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Experiences with
Stem cell and bone marrow transplants
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Just wanted to share my Primary Myelofibrosis journey so far…….
Have seen consultants @Guys & now @Addenbrookes to see if I’m a candidate for
stem
cell
transplant
. All agree and they have started to check the donor registers for possible matches.
Have seen consultants @Guys & now @Addenbrookes to see if I’m a candidate for
stem
cell
transplant
. All agree and they have started to check the donor registers for possible matches.
LFCLove
in
MPN Voice
6 months ago
Travel and Ibrance
My medical history is complicated by having had a donor
stem
cell
transplant
in 2018 for T cell lymphoma. My immune system was compromised from that but now with Ibrance I'm not sure what to expect in terms of traveling and going out to public places.
My medical history is complicated by having had a donor
stem
cell
transplant
in 2018 for T cell lymphoma. My immune system was compromised from that but now with Ibrance I'm not sure what to expect in terms of traveling and going out to public places.
Artesa
in
SHARE Metastatic Breast Cancer
5 months ago
Borderline TSH during cancer treatment
I am awaiting a
stem
cell
transplant
. I was due to go in today to begin conditioning but there is still a trace of fungus in one lung and my consultant doesn't want to risk it, so has been postponed for a few weeks. Right that's the background! Last week I did a GP-ordered routine TSH test.
I am awaiting a
stem
cell
transplant
. I was due to go in today to begin conditioning but there is still a trace of fungus in one lung and my consultant doesn't want to risk it, so has been postponed for a few weeks. Right that's the background! Last week I did a GP-ordered routine TSH test.
spongecat
in
Thyroid UK
3 months ago
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SCT journey update No.4
Hi all, just to give you an update on my journey towards my *Allogenic
Stem
cell
Transplant
. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey.
Hi all, just to give you an update on my journey towards my *Allogenic
Stem
cell
Transplant
. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey.
LFCLove
in
MPN Voice
1 month ago
have you had trouble getting approved for stem cell transplant?
He believes I am a perfect candidate for
stem
cell
transplant
. So today I go to the consultation with a
stem
cell
specialist and they tell me that because there is a 10-8% chance of failure at their facility I’m not at high enough risk to need the SCT.
He believes I am a perfect candidate for
stem
cell
transplant
. So today I go to the consultation with a
stem
cell
specialist and they tell me that because there is a 10-8% chance of failure at their facility I’m not at high enough risk to need the SCT.
Plasmapool
in
MPN Voice
8 months ago
High BLood Pressure, Kidney failure, cause discovered
Scheduled for a
stem
cell
transplant
end of April, or early May.
Stem
cell
doctor told me my kidney function should return to normal with the transplant. I am writing this in case any one else has failing kidneys with high blood pressure and no clear answer why.
Scheduled for a
stem
cell
transplant
end of April, or early May.
Stem
cell
doctor told me my kidney function should return to normal with the transplant. I am writing this in case any one else has failing kidneys with high blood pressure and no clear answer why.
phebamom
in
High Blood Pressure Support
6 months ago
Post stem cell transplant vaccinations
Hi. I am 11 months post transplant (AML). I am due to have my childhood vaccines next week. Just worried about reactions etc and it not being in the safety of the hospital.
Hi. I am 11 months post transplant (AML). I am due to have my childhood vaccines next week. Just worried about reactions etc and it not being in the safety of the hospital.
Platelets2022
in
Leukaemia Support
11 months ago
Myelofibrosis - GVHD - graft, versus, host, disease
Cutting a very long story short, I was put forward for a
stem
cell
transplant
and was waiting for a good match from doners around the world. The doctors and professors assured me they would find a doner from the bank, which gave me lots of hope.
Cutting a very long story short, I was put forward for a
stem
cell
transplant
and was waiting for a good match from doners around the world. The doctors and professors assured me they would find a doner from the bank, which gave me lots of hope.
FreemanSaviors
in
MPN Voice
2 months ago
Myelofibrosis- GVHD graft, versus, host, disease.
Cutting a very long story short, I was put forward for a
stem
cell
transplant
and was waiting a good match from doners around the world. The doctors and professors assured me they would find a doner from the bank, which gave me lots of hope.
Cutting a very long story short, I was put forward for a
stem
cell
transplant
and was waiting a good match from doners around the world. The doctors and professors assured me they would find a doner from the bank, which gave me lots of hope.
FreemanSaviors
in
MPN Voice
2 months ago
Start of my Stem Cell Journey 0.3
The Good news is I have now been given a provisional date to start my
stem
cell
transplant
17th November. Have to have another bone marrow biopsy and some tests on the 14th November ie Covid, flu etc, so things are moving on.
The Good news is I have now been given a provisional date to start my
stem
cell
transplant
17th November. Have to have another bone marrow biopsy and some tests on the 14th November ie Covid, flu etc, so things are moving on.
Grizly
in
MPN Voice
10 months ago
My Recovery so far post Stem cell Transplant
Sorry I've been absent for so long, my
stem
cell
transplant
journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond.
Sorry I've been absent for so long, my
stem
cell
transplant
journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond.
Jm954
Administrator
in
CLL Support
1 year ago
Stem Cell Transplant update
I am now close to 6 months from my sct. I feel well in myself except for side affects from steroids which I should be off in a week. They make it difficult to sleep, make me hungry and over full of energy . Many of my blood counts are in normal range except for platelets. These keep yo-yoing around
I am now close to 6 months from my sct. I feel well in myself except for side affects from steroids which I should be off in a week. They make it difficult to sleep, make me hungry and over full of energy . Many of my blood counts are in normal range except for platelets. These keep yo-yoing around
Scaredy_cat
in
MPN Voice
1 year ago
Autologous Cell Transplants - Promising Clinical Trial Getting Underway
The 2021 study, using cells grown by UW–Madison
stem
cell
researcher Su-Chun Zhang, added new dopamine-producing neurons to each animal’s brain through injections guided in real-time by MRI to an area of the brain called the putamen.
The 2021 study, using cells grown by UW–Madison
stem
cell
researcher Su-Chun Zhang, added new dopamine-producing neurons to each animal’s brain through injections guided in real-time by MRI to an area of the brain called the putamen.
Shorebirdsotherhalf
in
Cure Parkinson's
14 days ago
pink patches on skin
Anyone else experienced similar after their
stem
cell
transplant
. My hospital treatment has been amazing . The staff and nurses have been wonderful . Faced with a median life expectancy of 35 months I decided to go for the SCT . I’m so glad I did .
Anyone else experienced similar after their
stem
cell
transplant
. My hospital treatment has been amazing . The staff and nurses have been wonderful . Faced with a median life expectancy of 35 months I decided to go for the SCT . I’m so glad I did .
Tortina
in
MPN Voice
1 year ago
Immune Responses + Autoimmune Myelofibrosis
I'm still waiting on the cytogenetics results to know the full picture but I'll be talking to the
stem
cell
transplant
people soon to see what is now possible for me.
I'm still waiting on the cytogenetics results to know the full picture but I'll be talking to the
stem
cell
transplant
people soon to see what is now possible for me.
LongETinUS
in
MPN Voice
9 months ago
Stem cell transplant starts on Monday
A bit of background - In October 2021 I had a rapid and florid relapse following the end of my Ibrutinib treatment in FLAIR so I was started on Acalabrutinib with no effect and also had investigations for Richter's. Tests showed that I was resistant to the currently available BTKi's (two synergistic
A bit of background - In October 2021 I had a rapid and florid relapse following the end of my Ibrutinib treatment in FLAIR so I was started on Acalabrutinib with no effect and also had investigations for Richter's. Tests showed that I was resistant to the currently available BTKi's (two synergistic
Jm954
Administrator
in
CLL Support
1 year ago
Time flies... when you're having babies!
This year will mark 20 years since my lifesaving
stem
cell
transplant
so I want to mark that with a fundraising and awareness event befitting the occasion. I also turn 40, have a driving test to pass and an amazing, beautiful daughter to raise.
This year will mark 20 years since my lifesaving
stem
cell
transplant
so I want to mark that with a fundraising and awareness event befitting the occasion. I also turn 40, have a driving test to pass and an amazing, beautiful daughter to raise.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
7 months ago
start of my SCT journey
I’m on my journey to have a
stem
cell
transplant
. In the past few weeks I have gone through the Prehab process, ie poked prodded, X-rayed, scanned and blowing into machine. lol. Also a tooth needs to come out as a precaution.
I’m on my journey to have a
stem
cell
transplant
. In the past few weeks I have gone through the Prehab process, ie poked prodded, X-rayed, scanned and blowing into machine. lol. Also a tooth needs to come out as a precaution.
Grizly
in
MPN Voice
1 year ago
Richter's and Novel Treatments/Combinations
We've had a few members post about Richter's recently so I thought it might be time for a bit of an update on new treatments. In these reports there is not a lot of information about clonality and which mutations the patients have. Extensive pretesting for these variables as well as the clinical ones
We've had a few members post about Richter's recently so I thought it might be time for a bit of an update on new treatments. In these reports there is not a lot of information about clonality and which mutations the patients have. Extensive pretesting for these variables as well as the clinical ones
Jm954
Administrator
in
CLL Support
4 days ago
Diagnosed with Richters
My history is a CLL diagnosis around Sept of 2016. I started the Ibrutinib/Venetoclax trial at MDA in Jan 2017 achieving MRD U in April 2019. Clear sailing until April ‘22 when my blood test showed .07 CLL cells that doubled every 6 months. Showing no symptoms, my Doc did not recommend treatment.
My history is a CLL diagnosis around Sept of 2016. I started the Ibrutinib/Venetoclax trial at MDA in Jan 2017 achieving MRD U in April 2019. Clear sailing until April ‘22 when my blood test showed .07 CLL cells that doubled every 6 months. Showing no symptoms, my Doc did not recommend treatment.
Louie_CC
in
CLL Support
6 days ago
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