New Drug May Repair Myelin: I received an... - My MSAA Community

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New Drug May Repair Myelin

NanciG profile image
9 Replies

I received an article about clinical trials at the University of California San Francisco on a drug that can repair myelin. It uses venom from the green mamba snake. I'm wondering if the side effects include developing a lissssssp? 🤣 It's a long way from being available, but it sounds interesting.

Here's the link: ucsf.edu/news/2024/07/42812...

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NanciG
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9 Replies
lbenmaor profile image
lbenmaor

Very Interesting! Thank you for posting this.

Leslie

Xvettech profile image
Xvettech

😂 very interesting indeed

Cwright170994 profile image
Cwright170994

This is extremely interesting! The knowledge coming from scientists these past few years is absolutely amazing! From the CRISPR editing for new covid vaccines, to this! I have shared this article to my Facebook feed and people I know who also have MS, and many readers are very excited for this. I wish it would have come out 10 years ago, when I only had the small lesion in my left temporal lobe, with a diagnosis of CISMS! Or even 9 years ago when I had symptoms that led to me becoming clinically definite!

I knew there would be a form of a cure when I got diagnosed, but I didn't think it would be in my lifetime! I'm 30 next month, and I still didn't think one would come in my lifetime. I'm not eligible for HSCT, as I'm only relapse-remitting and my country is only doing tests with progressive MSers.

CatsandCars profile image
CatsandCars in reply to Cwright170994

There are doctors at Barts in London using alemtuzumab, or Lemtrada, which essentially tries to do the same thing as HSCT, but with a drug. Maybe you could get a referral somehow if you're interested? That MS-selfie blog talks about things like that. Professor Giovannoni's email is at the bottom of this page; you just need to email him and ask for a free subscription.

msselfie.co.uk/

Greentime profile image
Greentime

Wow! Thank you for posting. Such exciting potential!

Haku949 profile image
Haku949

Thank you for posting this ! I think I would not mind my son having a lisp over the issues he may face in the future. zzzhaank zzzou translator: thank you

Amore55 profile image
Amore55

Great idea. Thanks for sharing.

CatsandCars profile image
CatsandCars

Thank you for posting.

carolek572 profile image
carolek572CommunityAmbassador

All that is in my back yard are good old American rattlers, NanciG ! I will be sure to look out for those mambas! 😂 I already have a lisssp! 😂

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