Hubby had day off and even though we had snow we drove to Sheffield. It takes an hour and a half to get there and it was not only quieter on the M1 but the hospital was too.
I showed "the man" my blood test results TSH <0.01, Free T4 23.9 (9-19), Free T3 5.4 (2.6-5.7) and my vitamin D came back at 127 (don't know the lab range).
He asked which vitamin d I took (as the level was only about 12 about 18 months ago) I told him that I buy vitamin d3 and he said that he would write to my GP asking her to prescribe Pro D3 1000iu. My GP told me there was only Adcal.
Next year I will have another bone density scan - I had one done in 2011 which was ok.
I told him that I take 225mcgs of purified levothyroxine in the Winter but will reduce to 200/225mcgs in the summer months. I also take 1 grain of naturethroid. He asked me how much this was (he did ask my GP to prescribe it but my GP refuses).
So that was the first 5 minutes of the consultation then would you believe that he then went on to tell me about his poor health and his operations, and then there has been the battle to take his little girl out of the country and details about that!
The first time we went there I could barely make the journey. I had to be in my mobility scooter as I could barely walk. This was 4 years ago. We always do the same thing, go and have lunch in Waitrose which is nearby.
What a difference now, I am going to the Ideal Home Exhibition next week, yes I still have a few symptoms but feel fantastic by comparison.
So for those of you who don't know me and are wondering why my Endo is not pushing me to lower me thyroid meds ...
mmm long story short, I had seen 3 other Endo's, Dr P, Dr S, you name it I tried it and the last Endo referred me to the one I saw today, I just could not face more disappointment and declined the appointment. He actually phoned me himself and told me to go as he wanted to help me. I take purified levothyroxine and naturethroid and he has just gone with the flow as I have increased my dose so slowly to get to the dose that I feel happy with. He has asked me to lower meds sometimes but I feel so drained and unable to get through the day if I do. We came to an agreement that he has pointed out some of the dangers that he believes could happen (no proof though) and I had a bone density scan.
So, if I lived in Sheffield then I would have been discharged a long while ago but because my local PCT continue to pay, I will go to see him in Sheffield for as long as.
One thing is for sure, it is so nice not having doctors insisting on me lowering my dose so that they are happy with numbers but I wouldn't be able to get out of bed. This is why I am a Trustee of Thyroid UK and want to help others. It took me over 5 years to get better and I believe that you CAN get better too.
Sue