Next step in treatment or no changes yet?

[math33]

Hi I'm Larry E. 66yrs

My PSA was 1.4 yesterday and 3 months ago it was .8 my Tulsa doctor is happy that is still so low; but I know it almost doubled in 3 months. Not good.

MD Anderson wants me to come down for a clinical trial work up in December but is seems to soon. The original plan was to wait till psa reaches 2.0 to get the work up with them. I was up for the Yervoy in Dynamo trial in 2016 but after Provenge my psa lowered.

If its time for more treatment I would like to find the trial that currently offers the most promise. Any good ideas?

Larry

Dx 3/15 in Tulsa.

G-9 PSA 203 High volume, Distant mets pelvis, spine, clavicle, rib, lung.

5/15 Fermagon initial ADT, Xgeva

7/15 Eligard /6mo Vit D3

7/15 Taxotere

8/16 New bone mets 10/16 Lung nodes

10/16 Provenge MD Anderson

Stopped Xgeva

7/18 changed over to 22.5 mg Q 3mo Lupron

PSA

Oct 1.4

Mar .70 2019

Oct .60

Aug .70

Jun .39

Apr .36

Mar .26

Feb .21 2018

[kidclutch]

i’m not sure of any trials without doing some research, but my dad is being treated at stephenson cancer center in OKC so i just wanted to say hello, fellow okie!

[math33 in reply to kidclutch]

Hi hope your dad is doing well, I have 4 daughters myself and couldn't do without them. I will see my oncologist in Tulsa and see if he knows anything new. I have seen a doctor at MD Anderson but it would be nice if I could find a trial closer to home. Do you like the Stephenson center?

Larry E

[kidclutch in reply to math33]

stephenson has been fantastic and so wonderful to not just my dad, but my mom and us kids. if you’re looking for another opinion, they’ve been good to us and the cafe on the first floor is pretty good too!

[Boywonder56]

Looks loke ur still responding to lupron.....im similiar gleason 9 pelvic mets...might try erleada...im on it...mine doubles evry 6 month but from nadir of .007...im at .2 in 3 yrs....