I've got NHS and private bloods this week, testing various things including coeliac.
I don't eat much gluten at I know it doesn't agree with me. I've been eating gluten for 3.5 weeks ahead of the test.
My research shows a range of "need to eat gluten for 6 weeks" or "between 2 -4 weeks"
I can keep going and repeat if necessary based on the other results (T3/thyroid antibodies, vitamins etc) but I just wonder what the prospects are of an accurate result?
Thanks
Several years ago I was tested for food intolerances. My main problems that they found were oats and wheat, but with a number of other things which I was less sensitive to. I was told that I was not coeliac, but omitting wheat and oats means going gluten free anyway.
As I'm sensitive to oats I avoid things in the 'free from' section which contain 'gluten free oats'. A few years later I discovered that I'm sensitive to potatoes, so I also check for potatoes on food labels as manufacturers have a habit of putting potato starch in gluten free products.
Good luck with all your tests.
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
As you know gluten doesn’t agree with you it’s a bit of a waste of time to go back on gluten
chriskresser.com/the-gluten...
amymyersmd.com/2018/04/3-re...
thyroidpharmacist.com/artic...
drknews.com/changing-your-d...
Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease
pubmed.ncbi.nlm.nih.gov/296...
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
nuclmed.gr/wp/wp-content/up...
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
restartmed.com/hashimotos-g...
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial
With loads of vegan dairy alternatives these days it’s not as difficult as in the past
Post discussing gluten
healthunlocked.com/thyroidu...
Recent research in China into food intolerances with Hashimoto’s
healthunlocked.com/thyroidu...
More interesting Chinese research on Hashimoto’s and leaky gut
nature.com/articles/s41598-...
Fab thanks SlowDragon that's music to my ears! I'm not enjoying eating gluten (apart from the fruitloaf!). I don't know as yet what my thyroid issues is, hopefully the various bloods this week will help with that. I thought it might be helpful to have the label of coeliac but it seems unlikely that I'll get that anyway.
I haven't eaten dairy since I was 18 (55 now) and I definitely feel better without that
Gluten intolerance and dairy intolerance strongly suggest you are likely to have autoimmune thyroid disease aka Hashimoto’s
Thanks, I've got private (Lola Elite 360) bloods tomorrow including T3, antibodies, vitamins etc. so I'm hoping I'll know a bit more by later in the week. GP is also running bloods on Tuesday including vitamins, iron and whatever the NHS does for antibodies.
I've read so much I can't work out what I think it might be, Hashimotos looks likely except I've had this really low TSH (c. sub 0.4 ish) since 2016. Is it possible I could be in a hyper phase for that long? 🤷♀️ Maybe I'm not understanding it though
I'll post again once I've got the blood results
whatever the NHS does for antibodies.
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies
on gluten and dairy free diet it’s more likely TPO antibodies will be negative
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)
NHS only tests TG antibodies if TPO are high
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
The Lola test includes these which hopefully will take me in the right direction.
Anti TPO Ab (Anti-Thyroidperoxidase Ab): An antibody targeting the enzyme thyroid peroxidase, commonly elevated in autoimmune thyroid diseases like Hashimoto's thyroiditis and Graves' disease.
Why measure: To diagnose and monitor autoimmune thyroid conditions, providing insight into thyroid health and potential autoimmunity.
Anti-TG (Anti-Thyroglobulin Antibody): An antibody directed against thyroglobulin, a protein produced by the thyroid gland, often elevated in autoimmune thyroid disorders.
Why measure: To evaluate and manage autoimmune thyroid diseases, such as Hashimoto's thyroiditis, and to assess the risk of thyroid dysfunction.
low TSH (c. sub 0.4 ish) since 2016.
Low TSH can be central hypothyroidism
TSH was 0.46 (0.2-4.5l
T4 - 13 (9-24) no further testing done.
Free T4 (fT4) 13 pmol/L (9 - 24)
Ft4 only 26.7% through range
Free T4 (fT4) 17 pmol/L (12 - 22)
Ft4 only 50.0% through range
Central hypothyroidism
bestpractice.bmj.com/topics...
ncbi.nlm.nih.gov/pmc/articl...
endocrinologyadvisor.com/ho...
academic.oup.com/jcem/artic...
ec.bioscientifica.com/view/...
academic.oup.com/jcem/artic...
Thanks, that's interesting, some of the symptoms fit but not all (I have palpitations and have lost weight). Fingers crossed that the various tests throw a bit more light onto things 🤞
Hashimoto’s frequently starts with transient hyperthyroid type symptoms and temporary higher thyroid levels, as thyroid cells break down and release excess thyroid hormones……but it is not true hyperthyroid
After each autoimmune attack, thyroid becomes increasingly damaged and more hypothyroid
Miscarriage and Hypo - what next to improve my chances of a successful birth?
Gluten sensitivity in the absence of coeliac disease
Has anyone tried the Self Check gluten sensitivity test (IgA) available over the counter from Lloyds chemist? 
Are Hashis allowed a little gluten?
The curious case of gluten free
