Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,056 members • 26,262 posts

All posts for October 2022

Debulking Radiation Options

Short version (bio has more detail): omHSPC, started ADT (Lupron + Darolutamide - ARASEC Trial) in September 2022. MO has me scheduled for a consultation...

Short version (bio has more detail): omHSPC, started ADT (Lupron + Darolutamide...

•2 years ago

At the airport, now have WiFi 😊

At 75, Elton John still rocked the Stadium A FB lady in TN saw my post about an extra ticket, and we had a Blast She added her own vids...

At 75, Elton John still rocked the Stadium A FB lady in TN saw my post about a...

•2 years ago

Need help finding studies

I’m trying to arm myself as we go to see my husband’s MO on 10/12, so hoping for a little help. I’ve tried to search this site, but I don’t really know what...

I’m trying to arm myself as we go to see my husband’s MO on 10/12, so hoping for...

•2 years ago

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Entering a New Stage Moving to Provenge

Hi Gents and Caregivers, I have had this motherf*cker of a disease for over 17 years. A few months back I had my first PSMA PET scan. And I have entered a new...

Hi Gents and Caregivers, I have had this motherf*cker of a disease for over 17 ...

•2 years ago

What an amazing show that 75 yr old Elton did, 💙

On a 5mile hike in Shelby Bottoms. No Wifi🤣...

On a 5mile hike in Shelby Bottoms. No Wifi🤣...

•2 years ago

Anything else?

Hello – I wanted to follow up with a question I have regarding my care. What else should I be doing or consider at this point? I had a prostatectomy in...

Hello – I wanted to follow up with a question I have regarding my care. What e...

•2 years ago

How fast does ELIGARD drop PSA? My urinary symptoms are worsening despite the injection, TURP and Testosterone under 20.

My PSA was 9.75 (07/28/2022) and testosterone 43 (08/17/2022) when I got my first ELIGARD 45mg dose on 08/18/2022. I'd been in a full time Foley catheter for...

My PSA was 9.75 (07/28/2022) and testosterone 43 (08/17/2022) when I got my firs...

•2 years ago

Introducing myself. Have mostly lurked for a couple of months, but time to formally say I'm here and start asking my own questions.

Hello all, my name is Dave. I've just updated my profile with all medical info on my case. Hate that I need to be in this particular club, but glad there's...

Hello all, my name is Dave. I've just updated my profile with all medical info ...

•2 years ago

PSMA scan

Insurance denied my test, again, even after showing, as requested, rising PSA post surgery (.64 at 90 days after RALP then .9 after another 4 weeks). Then...

Insurance denied my test, again, even after showing, as requested, rising PSA p...

•2 years ago

PSA Doubling then?

Good afternoon fellow warriors. After almost 5 years of riding the Zytiga, prednisone & lupron train my PSA has been doubling every 3 months. I got my labs...

Good afternoon fellow warriors. After almost 5 years of riding the Zytiga, predn...

•2 years ago

Radiation side effects.

Radiation side effects to urethra and bladder not emptying, frequency, burning pain and strain to void, been over 18 months since treatment, PSA has gone from...

Radiation side effects to urethra and bladder not emptying, frequency, burning p...

•2 years ago

Thank you

No Question, just a statement. I want to thank everybody for this immediate welcoming into the group. I could not have asked for more.

No Question, just a statement. I want to thank everybody for this immediate we...

•2 years ago

Hello Good People A part of my kidney has been operated.

I did the surgery robot-assisted kidney resection a tumor 1.6cm , it took 3 hours and they have stopped blood to the kidney for 17 minutes, and it was...

I did the surgery robot-assisted kidney resection a tumor 1.6cm , it took 3 h...

•2 years ago

Reporting in on Mr. Spouse 21

Again, Mr. Spouse's (age 78) 3-month results are boring in a good way. See Profile for details and history, which are, essentially: 2014: high Gleason 9, low...

Again, Mr. Spouse's (age 78) 3-month results are boring in a good way. See Prof...

•2 years ago

Another Episode of "Life's too short to stay home" 💙

I'm in Nashville to see Elton John on Sunday night. Was supposed to look for homes in TN also, but that plan has changed 🤔 Here are several photo albums for...

I'm in Nashville to see Elton John on Sunday night. Was supposed to look for hom...

•2 years ago

Your thoughts/experiences with the Decipher RP test

After 27 months of undetectable PSA I recently got my first detectable PSA of 0.01. Obviously this is still very low, and after this many months of an...

After 27 months of undetectable PSA I recently got my first detectable PSA of 0....

•2 years ago

Vacation dosage

Thank you everyone for inputs, this is my 2nd post, and I feel like I found the right place in a sideways world. Working on my bucket list. Leaving the...

Thank you everyone for inputs, this is my 2nd post, and I feel like I found the ...

•2 years ago

Actual duration of Lupron Depot 22.5 mg/12 weeks X 2.

I had 50 mg Daily Bicalutamide pills on April 04th 2020 for 30 days. Also had a🤢 ''missed'' injection of Eligard 45 mg/24 weeks witch was...

I had 50 mg Daily Bicalutamide pills on April 04th 2020 for 30 days. Also had ...

•2 years ago

are transdermal estrogen patches going to be a thing?

a tweet from Matt Cooperberg M D 3rd time in past 2 months I've heard updates on transdermal #estrogen as alternative to #LHRHa...seems this has been brewing...

a tweet from Matt Cooperberg M D 3rd time in past 2 months I've heard updates o...

Partner•2 years ago

Blood in the urine

Two months ago I noticed blood in my Urine. It only happened once but then in September, it happened again so my Urologist performed a cystoscopy in his office...

Two months ago I noticed blood in my Urine. It only happened once but then in Se...

•2 years ago

F*ck Cancer

The PSA was rising on me, Urologist did the genetic test, "LI-Fraumeni syndrome" is the curse.Aged 44 years and had radical Prostectomy on birthday. PSA went...

The PSA was rising on me, Urologist did the genetic test, "LI-Fraumeni syndrome"...

•2 years ago

Nanoknife

Has anyone had Nanoknife treatment on distant Mets? I would be very interested to hear how it went. I have tumours in the spine and ribs and I’m wondering if...

Has anyone had Nanoknife treatment on distant Mets? I would be very interested ...

•2 years ago

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