So did I.......: Like RoloHipps, I too saw an... - Thyroid UK

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So did I.......

thecookiemonster profile image
13 Replies

Like RoloHipps, I too saw an Endo at the Countess of Chester Hospital, for the first time yesterday. (I,ve been Hyperthryroid for 11 years), and I have to admit, that having read on this site the problems or thoughts other Thyroid people have had with their Endocronologists, I was dubious as to what to expect.

Anyway, I was pleasantly surprised, from the Nurses that weighed you in etc, to the Junior Endo, and the MAIN MAN, it couldn,t have gone any better. They listened to all my health history problems (diagnosed ME/CFS ,96) and I have High Blood Cholesterol, they have now prescribed 3 x 10mcg tabs of T3 a day, reducing my Levo to 50mcg (I take 100 at moment). My Thyroid function had indeed change since they altered my meds late last summer, (I was on 125mcg), but they had to alter at that time because I had too much Thyroxine in my body.

So, im to take these new tabs with the Levo for 3 months, when I will go back and let them know how im feeling. The Endocronologist has also insisted that I have a TGA AB, Vitamin D and B12 Folate blood check, which im going to have done in the next couple of days at my GP,s surgery (you should have seen the queue at the Hospital) and Im not a needle fan.....but then who is!!

I really couldn,t praise all the staff enough, especailly the Endo,s.

Still not feeling marvellous, but feel as if im gettting somewhere at last.

Best Wishes to all on this site, without whom, I wouldn,t have even known what an Endo was!!!! x.x.x.

[ edited by admin to remove doctor name ]

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thecookiemonster
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13 Replies

Hyperthyroid? Do you mean hypothyroid? There is a world of difference and thyroid meds are not generally prescribed for hyperthyroidism unless you are on something to block the thyroid.

Rosee

thecookiemonster profile image
thecookiemonster

YES Rosee your right x

RoloHibbs profile image
RoloHibbs

Hi cookiemonster! It looks like we're going through this together. I've to reduce my Levo from 200 to 150mcg and take 20mcg (2 x 10mcg) T3. I've just taken my first half-dose of T3, so fingers crossed! Be interesting to see how we compare. Karen.

thecookiemonster profile image
thecookiemonster in reply toRoloHibbs

Hi, Karen, haven,t got my T3 yet, I got to collect my prescription either tom/fri, will let you know what I think after a month or so. Take Care, Kind regards, Kath

ooo, endo name by email please! :-) louise.warvill@thyroiduk.org

Apologies if you've already sent it - I've added a few to the list lately, it's hard to keep track! :-)

Thanks

L

xxx

nightingale-56 profile image
nightingale-56

God to hear someone else too is receiving better treatment. Maybe the winds are changing at last. Hope this spreads to all Endos and Doctors, and hope you and Rolohibs do well.

Hi Kath

Thanks for the name - I have deleted it from here so as not to draw attention to him. But will add it to the email list - thanks! :-)

L

xx

shaws profile image
shawsAdministrator

That great news, I am sure you will feel so much better.

thecookiemonster profile image
thecookiemonster

Thank you very much. Kind regards, Kath

Pinklily profile image
Pinklily

That's so good to hear Kath :-) Hope it makes all the difference for you and brings you better health and happiness. If you have a chance could you PM the name of endo please? I tried to get a referral there before as someone on here recommended an endo at Countess of Chester but I couldn't but will try again with my GP. Thanks

thecookiemonster profile image
thecookiemonster

Hi Pinklily, his name is Dct. N - his whole team are very good. Kind regards Kath

Name edited by admin to protect the 'good' doc.

Pinklily profile image
Pinklily in reply tothecookiemonster

Hi Kath

Sorry to bother you again and hope you are doing ok. If I send you a personal message would you be able to reply to it with the Drs name from the Countess of Chester please as my doctor has agreed to refer me there. It seems that although they will not diagnose me as hypothyroid they are slowly realising that maybe something else is going on despite CFS/ME and are acknowledging I have many hypothyroid symptoms. I have seen other endo's since 2008 but had no joy as bloods are always 'normal'. Many thanks

thecookiemonster profile image
thecookiemonster

High Mandy, just read your other blog to me, I have Mild/Mod CFS/ME to. I was diag in 1996 with this, then 5 years later diagnosed with Hypothyrodism. Wonder if there conected in some way?, Look after yourself, Best, Kath x

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