I have had this mutherf*cker of a disease 19 years. I have had numerous rounds of Lupron. I have been on Casodex, Erleada, Nubeqa. Zytiga, Provenge, 8 rounds of Docetaxel and, now, Pluvicto.
As is standard, after my third round of Pluvicto I had a PSMA PET scan. Finally, something seems to be working. I have numerous mets to my bones and lymph nodes. All of my metastases except for one have either stopped growing or are shrinking. I have been in this game for the long haul, hopefully I can start to traversing and enjoy life again. Just NEVER give up!
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MJCA
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Hey Mark, also Mark here too.. also lived in Bay Area for 30 years. Thanks for your message it means a lot to me and I’m sure everyone to see a strong person kick some ass.. I’m newly diagnosed but doing well .. I wish you the best and am glad something is continuing to work for you. I often think about my mortality and wonder if I’ll get 10 years …your post gave me encouragement..thanks and be strong !
Thanks! I was a little nervous about my results. You can never stop fighting. I even forgot to put down I also had brachytherapy and EBRT. You are living in one country that I really want to visit!
Please do I will help make it easier.. have car .. a vacation condo in Atami .. I understand Japan can be difficult to travel with non accessible obstacles.. Last time I visited the Bay Area Zip Air started flying out which is a deal. Anyway wish you best take care and if daring let me know .. avoid the muggy hit summer though !
It's responding well because his most of his metastases are PSMA-avid and few are not PSMA-avid.
I expect most therapies to have greater effectiveness if used earlier - for the sdimple reason that there is a larger population of vulnerable cancer cells. There are trials to see if Pluvicto performs better than SOC if used before docetaxel. The TheraP trial showed that after docetaxel, Pluvicto was better at shrinking metastases than Jevtana, but there was no survival difference.
Yes, I have had it done twice. No BRCA 1 or BRCA 2 mutations. There was a mutation on a gene, I just don’t recall. I find that strange. My Father was diagnosed one year prior to me; he went into remission. On the other side of the family, my Mom’s only brother passed from metastasized prostate cancer, he was 93.
Concerning the previously-tried Zytiga, you said: " Zytiga... without prednisone... SE... were not good. After 2 weeks I ceased taking Zytiga." I think Zytiga must be taken with prednisone to avoid otherwise serious side effects.
Yes my husband is on prednisone with Zytiga now. It's only been 2 1/2 months and his PSA is still going up, however he just finished targeted radiation on his collar bone and spine and we were told that will affect the PSA results. It's known as bounce and can be for 2 to 3 months. Next Oncologist appointment is June 10th for the PSA results. If it is still going up then it's either a trial at Princess Margaret hospital in Toronto Ontario or a different chemo drug. Oncologist said those were basically the only two options left. That was discouraging for us both. However, if we worry about tomorrow, we lose the Joy of today.
I have had a very similar path bro, been on all you have listed except I am now on Docetaxel and Carboplatin after Pluvicto failed. Fighting 24 years this September
Great news. Encouraging words, we all need them. I’ve only been at this for less than a year and I thought I was doing well. But lately all my bones are crackling and grinding I feel like I’m going to fall apart at any second I have several mets to bones Question: are you taking any of the bone agents?
Yes. When I started on Erleada I was also started on Xgeva. I was at the podiatrist a couple weeks back. He took some X-rays. He mentioned that in the past I had broken bones in my L foot. Never knew it, never felt it.
Thanks to you and all other replies who have been in the fight for decades! You are blazing a path for the rest of us who are following behind in your footsteps. Bravo!!
Great news!…im a 10 year member of the “club” that nobody wants to be in also…I start Pluvicto in July.,,.Happy for you!
Thanks to all the brothers out there. Keep up the good spirits, good will and keep on fighting. Been in since 2019, you all give us hope. Stay together, be stronger.
Did you see a rise in PSA after the 1st round? I am curious as my PSA is rising and I have had 1 round MO says the purpose is to slow progression not necessarily reduce existing mets.
I have been on Zoladex for 4 years and counting, Extandi for 18 mos. but that failed and now I am in a clinical trial for Lu177. Note that Pluvicto isnt covered by BC Cancer so they as they are still in trial mode
I have seen a gradual decrease in my PSA up until this last round. My PSA increased by about 3 points. They are attributing that to the one met that is growing.
You're my new hero on this blog. It's great to know about a success story like yours. I've been at it nine years, and in process of wrapping up 6 rounds of Docetaxel in July. It appears we have followed similar injection and drug protocols. I have 3 small tumors in my lymph nodes, had prostate remove December 2015. I pray for everyone on this blog and their caregiver(s). BE STRONG!!
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