Symptoms?

[MegVarny]

I was diagnosed with PCOS a good few years back along with Endo. I assumed all of my pain and symptoms were due to Endo for a long time but I’ve just had an operation with a specialist and no Endo was found. I am wondering if it is in fact my PCOS. Does anyone get these symptoms:

Irregular periods

Pain during sex

Bleeding after sex sometimes

Very painful ovulation

Painful periods

Pain during toilet movements when ovulating and due on period

Pain during running when ovulating (this pain is severe and feels like what I imagine contractions feel like)

Thank you

[Saladgirl86]

I get exactly the same symptoms as u hun and thought it was endometriosis but it was actually pcos xxx

[MegVarny in reply to Saladgirl86]

I did some research online yesterday and loads of my symptoms did come up as PCOS! All these years I was told it can’t give you pain. Just goes to show that PCOS is yet another disease that needs more research and awareness xx

[Saladgirl86 in reply to MegVarny]

Definitely I totally agree it took them 10 years and 3 operations scans smears and blood tests to come up with my diagnosis numerous coils and pills etc I went private in the end it's been one horrible emotional long journey that has really affected my life really xxx

[MegVarny in reply to Saladgirl86]

I can 100% relate to you. It’s also such a confusing journey where you are told so many different things. All these years I thought my pain was related to Endo as I was actually diagnosed with it via an operation, so you can imagine my confusion when I had my operation with a specialist yesterday and was told no Endo was found! It’s nice to know that you can find other women to relate to on this site. I am going to try and alleviate my pain and symptoms the natural way. I am already following a vegan and gluten free diet but do need to be a bit more strict with it. I already run but also want to get back into yoga. I have a friend who is a reflexologist and has said it’s meant to do wonders for illness’ like PCOS so am going to give that a try! I am also currently taking tramadol so am going to wean off it as don’t want to be on it anymore. I don’t use any hormones but like you, have tried pills and the mirena. My body just can’t handle extra hormones!! Xx

[Saladgirl86 in reply to MegVarny]

I've started taking yazmin pill and honestly its changed my life - my skin is amazing my periods are shorter (4 days) I've lost weight naturally- my hair on my head is now really thick - hair on my face has reduced- and I don't get uti as frequently I do still get pain with sex and a lot of spotting but I'm so much better on yazmin perhaps it's worth s try I was reluctant but so glad I tried it - two of my coils just got rejected and one gave me a nasty infection bk in March this year - I hope u find something - I follow slimming world diet and losing weight gradually xxx

[MegVarny in reply to Saladgirl86]

Luckily I’ve never had problems with my hair or weight loss, it’s just pain and hormones for me. I’ve tried the Yazmin and didn’t get on with it unfortunately. I’m glad you’ve found something that’s helped you!! Xx

[Saladgirl86 in reply to MegVarny]

Good luck hun xxx

[nutritionnat in reply to MegVarny]

Hey - hope you don't mind be adding in my support of a gluten-free diet to help balance hormones. I upped my natural fats to support hormone health and significantly reduced my carbohydrate intake because of the link to raising insulin which is a trigger for PCOS x

[MedStudentP]

How on earth did they diagnose you with Endo and then say otherwise? I’m really surprised and shocked by that.

But some of your pains I haven’t heard of so much with PCOS, especially bleeding after sex?... I’m a bit confused and not surprised you are too!

[MegVarny in reply to MedStudentP]

I know. I saw my doctor and she said that all of my symptoms are Endo related and she has referred me to another specialist! So we will see.... it’s very confusing xx

[MedStudentP in reply to MegVarny]

PCOS can cause pain from the ‘cysts’ (I’m guessing that must be one of your features) at times but it doesn’t quite all fit to me

[MegVarny in reply to MedStudentP]

Me neither, and that’s why my doctor is referring me to another specialist in Endometriosis. Like you said, I was actually diagnosed with Endo ... it’s all very confusing!!