Scottish female age 64 years. I've recently been diagnosed with Autoimmune Hepatitis Cirrhosis . I'd no idea. May have been caused after 40 years of taking Statins for high cholesterol but equally may be hereditary.
My letter states my Child-Pugh score is 5 which I note is level A in some literature. What is my mortality expectancy?
I really, really, really wouldn't go looking for life expectancy - no one and not even a doctor will be able to accurately predict.
Child Pugh A is at at the least severe end of the scale of cirrhosis and once your AIH is under complete control there is no reason to believe the level of liver damage will get any worse. There are people on the AIH support group on Facebook who have had the condition for 20 - 30 years including with cirrhosis. My hubby had decompensated cirrhosis due to AIH back in 2012 when he was first diagnosed, he spent 10 months on the waiting list for a transplant in 2014/15 but improved sufficiently to be delisted and now 6 further years on his liver is stable and he's living the best life he can, making the absolute most of any good days and writing off the bad.
Just carry on living your life, take your meds and hopefully the condition won't actually progress and can potentially even improve.
AIH can be drug induced but it isn't hereditory. no one knows what triggers the immune system to go into over drive and start to attack the bodies own organs - it can be virus's, some antibiotics, medications, a response to other environmental factors.
The British Liver Trust has an excellent publication/page on Auto Immune Hepatitis at:- britishlivertrust.org.uk/in...
Plus, if you do Facebook at all the support group I mentioned has over 3000 members at all stages of diagnosis. It's moderated by fellow AIH patients and supported by some of the top doctors in the UK who are working in the field of AIH research and treatment and you'll find a warm welcome and loads of support there. It's a private group so no one else on your Facebook feed will see what's posted so you can be assured of privacy to vent and ask those difficult questions.
Best wishes,
Katie
Thank you so much. I guess I just needed to hear your words as being written to with details and treatment I had no idea about actually living with the disease. Prognosis sounds good.
Child Pugh A is a little bit knackered.
B is a bit more knackered.
C is knackered.
5 is the lowest possible result. It's a great score.
Great to know
Childs Pugh score
Osteopenia with NASH Cirrhosis Child Pugh A
Child Pugh B 17
Alp score
child Pugh A5 UKELD 45 Liver stiffness 10.9jPa
