RwHayes in Lung Cancer Support2 years ago
Next week I am starting that clinical trial doing the prophylactic radiation . Even though patients don't know whether we will...
Mum with CLL
Doyle12 in CLL Support Associationa year ago
I’ve never used a support website before but I thought I would give it a go. My mum was diagnosed with CLL 5 years ago at the age of...
Audrey10 in CLL Support Associationa year ago
I was disagnosed with CLL six years ago. Was in remission for 3 years and then had to have 2 3day chemo sessions to get my WBS count back in...
Texascubbie in My MSAA Communitya year ago
Dx 2009, prob affected for 2yrs b4 that. Lab rat in early phase II clinical trial of what's now ocrevus. It works for me. Bad lassitude and...
just joined stage 4
kmack57 in Advanced Prostate Cancer10 months ago
Age 61, diagnosed at 55 and had Proton radiation. Recurred last year in Jan 2017 and had IRE and Cryo as a last ditch attempt to halt progre...
Is this newest pill absolutely safe??
Hidden in British Liver Trust3 years ago
Hi everyone, thank you for all your insights! It seems to me that no one seems to get any harsh side effects from this new pill. I haven't...
donna01 in PBC Foundation4 years ago
Came across this earlier and been meaning to post. Help could be closer than we think. Positive thoughts! pipelinereview.com/index.ph...
Gecrellin in Advanced Prostate Cancer3 years ago
After 13 cycles of docetaxel and 4 of cabazitaxel, both have stopped working, at least alone. CT and bone scans yesterday both showed modest...
Smaller, shorter trials, more flexibility needed for lupus treatment development
lupus-support1 in LUpus Patients Understanding and Supporta year ago
Merrill JT, et al. Lupus Sci Med. 2018;doi:10.1136/lupus-201...
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HI my name is Shannon and I am new .
ssimonds75 in Understanding Clinical Trials3 months ago
HI my name is Shannon and I Im new here. I am hoping I can find a better understanding to this disease and beat it! There is no one in my f...
Where do you think we will be with ataxia in 20 years time
lola261184 in Ataxia UK2 years ago
Just a question to see where we think we will be with research with ataxia in 20 years time x
Just wondering if anyone has seen this news report
leslaki in Gluten Free Guerrillas7 years ago
and also wondering what opinions you may have. Has anybody heard of Nexpep before.(dont know how to add link so it is;
Clemastine Fumarate (anti-histamine)
Joolsg in Restless Legs Syndromea year ago
Has anyone tried clemastine fumarate ( an anti-histamine)? I know most anti histamines make RLS much worse but I cannot find out whether thi...
Anyone on PARP inhibitors?
johngwilk in Advanced Prostate Cancera year ago
I find out tomorrow whether I'll be entering a phase 2 clinical trial of a PARP inhibitor, niraparib (Zejula). I have a CDK12 DNA repair mut...
Xtandi beneficial in reducing radiographic progression-free survival (rPFS) in men with metastatic hormone-sensitive PC
Tall_Allen in Advanced Prostate Cancer5 months ago
Not FDA-approved yet. The FDA has recently accepted rPFS as a surrogate endpoint for overall survival. It remains to be seen if they will ac...
New Trial at Kings College Hospital
RodeoJoe in British Liver Trust2 years ago
Hi all, has anyone else been approached about a medical trial at Kings that could possibly see them off of immuno suppressants altogether?
Treatment in California
rlyndecker in CLL Support Association4 years ago
I am in Northern California (an hour south of Sacramento) and based on my blood work & cat scan (lymp nodes; count doubling, extreme fatigu...
marktq1 in British Liver Trust4 years ago
Hi I had a fibroscan 6 months after a successful trial to cure my hep c a year prior to treatment my fibroscan score was 23 after treatment...
Hope for Today - grateful for SHARE
Barbara-Aschner in SHARE Metastatic Breast Cancer 3 years ago
Hello, I was diagnosed with metastatic bc in July 2016.
I am currently being treated with chemo Taxol and am responding well. However, I am ...
Stelle in Advanced Prostate Cancera year ago
I have been on Xtandi for two months and PSA is now down to .59 and I feel much better than when I was on Lupron and Casodex. I have read t...
sportscoach in AF Associationa year ago
Interesting new developments in the treatment for AF...
Kicking Cancer's ASS ONE DAY AT a TIME!
Woodykeller in Lung Cancer Support2 years ago
I am a 60 year old carcinoma non small cell lung cancer man, ex fighter, back for THE MAIN EVENT FIGHT. let's do this.
CAT-354 - novel anti-IL-13 monoclonal antibody
Hidden in Asthma UK community forum11 years ago
Is anybody aware of any results or outcomes of the clinical trials of CAT-354 which is running in UK. I couldn't find any publicati...
The RePnue coils.
Mikefever in British Lung Foundation4 years ago
Can anyone please tell me if they have read about RePnue coils lately .I read about six months ago this procedure of putting coils (like pap...
Riffing On My Latest Lab and CT Results
bkoffman in CLL Support Association5 years ago
I just posted an update on the good news on my lab, CT scans, and general CLL (chronic lymphocytic leukemia) status on my blog bkoffman.blogspot.com...
A Mechanism-Driven Treatment for Chronic Lymphocytic Leukemia?
Cllcanada in CLL Support Association6 years ago
Also published data on early ibrutinib trial...
'The New England Journal of Medicine (NEJM) h...
The in between
Stumpgirl in Advanced Prostate Cancer10 months ago
Hi all. Happy Sunday to you. We are pretty worried over here. Zytiga was no longer working for my father and his psa was climbing pretty ra...
Terencegeorge in AF Associationa year ago
Anybody had a hybrid ablation? I would most interested to read your experience if you have. On the verge of having one myself. Thank you.
MOLECULAR HYDROGEN: A preventive and therapeutic medical gas for various diseases.
SilentEchoes in Parkinson's Movementa year ago
This is exciting research, most supplements cannot pass the blood brain barrier, hydrogen is the smallest molecule in the universe and can e...
Was there Selection Bias in the PIVOT trial?
pjoshea13 in Advanced Prostate Cancer3 months ago
\"Findings question validity of large PCa trial\"
\"Cheryl Guttman Krader
\"Feb 14, 2019
\"San Francisco—According to the updated report from t...
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