above. Type a few more characters to reduce the number of matches if you get several pages of members listed.

The Polls page is again much the same as Posts with the difference that you just see a listing of previous polls. (We haven't used this feature for a while, because the polling feature is limited and it is not possible to lock poll replies for viewing only by our community members.)

Editing and Reporting posts/replies

After posting: healthunlocked.com/cllsuppo... , you can edit your own posts and replies at any time by selecting the 'More v' below your post and then selecting 'Edit'.

Likewise, via the same 'More v' access, you can delete your post or report any posts/replies that you find concerning, e.g. for spamming, inappropriate or inaccurate content. This post covers the many ways you can assist in keeping our community members safe: healthunlocked.com/cllsuppo...

Cookies Settings on HealthUnlocked

healthunlocked.com/cllsuppo...

How to Edit your profile, profile picture (avatar) and profile background

healthunlocked.com/cllsuppo...

How to Leave (un-follow) a community

healthunlocked.com/cllsuppo...

HU Menus in a nutshell

Top menu

- Home icon: Access to Newsfeed - the latest posts and replies from all the communities you follow

- My Hub icon (9 dots in square): Toggle between a view of all your communities, plus HealthUnlocked's latest, and the means to search for other communities of interest on HU

- Chat (paper glider): access to your private message page

- Alert Bell icon: Turns yellow to alert you to a "like" or "reply", or if someone has decided to follow you

- Search box: Search all of HU

- Avatar image: Dropdown list to access Profile, Find people near me, Your needs, Settings, Email notification settings, Help and Log out.

Our Community menu

- Community Home: Access to Latest community posts, which you can toggle to Popular posts

- Posts: Sort posts by Latest, Unanswered, Popular, Pinned, Recently active and Polls. Also provides access to Community Search

- Members: Search for a member, or view members by Most Contributions, New, Admins and Similar to me

- About: Information about our online community, our CLL Support online community guidelines, our parent UK charity CLL Support, and the list of Administrators and Volunteers, plus a means to contact us.

I hope you've found the above helpful, but bear in mind that this post is a work in progress, just like the HealthUnlocked website. If there are other areas of the site which you'd like me to cover, or more detail on areas covered above, let me know in a reply.

Here are some more posts that will greatly help you discover ways of living better with CLL and making the most of the content gems in our community:

12 TIPS to get more out of this CLL Support forum - and help others do the same.

healthunlocked.com/cllsuppo....

How you can help maintain our community safety

healthunlocked.com/cllsuppo...

How to contact our community support team, community members, CLL Support UK and HU Support

healthunlocked.com/cllsuppo...

Online Security Starts with YOU!

healthunlocked.com/cllsuppo...

Neil

This is an unlocked post: healthunlocked.com/cllsuppo... and was last updated on 08 January 2021

24 Replies
oldestnewest

Thank you Neil. I will have to print it out because there is so much information there I will need to take it a step at a time.

JigFettler
JigFettlerVolunteer

Awesome Neil. What a triumph! Thank you for all your work and support. Jig. UK.

That's a lot of work, Neil, so thank you very much.

The only thing I have to search for is how to start a new post. I know it’s silly but it catches me out every time. Luckily I mostly just reply!

Cx

AussieNeil
AussieNeilAdministrator in reply to Psmithuk

Check out the Help Pages!

support.healthunlocked.com

or specifically: How to write a post

support.healthunlocked.com/...

The Help pages are available through the Extras menu, which you access by selecting your avatar on the top right of the first menu. I personally think the Help pages should be easier to find, particularly given I consider them fairly comprehensive and well written.

Neil

Thanks Neil, you have really opened up and clarified the way to better utilise this amazing forum. I will follow MsChiefs example and print it.

Thank you 👍

Printed! Thanks,

J.

Excellent info for beginners and those like me who are still learning about site structure.

The How To Write A Post link didn't work on my laptop.

AussieNeil
AussieNeilAdministrator in reply to G_A_L

HealthUnlocked have just revamped their Help pages, so I needed to update the link. Try it now :) .

I feel lucky to have found this website, Neil. I have a friend with colon cancer where do they go for help. Please advise. They told me they feel “desperate.”

MsLockYourPosts
MsLockYourPostsVolunteer in reply to LovecuresCLL

Is your friend near a major cancer center. Many of them have centers to support cancer patients including support groups for specific cancers. There might also be a “Wellness Community” near your friend.

They need on line right now . What a shame the colon cancer survivors have no place as good as this . She had questions she had 6 cycles of chemo and tumor in retroperitoneum did not shrink

AussieNeil
AussieNeilAdministrator

Perhaps someone else can suggest a colon/bowel cancer support group, presumably US based? You might get more responses to a new post. I'm sorry, but I can't offer any suggestions. Surprisingly, the colon/bowel cancer support groups on HealthUnlocked aren't that large.

Neil

Okay thank you.

AussieNeil
AussieNeilAdministrator

On August 20th, HealthUnlocked made the following tweaks:

1. ‘Follow post’ became ‘Save post’ and clicking that triggers an explanation what happens when you save a post.

2. ‘How did this post make you feel?’ was moved under the ‘More’ drop down as ‘Sentiment feedback’.

3. The social share actions ‘Facebook’, ‘Twitter’ and ‘Email’ were removed.

This week HealthUnlocked announced that a new look for the profile survey is on the way and recording health conditions and interests has been improved. At the moment the profile survey is only visible to new members when they join and to those visiting an empty profile page. In response to feedback about members not being able to enter their conditions, duplicates and abbreviations that often made it difficult to find what you're looking for have been removed and expanded respectively. The database now includes many more health and well being interests, such as different diets, supplements and vitamins that members take to help manage their condition or improve their well being.

HealthUnlocked now have 6,000+ health terms stored in their ontology database but appreciate there may be some they're missing, so they have created a feedback loop. Now, when you search for a condition, treatment or a health interest from the profile survey or healthunlocked.com/profile/edit and HealthUnlocked don't have it, they'll know about it so that it can be added.

Neil

AussieNeil
AussieNeilAdministrator

HealthUnlocked notifications

There are three kinds of notifications from HU, with the first two provided by menu bar indications and optionally email notifications. Email notifications are managed here: healthunlocked.com/settings

1) A count of 'Likes' and replies in a red spot to the right of the bell menu icon and email notification of replies if enabled. (On a desktop or laptop, you can read these by hovering your mouse pointer over the bell. On a mobile device, you'll need to select the bell icon to open a page displaying these. Hold your finger on the bell icon longer to be prompted for a new tab, so you don't lose the contents of your open tab).

2) A count of Private Messages/Chats unread in a red spot to the right of the Chat menu icon and email notification of PMs if enabled

3) Email notification if someone tags/notifies you that you have been mentioned in their post/reply by typing @(username) and selecting your name from the pick list below the post/reply box. You can't opt out of that notification in your settings.

You may need to refresh your browser page or open a new page to see an accurate count of the menu notifications.

Neil

AussieNeil
AussieNeilAdministrator

Now updated to include how to Edit or Report posts/replies via the "More v" option below the post/reply.

AussieNeil
AussieNeilAdministrator

One difficulty with the HealthUnlocked site layout, is that the Pinned Post section is hard to find. The Pinned Post tab is a particularly important section of our community, as it's where we keep the most helpful posts for ready access. Check it out here: healthunlocked.com/cllsuppo...

AussieNeil
AussieNeilAdministrator

A reminder to take the time to provide some background to your CLL diagnosis and treatment history, if any in your profile. This helps members to better answer your questions by selecting your avatar next to your post and reading what you've shared. With the big differences in treatments available by country, sharing where you live will also help respondents and you. Just select this link to update your profile: healthunlocked.com/profile/...

There's more information on how your profile is used here: support.healthunlocked.com/...

You can also update your avatar image and profile banner from the assigned defaults. Sharing your personal photo is NOT recommended, as it may be possible to discover your real identity by a Google reverse image search.

Likewise, it's NOT advisable to use a username that is identifiable with you. You can change your username to something anonymous as explained here. support.healthunlocked.com/...

Choose well, as you can only change it twice!

Here's how you update your avatar and banner images. Some of us have shared stunning photos. You can update these as often as you like. support.healthunlocked.com/...

Neil

JigFettler
JigFettlerVolunteer

Just wondering how all new members could be steered to reading a post like this. Part of the new member joins experience...

Jig

AussieNeil
AussieNeilAdministrator

HU Menus in a nutshell

Top menu

- Home icon: Access to Newsfeed - the latest posts and replies from all the communities you follow

- My Hub icon (9 dots in square): Toggle between a view of all your communities, plus HealthUnlocked's latest, and the means to search for other communities of interest on HU

- Chat (paper glider icon): access to your private message page

- Alert Bell icon: Turns yellow to alert you to a "like" or "reply", or if someone has decided to follow you

- Search box: Search all of HU

- Avatar image: Dropdown list to access Profile, Find people near me, Your needs, Settings, Email notification settings, Help and Log out.

Our Community menu

- Community Home: Access to Latest community posts, which you can toggle to Popular posts

- Posts: Sort posts by Latest, Unanswered, Popular, Pinned, Recently active and Polls. Also provides access to Community Search

- Members: Search for a member, or view members by Most Contributions, New, Admins and Similar to me

- About: Information about our online community, our CLL Support online community guidelines, our parent UK charity CLL Support, and the list of Administrators and Volunteers, plus a means to contact us.

Neil

AussieNeil
AussieNeilAdministrator

HU have just introduced improvements for replies; easier access to the '@' notification feature, by which you can let someone know about your reply, other than those in the chain of replies you've replied to, plus easy access to emojis 😀. I would encourage everyone to use the HU emoji set, for the simple reason that choosing one from your phone's emoji set will not necessarily display it on other devices. I often can't see emojis sent by members using Apple devices.

Several members have coincidentally reported that selecting a reply from Newsfeed or an email notification doesn't take you to the reply, only the parent post, from which you have to scroll to find the reply. I've reported this bug to HU.

Watch out for further improvements in replies soon, including one very much sought for improvement!

Neil

Neil, appreciate your work in this communication treasure. Sandra

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