Hey, my name's Ben and on 02/06/2012 I had a brain haemorrhage. Turns out I have an arteriovenous malformation in my brain (AVM), which is basically a nest of poorly developed blood vessels that can bleed at any time causing a stroke.
Since then I developed epilepsy from the damage, and had some gamma knife surgery on the blood vessels in my brain so no more blood can run through them, which means no more haemorrhages.
Unfortunately, the surgery works over 5 years, and so between now and then the blood vessels could burst and kill me at any second. There's nothing I can do to stop it from happening, and no way to know that it's going to happen, I will just literally drop dead.
The seizures started in August 2012, and I've had 12 since, and they're just awful as you can imagine. These can also happen at any time.
So I go through periods of going a bit nuts, if I ever just get a weird feeling in my head, or a headache, I have to sit and calm down (anxiety can cause more seizures).
So anybody got any tips for just calming down when you're anxious? It makes my chest so tight that I can't breathe.
Nice to meet you by the way