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Experiences with
Stem cell and bone marrow transplants
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pink patches on skin
Anyone else experienced similar after their
stem
cell
transplant
. My hospital treatment has been amazing . The staff and nurses have been wonderful . Faced with a median life expectancy of 35 months I decided to go for the SCT . I’m so glad I did .
Anyone else experienced similar after their
stem
cell
transplant
. My hospital treatment has been amazing . The staff and nurses have been wonderful . Faced with a median life expectancy of 35 months I decided to go for the SCT . I’m so glad I did .
Tortina
in
MPN Voice
8 months ago
introducing myself...
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a
Stem
Cell
Transplant
at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same?
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a
Stem
Cell
Transplant
at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same?
jmcasbar
in
Leukaemia CARE
1 year ago
Red face / flushing. Possible rosacea
Hi I am 200 plus days post
stem
cell
transplant
. Since then I get flushed very easily.
Hi I am 200 plus days post
stem
cell
transplant
. Since then I get flushed very easily.
Kraskie1915
in
CLL Support
11 months ago
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start of my SCT journey
I’m on my journey to have a
stem
cell
transplant
. In the past few weeks I have gone through the Prehab process, ie poked prodded, X-rayed, scanned and blowing into machine. lol. Also a tooth needs to come out as a precaution.
I’m on my journey to have a
stem
cell
transplant
. In the past few weeks I have gone through the Prehab process, ie poked prodded, X-rayed, scanned and blowing into machine. lol. Also a tooth needs to come out as a precaution.
Grizly
in
MPN Voice
9 months ago
Immune Responses + Autoimmune Myelofibrosis
I'm still waiting on the cytogenetics results to know the full picture but I'll be talking to the
stem
cell
transplant
people soon to see what is now possible for me.
I'm still waiting on the cytogenetics results to know the full picture but I'll be talking to the
stem
cell
transplant
people soon to see what is now possible for me.
LongETinUS
in
MPN Voice
6 months ago
billionaires
i dot know how many of you heard the " Doc vs Parkinson's" story A doctor who paid almost 20 million dollars to get a
stem
cell
transplant
of brain about 3 years ago. He had PD for 15 years and now his symptoms are reversing.
i dot know how many of you heard the " Doc vs Parkinson's" story A doctor who paid almost 20 million dollars to get a
stem
cell
transplant
of brain about 3 years ago. He had PD for 15 years and now his symptoms are reversing.
Rupa88
in
Cure Parkinson's
1 year ago
Time flies... when you're having babies!
This year will mark 20 years since my lifesaving
stem
cell
transplant
so I want to mark that with a fundraising and awareness event befitting the occasion. I also turn 40, have a driving test to pass and an amazing, beautiful daughter to raise.
This year will mark 20 years since my lifesaving
stem
cell
transplant
so I want to mark that with a fundraising and awareness event befitting the occasion. I also turn 40, have a driving test to pass and an amazing, beautiful daughter to raise.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
3 months ago
Hi, im new here
I have recently recovered from treatment for blood cancer by having a
stem
cell
transplant
(14 months ago) im struggling to return to work full time, im suffering everyday with pain ,fatigue, weakness, dizziness, brain fog, sometimes my skin hurts?
I have recently recovered from treatment for blood cancer by having a
stem
cell
transplant
(14 months ago) im struggling to return to work full time, im suffering everyday with pain ,fatigue, weakness, dizziness, brain fog, sometimes my skin hurts?
Marchhare7
in
Fibromyalgia Action UK
1 year ago
Travel insurance within the UK.
I am over 200 days post
stem
cell
transplant
and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering going via Dublin and wonder how this affects travel insurance.Many thanks
I am over 200 days post
stem
cell
transplant
and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering going via Dublin and wonder how this affects travel insurance.Many thanks
Kraskie1915
in
CLL Support
1 year ago
Allogenic Stem Cell Transplant
I [i]received a
Stem
cell
transplant
six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia.
I [i]received a
Stem
cell
transplant
six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia.
GarciaB
in
MPN Voice
1 year ago
Life beyond Myelofibrosis
My haematologist was keen for me to think about a
stem
cell
transplant
and I was booked to speak to the transplant centre in Bristol about 40 miles from my home. Those of you that have read previous posts of mine showed how much I dithered.
My haematologist was keen for me to think about a
stem
cell
transplant
and I was booked to speak to the transplant centre in Bristol about 40 miles from my home. Those of you that have read previous posts of mine showed how much I dithered.
Scaredy_cat
in
MPN Voice
1 year ago
The Bone-Marrow-Transplant Revolution
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
EastBayDad
in
CLL Support
13 days ago
Platelets dropped after obinituzumab and won't rise even after transfusion 🚨
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
BMFCDRW
in
CLL Support
17 days ago
Human stem cell transplantation for Parkinson’s disease: A systematic review
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Farooqji
in
Cure Parkinson's
25 days ago
Tapering with new issues ongoing
In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having
stem
cell
transplant
in Jan 2018, as a mom, this was very hard to see happen to him, my late husband, His STEPFATHER, passed from that disease in 1999, at any
In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having
stem
cell
transplant
in Jan 2018, as a mom, this was very hard to see happen to him, my late husband, His STEPFATHER, passed from that disease in 1999, at any
arvine
in
PMRGCAuk
11 months ago
Tapering while new issues
In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having
stem
cell
transplant
in Jan 2018, as a mom, this was very hard to see happen to him, my late husband, His STEPFATHER, passed from that disease in 1999, at any
In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having
stem
cell
transplant
in Jan 2018, as a mom, this was very hard to see happen to him, my late husband, His STEPFATHER, passed from that disease in 1999, at any
arvine
in
Pain Concern
11 months ago
AXSL1 gene mutation
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
merlisa
in
MPN Voice
1 month ago
HSCT early in MS
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
BettysMom
in
My MSAA Community
2 months ago
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis.
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
PhysAssist
in
MPN Voice
2 months ago
biochemical recurrence after RP. +post leukemia
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
junkwerc
in
Prostate Cancer Network
2 months ago
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