Heavy bleeding and pain

[Crunchieee]

Hello,

I am requiring advice.

I was diagnosed with PCOS in 2016.

The doctors suggested having a coil fitted to help the bleeding and hormones. This was fitted in 2016.

In 2019 my symptoms had got worse in that I was suffering heavy bleeding & pain. In March 2019 I had a laparoscopy the results were that nothing was found. The specialist prescribed me Metformin to take to help manage my PCOS and weight gain. I have now still been suffering heavy bleeding, weight gain, frequent urination, pain and unpleasant symptoms I have been referred to specialists again but as Coronavirus the referral is delayed. I am suffering still with pain, when I wee blood and clots are coming out. I have attached a monthly record when I’ve recorded the bleeding in which it was most days. I am also bleeding alongside this. I was prescribed the Desogestrel pill by my doctors in January 2020. I am still having the same symptoms and nothing has changed. I wear pads but it’s rare there’s bleeding on the pads it is always when I wee. I done a urine test and there isn’t blood in my wee which means it is coming from my womb. I had an ultrasound which showed my right ovary is 5.8m and my left is 13.8ml. I just am at my wits end the pain and bleeding is worse after eating foods which are spicy/bread/alcohol. I am wondering whether I am suffering a bowel problem alongside PCOS as my bowel movements vary. I am just at a loss of what to do and fed up. Any advice or similar stories would be appreciated. When I wee their is blood clots & it is usually thick blood and sometimes gloopy instead of thin blood. I am also having pain and bleeding if me and my long term boyfriend have sex and it is really impacting my life. Any help or advice would be greatly appreciated.

[veritypcos Partner]

Hi. This to me (I’m not a doctor!) sounds like you could have Endometriosis, Adenymosis or Fibroids.

I personally have Endo with my PCOS and IBS on top of that which gets exacerbated by Endmetriosis flares.

My Endo was almost missed as the tissue was tiny but amount of tissue and pain don’t always correlate with that.

Getting referred back to a specialist is definitely a good first step. It’s worth reaching out to your GP about the pain/bleeding management again and ask them for info about keeping your iron levels up as you may be anaemic with a lot of blood loss. And document everything (which it looks like you’re doing) but technology and tracking are a game changer when going to appointments!

[Crunchieee in reply to veritypcos]

Hello,

Thank you for getting back to me.

I’m going to have a look into the conditions listed. I have spoken to my doctors today and hopefully it won’t be long until my referral. I am going to keep a track of everything just so I can show them how/when it is all happening.

Thank you so much!