fed up

[Kowbie]

I told you about a couple months ago I had a letter that told me the drs were putting my thyroxine down by 25 well tsh was still the same 0.02 , had phone appointment she was talking told me to have another blood test and how she was talking, I said what you’d put it down again she said yes , I’m so fed up with drs my t4 was 17 they didn’t test t3 thanks for listening to my moans

[Buddy195 Administrator]

I really feel for you Kowbie, as so many practitioners are ‘slaves to TSH’ and don’t take into account FT4, let alone FT3. When is your next blood test due?

[Kowbie in reply to Buddy195]

Monday 16 th I don’t really know what to do , I feel like telling them not to do my thyroid any more as there the ones that make you always worry and down , thanks for replying

[SlowDragon Ambassador]

on any dose of T3 your TSH is almost always going to be extremely low or suppressed

Is T3 prescribed by endo

Does GP know that you are taking T3 as well

how much T3 are you taking

What vitamin supplements

Looking at these results from 2 months ago

medichecks test no thyroxine before test and last t3 about 12 hours

Tsh 0.005(0.27-4.2)

T4 17.4 (12-22)

T3 6.2 (3.1-6.8)

Crp 4.51 (0-3)

Ferritin 146 (30-332)

Folate 7.4 (7 -35)

Vit b12 active 119 (37.5-187.5)

Vit d 97.7 (50-250)

Thyroglobulin 20.8 (0-115)

Peroxidase anti 21.1 (0-34)

Folate very low

Are you now taking daily vitamin B complex

[Kowbie in reply to SlowDragon]

Hello slow dragon , no I buy it myself that’s why she made me go for another blood test I had told them last year but it couldn’t have registered with them but you never see the same dr I take 35/1/2 t3 was taking 150 thyroxine but then went up to 175 but dr didn’t know so I did drop 25 thyroxine off had bloods done but they now want me to have another one , I am on b complex and also take folate so don’t know why it’s so low , I take vit d3 k2 selenium magnesium, hope your well

[SlowDragon Ambassador in reply to Kowbie]

I take 35/1/2 t3

Sorry don’t know what dose that is

35mcg ?

Most people adding T3 alongside Levo find they need low dose ….eg 3 x 5mcg or even 3 x 2.5mcg daily

Are you taking Tiromel.

[Kowbie in reply to SlowDragon]

They are 25 s and I take 1 and then break the other 1 in half

yes they are tiromel

[SlowDragon Ambassador in reply to Kowbie]

That’s quite a high dose …..but last Ft3 result looked pretty good

Tiromel is not as “strong” as some other brands of T3

[Kowbie in reply to SlowDragon]

Am I doing it wrong

[SlowDragon Ambassador in reply to Kowbie]

No

But GP will be TSH obsessed and just want to continue to reduce levothyroxine

You quite likely need to either self source extra levothyroxine or ideally see a T3 friendly endocrinologist

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists who will prescribe T3

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations so that might eventually transfer to getting T3 on NHS

thyroiduk.org/contact-us/ge...

[Kowbie in reply to SlowDragon]

Thankyou so much for your help ,there a pain in the but

[serenfach]

Print these off and drop them into the surgery. No need to say why:-

thyroidpatients.ca/2021/07/...

thyroidpatients.ca/2019/03/...

Hope they read them and learn!

[Kowbie in reply to serenfach]

Thankyou for these , I did send a load of information before to the surgery about the thyroid but nothing came of it , who ever I speak with , as I never seem to get the same dr has told me they don’t take any notice of t3 just makes me mad as why the hell is it there then thanks again serenfach

[serenfach]

Doctor, I am puzzled - you test diabetics by looking at their levels of hormone in their blood, but you dont look at the main active hormone in someone with thyroid problems in their blood, but test the pituitary. Why is this?

Just ignoring T3 is just ignorant. Makes me mad too!

[Kowbie in reply to serenfach]

Your right there ,they’ve told me they don’t take any notice of the t3 thanks for replying have a good day

[Judithdalston]

just another one who consistently gets TSH in 0.02-0.03 range, and gets GPs ( via their receptionists) to tell me to reduce levo.dose by 25 mcg. I have occasionally been forced to do it ( though do have a private prescription for T3 from an endo.they do know about). All they see is the TSH coming back c.0.02 but I can see huge drops in Frees on my private blood tests, and surprise surprise receptionist once again telling me to reduce levo.again! I think this closely mirrors the definition of madness…I’d soon be on zero levo. , with continuing suppressed TSH, and a diagnosis of hyperthyroidism rather than true overt hypothyroidism!

[Kowbie in reply to Judithdalston]

That’s what I’m afraid of as if it comes back not to there liking they will want to drop it again