It isn't easy posting a question for the first time, particularly if this on-line forum world is new to you. Then you wait patiently, wondering what others will think of your submission. Will anyone respond? Can they help?
So here are some tips to help those that haven't yet taken this step.
1) Click on 'Write a Post' and if you are a member of more than one HU community, select the one you wish to post in.
2) Chose a title that while not too long, summarises your question
3) In your first sentences, try to provide some context for your question. Then people can quickly decide if they can help you.
4) Take time to make your post easily readable; break it into paragraphs as appropriate, use punctuation and spaces between your sentences, start them with capitals and so on. While it might be easy on a tablet to use all capitals, it makes your post harder to read and is considered as yelling on Internet forums.
When you've completed drafting your submission, take the time to read it through, putting yourself in the place of someone that knows nothing about you and your concerns. Have you provided enough background? What's your CLL status? Say if you are newly diagnosed, approaching or in treatment, had treatment previously and so on. Letting us know what country you are from can help responders provide you with a more helpful reply. Health systems vary and treatment/trial options vary greatly around the world.
Submitting your post - the finishing touches
1) Edit out non applicable tags that may appear in light blue below your post. (This is not essential.)
2) What topic does your submission fall into? (It's not essential if you can't decide.)
3) Add a photo or perhaps a scan of your test results
4) If your question is on a sensitive topic, in answer to the question 'Who can see my post?', make certain that you select 'Only followers in my community (Hidden post)'.
Click/Press Post. The site will prompt you for anything you've forgotten.
The above and more is covered in the Help pages here: support.healthunlocked.com/...
You can always edit anything you want, the title, the text, an accompanying photo, etc. Just press/click on the 'v' to the right of '+Follow post' under your post and make what changes you require. (You can likewise edit any of your replies by clicking on the 'v' to the right of the Like (n) under your reply.)
Be patient waiting for a reply. While some members may check a few times through the day, most won't know about your post until they get their daily or weekly email. If you keep a HealthUnlocked browser tab open, you'll see number appear in a red circle next to the bell on the menu when you have a reply. You should also receive an email notification if you have that enabled in your account settings:
Finally, there are a few things you can do to make your submission stand out. This site supports basic formatting of bold, italics and underline, alone or in various combinations.
[ b ]Bold[ /b ] Bold
[ i ]Italics[ /i ] Italics
[ u ]Underline[ /u ] Underline
[ b ][ i ][ u ]Everything[ /u ][ /i ][ /b ] Everything
You just leave out the spaces between the b, i or u (which enables the font change) or the /b, /i or /u, which resets the font property back to what it was prior to being enabled.
You can use these in any combination and/or you can also use the Ctrl+(b,i,u) keys to toggle bold, italics and underline of text as you write it, or highlight selected text and use whatever Ctrl+ command to change the text font as you wish. (The control key option doesn't work in Private Messages.)
This site also supports unicode graphics plus a basic set of emoticons:
Icon, Text equivalent, Meaning
: ) Smiley or happy face
: D Laughing, big grin, laugh with glasses
: ( Frown, sad
: ' ( Crying
: o Surprise, shock
; ) Wink, smirk
: P Tongue sticking out, cheeky/playful, blowing a raspberry
: - / Sceptical, annoyed, undecided, uneasy, hesitant
: x Angry
8 - ) For when it's nice and sunny
You just leave out the space between the characters for the emoticon character representation to be converted into the emoticon. (If you copy the above into an editing program like Notepad, you'll see what I mean.)
Do you have tips you'd like to share? Your feedback is welcome!
Photo: Autumn Dawn