Just had a frustrating visit to gp this a.m. I have a small remnant of thyroid left as a result of partial thyroid removal due to cysts 30 yrs ago. Last year I asked to be referred back to endo because of some symptoms. He initially put me on 25mcg levo per day and then at next appt upped this to 50mcg. He also noticed I had vit d deficiency and b12. I also had iron deficiency. As you can imagine I had lots of weird and wonderful symptoms, many of which could be attributed to any of these issues.
The endo put me in the care of my gp and made an appt for 12 mths. I've now had several new symptoms and had a blood test in Novemer for Sjorgens as I was experiencing a very dry mouth and eyes. My eyes have become very bloodshot and gritty feeling. I've got fed up buying intensive tears and the drops from doc did no good. So, I paid another visit to gp this a.m. I explained the eyes, told him I'd put on a stone in weight, not sleeping properly and tired all the time. He looked at my results and said they are normal!
The endocrinologist has put me on thyroxine to try and reduce the size of the thyroid remnant which, whilst maintaining a good level of thyroxine, is getting large and causing problems for me swallowing.
My gp explained the results by giving the bandings and saying the aim is to get both readings within the bands!! They have always been within the bands and he couldn't grasp what I was saying.
Here's the figs, am I missing something? I think my TSH should be lower but am not sure what level of levothyroxine is needed to reduce my current symptoms. GP said he didn't want me becoming 'hypo'
T4 band 9.0 - 19.0
TSH band 0.35 - 4.94
Date T4 TSH
11/10 16.4 3.26
8/10 13.2 4.09
4/10 12.5 4.17
1/10 13.6 3.51
6/09 9.5 4.55
I'm going to bring forward my endo appt but find this whole business so frustrating and such a waste of time. Nothing seems to have moved forward in a 30 yr period. Surely there are enough people suffering with this disease to be able to put pressure on the medical profession?