Fed up 😩

[Sophie1304]

Hi everyone

I was diagnosed with hashimotos nearly 7 years ago. It's always caused me issues, but now I've been diagnosed with fibromyalgia this year everything gets blamed on that.

I'd been told my thyroid blood test had gone to annually rather than monthly last year which I was happy about. However I had my bloods done last week as I've been off work 2 weeks now. My doctors said my thyroid levels were funny and that my dose had to go up by 25m a day. So now I'm taking 200mg a day and still feel fatigued to the point where I'm missing meals as I'm too tired to go downstairs and make food or eat anything.

My depression is getting worse due to an amount of issues with finance, possible new job and wanting to move out.

I feel like I'm never getting better or stable for longer than 6-18 months at a time and having the time off work makes me feel guilty and rubbish at what I do.

Needed to get it off my chest and felt this was a good place to do it.

Thanks for reading x

[SeasideSusie Remembering]

What are your latest thyroid test results Sophie? Can you post them with reference ranges.

As you have Hashi's, are you strictly gluten free and supplementing with selenium L-selenomethionine 200mcg daily to help reduce the antibodies?

Are your vitamins and minerals all at optimal levels, have you had Vit D, B12, Folate and Ferritin tested?

[Sophie1304 in reply to SeasideSusie]

Hi

I haven't got a full report of them, I'm going to try going to the doctors tomorrow and I will ask for this.

I was tested for all vitamins too.

I am not gluten free and haven't took the supplement as I was unaware this would help. I'll look into this, thank you!

[SeasideSusie Remembering in reply to Sophie1304]

Post all your results and members will comment. If your vitamins and minerals need supplementing then suggestions can be made.

Some info about Hashi's

chriskresser.com/the-gluten...

stopthethyroidmadness.com/h...

stopthethyroidmadness.com/h...

[Marz]

Fibromyalgia can often be caused by Low T3. The 200 mcg T4 you take needs to convert into the ACTIVE T3. The T4 you are taking is a storage hormone

Good conversion from T4 to T3 only takes place if levels of B12 - Folate - Ferritin - VitD are good/optimal.

Are you on any other medication ? - or have gut issues. Both can affect absorption ....

[SlowDragon Ambassador]

See my reply to this post about gluten and Hashimoto's

healthunlocked.com/thyroidu...

Once you get your vitamin test results, SeasideSusie advice on this same post will be good too

[samaja]

It seems much more likely to me that your fibromyalgia is actually a symptom or result of untreated Hashi's rather than a completely separate issue. There is a good chance that you are not a good converter from T4 to T3 (might be genetic and can be tested to confirm) as frankly is you are feeling fatigued so much on 200 mcg a day levothyroxine is not very likely to be working for you.

You might need now to really start educating yourself about your condition and another good link is Izabella Wentz's thyroidpharmacist.com and her books which stress the importance of finding your triggers for autoimmunity - gluten sensitivity and various deficiencies (and the whole intestinal permeability aka 'leaky gut') can be one of them as well as stress.

Even though it is very frustrating when things are not improving remember you are not alone and there is quite a lot you can actually do to change things - slowly and step by step - but the most important thing to keep in mind is to be good and gentle with yourself and make your health a priority. Best of luck!