Hi. I'm Pippa. I'm 39 with 2x beautiful children. I suffer from FIBRAMYALGIA, LUPUS, SYRAMELIA, DISC DEGENERATIVE DISEASE &Many more. Help..

[pipsicola]

Hi all. 

As you can see from my list above (which is just a few of what I suffer from) I have suffered in silence for many years now. No one has understood how I really feel. They just say 'oh are u having an off day today?? Not too good today?? With Alot of sarcasm behind there tone!!!! 

I've gone through a marriage and a engagement which both ended in separation!  Due to my health!! As both ex's had no understanding of ill health at all.!!

I came across  this site and thought it would be interesting to chat to others in the same situation as myself.  And knowing I'm not alone here!! 

As I've felt so ALONE for so many years now. With no one who understands me and the way I feel every day. Just being told it's all in my HEAD!!!

ANYWAY, I'm so pleased to of come across this site and hope to start talking to many other people in the same situation as myself. 

We are not alone and it's not in are heads!!!

[Penel]

There are Lupus and  a Fybro site on HU that may be useful.

healthunlocked.com/fibromya...

healthunlocked.com/lupusuk

[pipsicola]

Hi. Thank you so very much. 

I will have a look.

Thank you so very much once again  xxx

[IndigoBlue61]

Hello and good luck finding help and support you need 

Anna 😊

[rosie-2015]

Hi I'm with the fibromyalgia group and they are so friendly and give out lot's of help and advice,it can also be quite cheerful and some funny pics. There's usually someone on during the night there's always someone in pain and can't sleep good luck i hope you get what you're looking for xx rosie

[pipsicola in reply to rosie-2015]

Hi Rosie. 

Thank you so very much for your time to replyingback to me.

I really do appreciate it. 

Thank you. I am so pleased I have joined up.

Xxx

[Littlefish76]

Hi Pippa,

I suffer from M.E and I totally get where you're coming from! Welcome to the group and I'm sure you'll get the support you need.

I'm a great one for trying to push through the pain, the lethargy and the general feeling of being ill and trying to get on with life because you feel so guilty when someone gives you one of those looks for taking ten minutes to sit down!!!

They'll all be sorry when we end up bed bound and they have to look up after us!! Lol!

Keep smiling chicken!

LF76

[pipsicola]

Hi LF76

THANK YOU SO VERY MUCH FOR YOUR REPLY. I REALLY APPRECIATE IT! !

I'VE NOW BEEN BED-BOUND FOR THE PAST 8 DAYS DUE TO MY BACK & PAIN!! I JUST PHYSICALLY CAN'T GET UP DUE TO THE PAIN!! IT'S KILLING ME!! I FEEL LIKE I'VE BEEN RUN OVER! MY KIDS MUST HATE ME!! AS IT'S THE EASTER HOLIDAYS. & I'M STUCK UP IN BED!! No being able to move a a muscle ........  I just to get mobile and b mobil

[Zest Healthy BMI]

Hi Pipsicola,

How horrible for you that you are stuck up in bed, that must be really difficult.  I hope you can get some relief from the pain, and I hope you'll be able to move and get some mobility back soon.  

I'm sure your kids won't hate you.  They are most likely concerned for your well-being. 

I hope you found the links useful that Penel  gave you.  Healthunlocked is such a great place with so many useful communities, and hopefully you can find support and some helpful things.  

I hope you have a good weekend. 

Take care,

Lowcal

[pipsicola in reply to Zest]

Hi.

Thank you so very much for your time in replying to me. I really do appreciate it.  It's so hard laying here feeling so not fair suffering from all this pain on a 24 hour basis!!!

I live in hope that one day just one day I may get some refief  from this pain!!!!

Thanks once again for yr support! ! Xxxx

[Zest Healthy BMI in reply to pipsicola]

Hi Pipsicola,

I hope you can get some good sleep tonight.  I'm just about to go to bed now myself, so night night.  Maybe your pain will be a bit better tomorrow - wishing you well. 

Lowcal 😃

[pipsicola]

Thank u Lowcal.

I really appreciate your messages.

It's lovely to know there's someone out there to listen to me.

I don't complain about my problems to my kids as it's not fair. But since joining here. I realise I'm not alone anymore. 

Night night xx thank u once again.

Yr all so lovely.  You really are. Xxx

I will let you know later how I get on tonight 

Take care.

Hope yr night is a reasonable one too.

Love and hugs

Pipsi xxxxx

[Littlefish76]

Hi Pipsi,

How you feeling today?

Have you had any pain meds from the doctor? I know with my pain I need something stronger than ibuprofen when it's bad and my doc has me on amitriptyline. 

I know it's hard but try to get bits of your body moving, even if it's just rotating your ankles and wrists, if you lie still for too long you'll sieze  up and feel worse.

Wishing you healing hugs,

LF76