Prolactin levels high - I'm freaked out

[stripeycat]

Hi, I'm 23 and was diagnosed with PCOS aged 20. I spent a couple of years trying various pills to aid symptoms of dark excess hair, mood swings and irregular periods but for the past year have been pill free. After getting sick of symptoms I just had some blood tests re-done and had a docs appt today to discuss. FYI my bloods look like this:

Testosterone: 2

Androgen levels: 8.7

FSH: 6.8

LH: 21

They pretty much confirmed what I already knew, apart from I also got a high Prolactin reading back which I've never had before, or have never been tested for before. Doc wants me to re-take this test as apparently if levels read high again this will need investigating.

Just wondering if anyone else has experience with high levels of prolactin? Apparently it can have no cause, or be caused by stress, but most worryingly can be caused by tumours on the pituitary gland in the brain that secretes this hormone.

This, combined with scaring myself over the fear of developing something like Cushings syndrome has naturally sent me into a tailspin that I'm going to die - damn you Google.

I'm being referred to an endo with a gyno specialism who can hopefully work out what's going on but I'm feeling pretty freaked out. I've only ever really had PCOS symptoms involving extra hair, mood swings and irregular periods (and polycystic ovaries) but in the past year I've put on a stone (I didn't think too much of this but it's definitely PCOS/hormone related, my body shape has changed so much). And today for the first time I had the "You're not thinking about kids any time soon are you?" which I've never had before. I don't want kids right now but the thought of this not being possible makes me sick to my stomach. Yikes I feel like I've just been diagnosed all over again. Ignorance has been bliss.

Hoping someone might be able to relate or help, or at that this might help someone else.

[Hols969]

I haven't heard of prolactin levels being related to pcos so I am not overly familiar I am afraid.