Any advice warmly welcombed from a new Hashimoto's patient
My most recent blood work
TSH 5.23 Range (0.27-4.2)
Free T3 5.1 (3.1-6.8)
T4 14.2 (12-22)
Thyroglobulin antibodies 31 (0-115)
Thyroid peroxidase antibodies 68.1 (0-34)
Vitamins
Ferritin 143 range 30-169
I've stopped supplements as my results were( 8) 6 months ago.
Folate 19.6 (>7)
B12 150 (>37)
Vit D 74.2 (50-250) I am currently taking supplements . I did stop and they dropped so back taking these.
Also taking B complex
with 2 NHS tests with TSH over 5 you should be offered trial on Levo, especially as TPO antibodies confirms autoimmune thyroid disease
Starting levothyroxine - flow chart
gps.northcentrallondonccg.n...
Any obvious reason for low ferritin originally?
Heavy periods
or
Are you vegetarian or vegan
standard STARTER dose Levo is 50mcg
Retest 2 months after each dose change
Yes so since having covid booster within 2 week had very heavy periods never had before. So this keeps dropping my ferritin levels.
Is there any other option as I don't want to take the levothyroxine.
Many thanks
Why don’t you want to at least start on Levo
there’s around 2 million people in U.K. on Levo
Majority do absolutely fine if
1) their dose Levo is fine tuned to maintain Ft4 and Ft3 at least 50-60% through range
2) be aware that different brands levothyroxine are not necessarily interchangeable
3) optimum vitamin levels maintained
4) gluten free and/or dairy free diet may be beneficial or essential…..always worth trialing
Starting on Levo is the gentlest option. Increasing SLOWLY upwards, usually in 25mcg steps until on approximately full replacement dose of around 1.6mcg per kilo of your weight per day
cks.nice.org.uk/topics/hypo...
bnf.nice.org.uk/drugs/levot...
nhs.uk/medicines/levothyrox...
Adults usually start with a dose between 50 micrograms and 100 micrograms taken once a day. This may be increased gradually over a few weeks to between 100 micrograms and 200 micrograms taken once a day.
Some people need a bit less than guidelines, some a bit more
TSH should be under 2 as an absolute maximum when on levothyroxine
gponline.com/endocrinology-...
Graph showing median TSH in healthy population is 1-1.5
web.archive.org/web/2004060...
Comprehensive list of references for needing LOW TSH on levothyroxine
healthunlocked.com/thyroidu....
onlinelibrary.wiley.com/doi...
If symptoms of hypothyroidism persist despite normalisation of TSH, the dose of levothyroxine can be titrated further to place the TSH in the lower part of the reference range or even slightly below (i.e., TSH: 0.1–2.0 mU/L), but avoiding TSH < 0.1 mU/L. Use of alternate day dosing of different levothyroxine strengths may be needed to achieve this (e.g., 100 mcg for 4 days; 125 mcg for 3 days weekly).
sciencedirect.com/science/a...
The optimal daily dose in overt hypothyroidism is 1·5–1·8 μg per kg of bodyweight, rounded to the nearest 25 μg
Starting on anything containing T3 will very quickly significantly lower or suppress TSH …..which can make it harder to get dose increase you need
If, once you have GOOD Ft4 and good vitamin levels, if Ft3 remains low ……THEN is time to consider adding small doses of T3 prescribed alongside Levo
NDT doesn’t suit everyone. Ratio of T3 to T4 is higher than many Hashimoto’s patients can cope with
Also extremely expensive
NDT can also, in some cases increase thyroid antibodies
But for some people, it’s the best option
But best to always try the easiest, cheapest option first
I worry with the connection to cancer. And we had had alot in our family. I was recently prescribed Armour thyroid and have got them but saw on the label they also contain levothyroxine. I only decided to take this as specilist said they don't buy now revieved them it states it on the label 😭
Thanks so much for all the advice.
Yes I cut everything out and found soya was a definite trigger. I also cut out dairy gluten sugar for 2 months but when I introduced the only thing that I struggled with was bread so I've just stopped eating that.
Someone did say that it's best to Try no gluten for 6 months. And that 2 months wasn't long enough.
The (very small possible) link to increase in risk of cancer is to having higher Ft4 levels…..not wether you get your replacement thyroid hormone from levothyroxine or NDT
NDT is T4 plus T3 so the label says “levothyroxine” because of containing T4
Anxiety is common hypothyroid symptom.
If you noticeably react to bread it’s worth cutting gluten out completely for 6-12 months. Then review
Post discussing gluten
healthunlocked.com/thyroidu...
Recent research in China into food intolerances with Hashimoto’s
healthunlocked.com/thyroidu...
More interesting Chinese research on Hashimoto’s and leaky gut
nature.com/articles/s41598-...
Thank you so much that's really interesting and I will look at these articles now..thanks very much indeed 🥰
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