Yes lots of us test negative for coeliac, but are still gluten intolerant.
Like you I was daunted at thought of going GF, but have found it so much easier than anticipated. But then I feel so very, very much better, it's easy to stick to.
Eating out is ok - most restaurants seem able to cope. The hardest is eating at friends or family....especially if they think it's just a fad and your being deliberately awkward. (Give them "Hashimoto's the root cause" by Isabella Wentz to read that might shut them up!!)
Do you think GP will test during pregnancy? I'm worried they'll say I need to wait until after the birth.
This isn't a pregnancy thing though I'm sure of that, I've had these symptoms for years, I've just never considered getting tested until recently, after doing my own research.
They probably wouldn't do an endoscopy with mild anaesthetic - and to be confirmed as definitely coeliac they usually want to do one - and you have to be still eating gluten to have that done
I had two coeliac blood tests - both negative & endoscopy about 5-6 weeks after giving up gluten, result was inconclusive. But because I couldn't walk, (due to gluten) gastroenterologist said I must not go back on it just for testing. I was told then that the blood test is only correct approx 60% of time.
Most of us with Hashimoto's have non-coeliac gluten intolerance anyway.
I'm feeling more and more unwell, and am noticing a pattern emerging of the abdominal pain after eating wheat especially, I'll get the blood test and then go gluten free, I can't wait to have the biopsy I don't think, i don't want to put baby at risk if I continue on gluten for too long.
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