Hello. Firstly I would like to say how grateful I am to find this place, I finally feel understood. Reading how others have expressed how they have felt physically and how they have been treated by the medical profession is a breath of fresh air. Clearly I would prefer that none of us have to go through it but so, so glad to know I am not alone.
Briefly my story. After the birth of my 3rd daughter now nearly 3 (had had 2 previous miscarriages), I went to my GP because my rings no longer fitted my fingers. They had fitted up until I had her but after a couple of weeks I noticed my fingers were different. I had been wearing a different sized wedding ring just in case my fingers swelled up in pregnancy but they didn't. My GP asked a few questions and then ordered some blood tests. I went back for my results and was asked if I had a problem with my thyroid. i said no, he said 'well you do now'. A bit shocked but it fell into place why I struggled so much with breast feeding, so cold, dizzy spells etc etc. He started me straight away on a 25 dose and told me to come back for tests. Straight after taking it I was good for a few weeks and then back to how I was before. Each time I went back he asked me how I was doing I said tired. Each time I asked 'is this the level of tiredness I can expect for the rest of my life'. He gradually increased my dose to 75 but I still felt so awfully tired. Eventually I asked if I wasn't able to use the T4 and he mentioned that it is possible and there is another type but he couldn't prescribe it so sent me off to the endo.
So really I feel, based on a lot of the stories, I was well treated, quickly diagnosed and listened too. I was just unfortunate that the medication didn't work for me. There ends the good part of my story.
My endo has not been so supportive. After weeks of waiting I went in, long story short, he found a lump on my thyroid and wanted to run other tests to exclude any other problems. Ok, I went along to all the appointments, had the tests, a painful biopsy and went back for the results. Biopsy failed, other results nornal, did not see endo so was told nothing could be done and I needed to see him for another biopsy. another appointment, another biopsy and when I tried to talk to him about my results and a way forward I was told it was not the time or place and to make another appointment. Another appointment, changed at the last minute for another week later, and another failure. Asked him about the tiredness and changing medication, he wasn't keen, said we would speak next time. Further appointment 3rd biopsy, asked again and he finally gave in and said he would do it, tried to walk away but I said could he do it now! So he did. He was stern, said it wouldn't work, he will not over treat me etc etc etc. Next appointment my biopsy was clear, finally and within 24 hours of taking the T3 the difference was night and day. I got a lot of heart palpitations and shakes but these eased off and everyone was commenting on how different and alive I was. Unfortunately after a few weeks I started to get aches and pains and some of the tiredness returned. I waited and had my blood tests went back to see him as told only to be seen by a different Dr who said they didn't have my results and he can't do anything anyway without the big bosses say so. He said he would contact me but didn't. After much tooing and froing I had to wait another 7 weeks for an appointment. At this appointment the Dr wasn't interested at all and basically said within 1 min that he was referring me back to my gp as he wasn't messing around with my medication any more and was not going to treat me. Shocked I asked why, he was rude, asked for a second opinion and it really went downhill from there. As I stood up to leave I said how would you feel if you had to live like this, would you just accept it? He looked at me and told me to leave his office immediately. Have put a complaint into the hospital which has just been returned basically calling me a liar. Oh the joys of the NHS.
So that is where I am at. I am not as bad as I used to be but definately not myself. I am getting all the test results from my gp for the last 4 years and I am looking to go privately. My last results were TSH 0.15 FT4 10.5 FT3 4.6. These are the ones sent on email so not read from a lab report or any ranges given. If anyone has any thoughts on this I would appreciate another set of eyes or two. Thank you for reading.