Bone Marrow Transplant Failed
In early 2017, I took a big bet. I suspended normal cancer treatments, in order to preserve my eligibility for a very novel phase 1 clinical ...
Has anyone had a bone marrow transplant who has PV?
My husband has PV he was diagnosed in 2012. He's had a scan and his spleen has doubled in size....
MF transplant update - discharged from BMT unit and back home
Hi All, delighted to report that I am back home from my local BMT unit and will now be treated as an outpatient. Still along way to go....
Bone Marrow Transplant Aftermath
The experimental bone marrow transplant for prostate cancer had no positive effects for me, as far as we can determine, but I keep getting ne...
So Ryan has been through the loop.. about every 30 days since August 23rd when we learned of his brain tumor something new has popped up.....
I started showing visible signs of AMN when I was 21 and am currently experiencing a constant, stiff aching pain in my legs from mid thigh do...
Hi everybody! I'm Dave from SW Michigan....
Bone Marrow Transplant Begins
I feel like the past three and a half years have been rehearsal, and it's time for the big show. I will do the steps I have learned, and the ...
So confusing continued
Long talk with GP today and getting a better understanding of his reasoning I have pmr...... My immune system has always been rubbish prior t...
Flu jab & getting ready for winter
It's a dream I guess that we all share and I will not stop doing my bit to help raise awareness and funds for the BLF until that's the case....
Hi I been under the microscope again liver results are fine so I am happy,. But I have been diagnosed with severe anaemia ( explains why I am...
I'm new here! This is my Story...
I had my first ever bone marrow biopsy done just last month and my family and I were very surprised by the results as my hematologist thought...
New test for mutations to calculate the profession of MF
Hi good folks, Hope you all are going OK. Last time I was speaking to my Hemo he told me that a test will be available in about 12 months tha...
What if venetoclax and/or ibritinib stops working?
I have had CLL since i am 24 and have been dealing with CLL for 9 years. ( only been taking it for 4 weeks now ) I know my CLL will come back...
Bone marrow transplant
Hi all I have just started on blood transfusion and likely to have to have them every four/five weeks. It has also been suggested that I may ...
Recent SLL/CLL Patient Question
Hello. I found out I have SLL/CLL earlier this year at 31....
Any positive transplant stories 60+?
I've got a CLL buddy who has just been diagnosed with myelodysplastic syndrome, which is basically bone marrow failure....
Cannabis Oils - Best Ones for T-Cell Relapse?
I am wondering if anyone can help point me in the right direction, we are at a loss. My father in law has had a relapse of NHL - TCell 2 year...
Yay good bones
Because I had a bone marrow transplant in the 90's I have a density scan every 5 years and just had the latest done after being diagnosed wit...
11 year old son ITP
a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta....
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