Hi all been an onlooker for some time and I am in need of some assistance, I will try to keep this as short as possible but sorry if I ramble on.
I was admitted to hospital in May22 after a routine checkup as I was not feeling quit right this quickly unfolded into the dreaded widow maker heart attack was blue lighted to hospital for immediate treatment (stent) and panic over no symptoms chest pains or Tv theatricals.
Whilst in hospital recovering I was made aware that my blood tests showed my thyroid levels were abnormal ( Tsh 24 range 0.40-4.90 and FT4 8.9 range 9-19 ) and to discuss with my GP i was started on Levothyroxine 25mg low dose due to heart issues. Shortly after I was seen by a professor of metabolic science to treat underlying lipid disorders ( mixeddislipidemea and Lp(a) ) he also undertook my thyroid treatment due to the link between the 2 also in a previous appointment he was head of the Birmingham Thyroid Clinic so was very reassured I would get both problems sorted, my thyroid symptoms became worse fatigue,weight gain, low mood, low libido, poor sleep which are all still present today 2025 between May22 and November 24 I have had 8 blood tests with Tsh and FT4 included my Tsh has only been in range twice in this time which was my most recent in November 24 ( Tsh 0.79 range 0.40- 4.90 and FT4 12.3 range 9-19 ) the so called expert doesn’t believe in testing for T3 or antibodies and is still of the current view of he believes I am Subclinical and my symptoms are not from my thyroid as it’s now in range????? I am currently on 125mg Levothyroxine (Teva), and take no supplements as have been told by specialist my vit d and iron levels are in range.
I have now decided to try and sort this my self and had some private tests done I have taken the advice / pre test protocols last dose 24hrs before test, test was 8:30am with no food or drink prior. Tests were with Medichecks.
Any advice would be welcomed including levels, vit levels, optimal thyroid, and autoimmunity as my specialist seems to be from the non believer camp and seems to swerve any chat regarding symptoms, it seems pointless adding previous results as they are only ever tsh or tsh+t4 which from previous reading doesn’t really help.
Thanks for any advice in advance and apologies for the lengthy post.
Lee ( Treeferns)
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Treeferns
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Thank you for the wealth of information and will start to implement some of the changes you have suggested I will look at some supplements and start introducing one at a time as advised hopefully this will start to improve some of my symptoms, it’s difficult at the moment as I am on heart medication which can also produce similar symptoms GP and specialist keep advising they are critical to take so difficult to eliminate I was statin intolerant so I am on an injectable for this now so shouldn’t get the side effects???
I have mostly been on Teva brand so can’t comment on suitability as I still have an extensive symptom list plus my levels have never been stable.
I have already had a testosterone test done and that cam back above the middle range.
My cholesterol has stabilised now so I will placed back into the care of the GP for my Thyroid, regarding my Autoimmune/ Hashimoto’s I believed I would have been Overtly Hypothyroid on first blood test with tsh being well out of range and T4 being just below range am I right in saying this, as the specialist keeps saying I am Subclinical it doesn’t make much difference to me as I am on medication but having a full knowledge matters as by the sounds of things having this seems to be a battle of different opinions between medical professionals something I have experienced already with my heart and lipid problems.
Thank you again it’s the most help and info I have had in the last 2 years and is much appreciated.
regarding my Autoimmune/ Hashimoto’s I believed I would have been Overtly Hypothyroid on first blood test with tsh being well out of range and T4 being just below range
You are correct
You were clinically hypothyroid and now on replacement thyroid hormone
specialist keeps saying I am Subclinical
subclinical means “without symptoms “ …….that’s clearly rubbish as you still have lots of symptoms
Many (most?) people on replacement thyroid hormones find they Ft3 at least 50-60% through range
Only start one vitamin supplement at a time then wait 10-14 days to assess before adding another
Starting with vitamin D, then magnesium, then B12 and lastly vitamin B complex
Retest 8 weeks later
Folate 18nmol/L (7-35)
vitB12 65.8pmol/L (37.5-187.5)
With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement
A week later add a separate vitamin B Complex
Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.
If Vegetarian or vegan likely to need ongoing separate B12 few times a week
Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose and may need 2 per day and/or may need separate methyl folate couple times a week
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 5-6 days before ALL BLOOD TESTS , as biotin can falsely affect test results
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 if last test result serum B12 was below 500 or active B12 (private test) under 70
If you have an underactive thyroid (hypothyroidism), treatment may be delayed until this problem is treated. This is because having an underactive thyroid can lead to an increased cholesterol level, and treating hypothyroidism may cause your cholesterol level to decrease, without the need for statins. Statins are also more likely to cause muscle damage in people with an underactive thyroid.
After say 9 months seemed OK and stable. My TSH was 78 so I think I was late onto levo maybe damage mostly all done. I am 2.5 years in and mostly ok for 2 years.
I added T3 as a bit low on my T3 tests but your recent one looks like an OK level compared to your T4. I was top and and over on T4 with low T3.
Lots of info from SlowDragon for you look at. Members here are very knowledgeable and experienced with all things thyroid; you've come to a good place.
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