Patients of any east london Hospitals? - Vasculitis UK

Vasculitis UK

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Patients of any east london Hospitals?

rrahman profile image
5 Replies

Hi..

O just wanted to know if there's anyone here who attends hospitals in east London...it seems like I'm the only one judging by the hospital survey...?

My consultant.is at Royal London Hospital in Whitechapel, east London.

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rrahman profile image
rrahman
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5 Replies
JackieC profile image
JackieC

I do. I'm under the Royal London, The London Chest, Mile End, Barts & Queens

rrahman profile image
rrahman in reply toJackieC

Oh brilliant. I thought I was only one. Can I ask if you attend the support groups. As I know the nearest ones are in Camden and bexley. Which is still a bit of a distance.

Can I ask how u feel about the treatment you get and what your diagnosis is?

I'm.under the renal team. Dr rajakariar.

alybill profile image
alybill

Hi,

I attend The London Chest, Addenbrooks and Broomfield hospitals.

rrahman profile image
rrahman in reply toalybill

Oh brilliant. I thought I was only one. Can I ask if you attend the support groups. As I know the nearest ones are in Camden and bexley. Which is still a bit of a distance.

Can I ask how u feel about the treatment you get and what your diagnosis is?

I'm.under the renal team. Dr rajakariar.

Also how comes you go to the addenbrooks and Broomfield also if you don't mind me asking?

alybill profile image
alybill

Hi,

I attend the Cambridge support group. I have Churg Strauss Syndrome and have had excellent treatment and support from the medical profession. I am due to have my 3rd Ruximab infusion on 23rd July, although my bloods are good I had extreme tiredness and muscle pain in arms and legs. Broomfield is my local hospital if I became unwell this is where the ambulance would take me to. Addenbrooks is the centre of excelence and I was refered by consultant in Broomfield. I suffer from Sleap aponea and use a CPAP machine and this is monitered by The London Chest. Hope this is helpful, best wishes.

Alison

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