I was diagnosed at 19 with PCOS and am now 26. I always suffered with it but I fell pregnant last June and went forward with a medical termination. I had such an ordeal for about 6 months of an incomplete termination, infections, severe severe bleeding (through pregnancy liners and super heavy tampons) I was passed from doctor, to clinic, to hospital constantly and suffered infections over and over again. In December I was fitted with the coil and have been suffering immensely with pain. I'm still struggling to get the help I need as my doctor is completely lacking in care. I asked for an ultra sound 2 weeks ago and only managed to get hold of him today. He told me I have PCOS and need a coil. I said I've been aware for 7 years and have a coil. I've been told multiple times I would never get pregnant . My mental health is a shambles because of it and sometimes the pain is honestly crippling and I can't move. I really need some help and I have absolute no idea where to turn now and I'm just becoming more and more depressed! Please help!
Long time suffering!: I was diagnosed at 1... - PCOS UK (Verity)
Long time suffering!
Hi as a pcos sufferer an no help of the nhs due to husband havin a child previous relationship.. i totally feel your pain with feeling like no help for me.. may i suggest you changing gp as i done this when i felt i had no support i changed gp an met my dr who funnily enough has been through ivf an infertility.. you jus dont no your luck but if your not happy as bad as it sounds you need to do something about it cos it wont change.. as for the depression... same boat... have you tried councilling xx
Hi! I've just tried to register at another GP but everything is a little slow at the moment! Thank you xx
Youll get there in the end but try to remember to keep the fire in the belly!! Ive been ttc for 9.5years going through ivf.. av had such a fight on my hands but if theres anything you want from gp you make sure you get! Even if you have to sit there with gp and cry untill you get what you need.. i had one failed ivf transfer if after my 2nd fails ill be tryin a more natural way... ive been researching loads.. we cant cure but can reverse symptoms through lifestyle changes.. diet etc.. we need to eat low gi diet... or try keto.. i promise though you will get where you need to be but you need to fight it.. if you ever need to speak to anyone im here 4 you xx
I've found out about a charity which means I can request an advocate to attend GP appointments with me so I'm hopeful again! I just know something isn't right with my body and I know it's linked to PCOS. I've been eating better and going to the gym the last week so I feel strong enough to fight again! Thank you 
Aww im so happy that youve found the fire in the belly ❤ its hard to keep it with every hurdle we face as pcos ladies.. but just try to remember every hurdle we face every knock back every fail.. were becoming stronger each time. We will always get back up that once more!!! Its just finding something for you! Whats right 4 u may not be right 4 me. Explore different avenues... think outside the box... and research.. research.. research... power is knowledge ... ❤ i wish u all the best on your pcos journey... xxx
Pcos does not mean you can not get pregnant, 1 and 3 people have it, it means you may struggle to get pregnant. I've been pregnant 5 times, I had an abortion at 18, I've had 3 early miscarriages, with the first one needing and D&C, and a late miscarriage. My issue had never been getting pregnant. My sister had a child with PCOS. I didn't have a period before I got pregnant, so please can this be stop being said and I didn't have one most of my 20s.
I'm sorry what you have been through, it sounds truly awful.
What help as you after? Almost PSD? After the last 6 months? For pain you are in try and get a second opinion. Can you could on the pill or injection, as the coil can cause discomfort in some circumstances.
I've found out about a charity which means I can request an advocate to attend GP appointments with me so I'm hopeful again! I just know something isn't right with my body and I know it's linked to PCOS. I've been eating better and going to the gym the last week so I feel strong enough to fight again! Thank you
Really needed to hear this... just never feels like.its going to by my time.. i struggle with it massively.. its always someone elses baby... and after tryin so hard for 9.5 years its hard to stay positive when im.so desperate to be a mother. Im.30 years old and still no baby.. it hurts my heart so much... to go through ivf am failure after failure its hard to deal with i just dont understand why... im willing to be a mother and a good one !! It just seems so unfair? X
I'm 36..coming up 37, so still feel hopefully, and you have more time. All I will say is relax, eat well, try to loose weight, if you are bigger. I have infolic, which is supposed to help PCOS. Metformin is supposed to help if you are overweight. I didn't find my husband until I was 32..unfortunately life is not always easy. Good luck! xx
Im a slim.pcos so weight has never been.an.issue for me..i was on inofolic for over 12 months an didnt see a change whats so ever 4 me also tried metformin but didnt agree with me.. ive tried loads of things the only thing really left to try is my diet.. ive struggled to eat clean etc so im.slowly makin small changes.. see how i go but i know i wont give up ❤🤞 x just a very longgggg journey x
Weight wasn't an issue for me until I was 32 and came off the pill, so be as healthy as you can. I got pregnant after one month on infolic, its supposed to regulate your periods. I've been on it 4 months now, but I did have late miscarriage in April. Have you tried the drilling on the ovaries or chloride.. I think its called? Might work for you?
Ive asked previously about that but they didnt seem to want to do it said sometimes doesnt work an cos am payin private for ivf think they didnt want me to waste money? Do you suffer any symtoms? Im.9 stone have access hair which i have ipl for.. oily skin an infertility.. im about 2 start my 2nd fet should be going for 1st scan beginning oct.. just hope its a sticky embryo this time! I think half my battle is i try too hard! To the point i obsess and it consumes so much of my life. My whole 20s was about trying to conceive dont want the same for my 30s but dont really have a choice if i wanna baby.. i read stories about girls tryin for 15 years after failed ivf when they stop tryin.it happens... stress is a massive factor but its hard not 2 stress.. i judt cant face another negative result. Gives me hope though tha other girls have managed a pregnancy.. pcos makes u feel alone like ur the only one who has it hence why i joined this site.. good to talk to other people who have same condition. Hopefully my time will come 🤞 x
I have a bit of of hairy, I have also used IPL, in the last 3 years I've become obese, I do believe it's had an affect on my miscarriages. So this time round I'm trying to limit all the factors are you taking folic acid? That helps with baby development. Well hopefully this time IVF works for, assuming they have eggs from you, you have eggs available, which is start. My bro and partner tried for years and they have a little boy. They were just about to start fertility treatments.
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