It isn't easy posting for the first time, particularly if this on-line forum world is new to you. Then you wait patiently, wondering what others will think of your submission. Will anyone respond? Can they help?
So here are some tips to help those that haven't yet taken this step.
1a) Select 'What's your question?' at the top of the HealthUnlocked home page: healthunlocked.com
If you are a member of more than one HU community, select the one you wish to post in.
or
1b) Select the blue "Write" box on our community home page: healthunlocked.com/cllsupport
2) Choose a title that while not too long, summarises the purpose of your post. A meaningful title will greatly increase the number of replies you'll receive in our busy forum.
3) In your first sentences, try to provide some context for your post. Then members can quickly decide if they can help you, or are interested in reading your referenced article.
4) Take time to make your post easily readable; break it into paragraphs as appropriate, use punctuation and spaces between your sentences, start them with capitals and so on. While it might be easy on a tablet to use all capitals, it makes your post harder to read and is considered to be shouting on Internet forums.
5) Note that there is a 7,000 character limit on posts. You'll be warned in the unlikely event that your your post exceeds that length. Use backspace '<-' to reduce the size of your post under the limit.
When you've completed drafting your submission, take the time to read it through, putting yourself in the place of someone that knows nothing about you and your concerns. Have you provided enough background? What's your CLL status? Say if you are newly diagnosed, approaching or in treatment, had treatment previously and so on. Letting us know what country you are from can help respondents provide you with a more helpful reply. Health systems vary and treatment/trial options vary greatly around the world. Maintaining your bio helps greatly, per this post: healthunlocked.com/cllsuppo... It saves you from repeatedly providing background to where you are in your CLL journey. This link enables you to edit your profile and bio: healthunlocked.com/profile/...
Submitting your post - the finishing touches
1) What topic does your submission fall into? (It's not essential if you can't decide, but by selecting 'Add topic' in blue below your post and selecting an appropriate topic from the list provided, you'll help others more easily find your post.)
2) Add a photo or perhaps a scan of your test results. If you have more than one page of results, reply to your post to include the additional pages
3) If your question is on a sensitive topic or you are disclosing personal information, in answer to the 'Share:' option, select 'Community only'. Otherwise your post can be found via Internet searches. See this post for more information: healthunlocked.com/cllsuppo...
4) If you want to alert specific members about your post, use the @ notification feature: support.healthunlocked.com/...
5) Consider using the Bold, Italic, Underline font formatting options on the toolbar to highlight key points. Use emoticons sparingly. Below, there's a section covering keyboard formatting and emoticon shortcuts
Select Post. The site will prompt you for anything you've forgotten.
The above and more is covered in the Help pages here: support.healthunlocked.com/...
You can always edit anything you want, the title, the text, an accompanying photo, etc. Just select the 'More v'...'Edit' under your post and make what changes you require. (You can likewise edit any of your replies by selecting 'More v'...'Edit' under your reply.)
Be patient waiting for a reply. While some members may check a few times through the day, most won't know about your post until they get their daily or weekly notification email. If you keep a HealthUnlocked browser tab open, when you have a reply, you should see a number appear in a red circle next to the bell on the menu. You may need to refresh the page on some devices. You should also receive an email notification if you have that enabled in your account settings: healthunlocked.com/settings
Keyboard shortcuts
As mentioned earlier, there are a few things you can do to make your submission stand out. This site supports basic formatting of bold, italics and underline, alone or in various combinations via the toolbar under the text entry box or via the following keyboard shortcuts.
Font control
[ b ]Bold[ /b ] Bold
[ i ]Italics[ /i ] Italics
[ u ]Underline[ /u ] Underline
[ b ][ i ][ u ]Everything[ /u ][ /i ][ /b ] Everything
You just leave out the spaces between the b, i or u (which enables the font change) or the /b, /i or /u, which resets the font property back to what it was prior to being enabled.
You can use these in any combination and/or you can also use the Ctrl+(b,i,u) keys (or Cmd not Ctrl on a Mac) to toggle bold, italics and underline of text as you write it, or highlight selected text and use whatever Ctrl+ command to change the text font as you wish. (The control/command key option doesn't work in Private Messages.)
This site also supports unicode graphics plus a basic set of keyboard entered emoticons:
Icon, Text equivalent, Meaning
: ) Smiley or happy face
: D Laughing, big grin, laugh with glasses
: ( Frown, sad
: ' ( Crying
: o Surprise, shock
; ) Wink, smirk
: P Tongue sticking out, cheeky/playful, blowing a raspberry
: - / Skeptical, annoyed, undecided, uneasy, hesitant
: x Angry
8 - ) For when it's nice and sunny
You just leave out the space between the characters for the emoticon character representation to be converted into the emoticon. (If you copy the above into an editing program like Notepad, you'll see what I mean.)
Replies to posts now enable you to add photographs, format text, add emoticons and use the @ notification feature.
Do you have tips you'd like to share? Your feedback is welcome!
Neil
Photo: Autumn Dawn
Last updated 24th July 2022 to reflect site enhancements