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21 public communities
Understanding Clinical Trials
1,324 members
This community is dedicated to engaging the public and patients as partners in the clinical research process. It is run by The Center for Information and Study on Clinical Research Participation (CISCRP), an international nonprofit providing patient education and support. Want to learn more about clinical trials? Check out our online program to get a better understanding of the processes involved and why they are important: https://healthunlocked.com/programs/understanding-clinical-trials.
LDN Research Trust
1,414 members
The primary aim of the Trust is to initiate Clinical Trials of Low Dose Naltrexone. Whilst working to raise funds for trials, we have helped over 16,000 people to obtain LDN from a General Practitioner or Neurologist, either through the National Health Service or by private prescription. We have also been able to help people, not just in the UK but in countries throughout Europe, as well as USA, Canada, West Indies, Australia, New Zealand, and others. By using this website and from our downloadable newsletters, you will be able to read the stories of some of these people. We have helped many people with MS, Crohn's, IBS, ME and Cancer to name a few. The use of LDN is spreading. Our ultimate goal is for everyone to be prescribed LDN globally for all conditions where LDN could be of benefit
Non Hodgkin's Lymphoma Friends
1,792 members
Patient Empowerment Network (PEN) is honored to offer a peer-support community for those living with Non-Hodgkin's Lymphoma, their families and their loved ones. Connect with patients like you and share your experiences. Discuss treatment, recovery, diagnoses, and help other patients through their journey. PEN is a nonprofit (501(c)(3) Public Charity) based in the US that works to help you gain confidence and strength to get yourself the best care and most personalized treatment. We are here to help you stand up and advocate for yourself and become informed so that you can make the right decisions for you. Giving medical advice or promoting alternative treatment that is not proven by clinical trials and approved by regulatory agencies is prohibited. Your participation should be respectful, honest and in the spirit of supporting and learning from others
Research Opportunities
1,073 members
We believe that the voice of the patient should hold tremendous influence over the decisions made within the healthcare industry - that is why we created the Research Opportunities community. This reply-only community is a one-stop destination for all things related to research. Whether you’re looking to take part, or simply just want to learn more about the scientific process, we have something for everyone. Participation in research is subject to the inclusion criteria of the specific research opportunity, by joining the HealthUnlocked research community you are not guaranteed success. How do I get the most out of the community? We may notify you if there is a new opportunity that we believe would make a good match for you. This could be a private message, or an email. Personalized recommendations of research opportunities are based on your HU member profile, it is essential that you complete the setup of your profile, and ensure it is up to date: https://healthunlocked.com/profile/edit Please note, you will only receive emails if you have opted-in to receive marketing emails. You will need to make sure you have ticked ' Email me about: Opportunities (e.g. surveys, clinical trials, paid market research, new patient communities) that might interest me' in your email settings. Check your email settings now: https://healthunlocked.com/email-notifications
PBC Foundation
9,447 members
The PBC Foundation hosts this community to provide support and information to those affected by Primary Biliary Cholangitis - an autoimmune condition that affects the liver. The PBC Foundation is the UK's only, and world's largest, organisation that specifically deals with PBC with registered service users in over 84 countries. We lead the world in PBC in advocacy, support and in providing services such as self-management tools, of which this forum is just one. If you wish to become a registered service user with the PBC Foundation, please visit our website www.pbcfoundation.org.uk and follow the registration process or alternatively please call our office +44 131 556 6811 and we can send out our registration pack free of charge. The current benefits of membership include: ~ free interactive self-management App ~ exclusive content on website, including videos ~ quarterly magazine full of the latest PBC news, including news of upcoming trials, latest research, etc
Wessex Cancer Trust
71 members
Welcome to Wessex Cancer Trust online community. Here you can openly talk to other people affected by cancer – whether you are going through your own cancer journey or supporting a family member or friend. We will support you through the highs and lows, help you prepare for surgery or treatment, and give you the confidence to talk to your loved ones about cancer. We can empower you to feel strong enough to make your own choices, whether you are moving on from cancer or making difficult decisions about a terminal diagnosis. We offer practical, emotional and physical support at a time when nothing seems to be in your control. All of our Support Centres will welcome you into a calm and non-clinical space in your local community, somewhere familiar and safe.
Survivors of Childhood Brain Tumours
93 members
Welcome to the Survivors of Childhood Brain Tumour Community Group, established by Success Charity. Success Charity is committed to enabling brighter futures for survivors of childhood brain tumours. We aim to support and empower survivors to live the lives they choose, and enable them to fulfill their true potential, post cure. Success is working to: • Assist: provide ‘joined up’ rehabilitative support services to address survivors’ ongoing clinical & therapeutic needs • Equip: provide direct access to better information, resources & key assessments • Connect & Empower: through distinct peer support networking programmes & events • Research: to better understand the consequences of brain injury acquired as a result of the tumour and treatment This community is for survivors, parents, carers and friends. Please join today to share your experiences, make new connections, ask questions, give and receive support to and from people who truly understand and can relate. We are all here to help.
Above & Beyond - Mental Health
5,468 members
Above & Beyond (previously Journeys) is a community whose sole purpose is to offer support and understanding to people affected by mental health conditions, their friends, families and carers.
Anxiety and Depression Support
91,071 members
This community is a safe space for those affected by anxiety and depression to talk to others who truly understand. ADAA is a nonprofit dedicated to the prevention, treatment, & cure of anxiety, depression, OCD, PTSD and co-occurring disorders through education, practice, & research. www.adaa.org offers free educational resources for more than 11 million annual visitors; Find-a-Therapist database; webinars, blog posts, podcasts & videos; support groups, and more. ADAA does not provide psychiatric, psychological, or medical advice, diagnosis, or treatment. Please note: You may be contacted by one of our administrators to invite you to serve as a volunteer administrator or to share your story. If we do reach out to you, your anonymity is not compromised unless you agree to share personal contact information with us. If you do not wish to engage with us, simply do not respond.
Living with Interstitial Lung Disease (ILD)
146 members
The CHEST Foundation is the patient-focused philanthropic arm for the American College of Chest Physicians. Our mission is to champion lung health by supporting clinical research, community service, and patient education. We’re dedicated to helping you better understand your condition and the treatment options available. When it comes to crushing lung disease, we all have to work together. That’s why we’ve made it our mission to become the bridge builders between patients, their caregivers, and the health-care professionals who treat them. From educational resources to community support, your journey toward better lung health starts here. The CHEST Foundation Community on HealthUnlocked serves as a safe space for patients diagnosed with interstitial lung disease and individuals affected by ILD. Whether you are an individual who has been diagnosed, a care-partner, family member, or friend, we hope this community is a safe and supportive place for you to share your experiences and find information and support.
Small Cell Lung Cancer Support
117 members
The Small Cell Lung Cancer Support Community is a peer support network run by the GO2 for Lung Cancer: https://go2foundation.org/, the place where people impacted by small cell lung cancer can connect, learn, and find hope and support. We are focused on understanding and meeting the needs of the small cell lung cancer community from diagnosis through treatment and on to survivorship. Your needs are important – Click HERE: https://www.surveymonkey.com/r/QDFNG7R to take the Small Cell Lung Cancer Survey: Understanding Your Needs To learn more about Small Cell Lung Cancer, Click HERE: https://go2foundation.org/what-is-lung-cancer/types-of-lung-cancer/small-cell-lung-cancer/ and explore the GO2 Small Cell Lung cancer education materials, videos, and more. Through our Small Cell Lung Cancer Initiative, we have dedicated and knowledgeable staff to answer questions and provide resources to you whether you are a patient, caregiver, or loved one. If you would like personalized support, treatment information, clinical trial assistance, or if you just have questions, please call our helpline at 800-298-2436, email at support@go2.org
Atrial Fibrillation Support
31,963 members
AF Association supports individuals affected by, or involved in the care of atrial fibrillation (AF). We are an international charity providing support through various means, including a helpline and comprehensive resources written by experts in the field and endorsed by the Department of Health.
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