Hi. Need help with my latest results please. Thank you. Not on thyroid meds. Was on 25mg Levothyroxine, but was taken off them because GP only tested TSH and thought it was okay. I had stopped them for 5 weeks at least before taking this test. I supplement Heme Iron. What baffles me, as a side note, is that my Ferritin was in 50s from NHS test just about 2 weeks prior to this (Medichecks)
TSH: 0.808mIu/l 0.27 - 4.2 R
Free T3 : 4.2pmol. 3.1 - 6.8 R
Free T4: 15.8pmol. 12 - 22 R
Thyroglobulin: 19.3kiu. 0-115R
Thyroid Peroxidase: 13.3kiu. 0-34R
CRP HS: 0.851mgdl. <3 R
Ferritin: 114ugl. : 30-207R
Folate Serum: 22.3nmol. >7R
Active B12: 150pmol >37.5 R
Vitamin D : 125nmol. 50-250 R
Thank you
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Ad78
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Thank you! Took it at about 9.45am fasted. Didn't test TSH on Levothyroxine I was taken off it before 6 week s. I originally felt a lot better on it but felt terrible around Week 4/5. Didn't test until now.
I feel tired, heavy, brain fogged, gained even more weight, only sleep 4hrs every night
Do you know your TSH before you started Levo, is there a reason why you only started on 25mcgs, which is a child's dose? Do you have a history of heart problems or are you over 65? It seems strange to me that your GP would take you off it as Levo is normally taken indefinitely.
25mcg of Levo seems to cause more problems than it solves as it shuts down your own thyroid production ( it doesnt top it up as many medics seem to believe). But 25mcgs isnt enough to make you feel well. We hear a lot of people experience issues on this dose.
I was also put on only 25mcg levo. Which I accepted in the hope they would increase dosage later, but they have now said I’m cured ( well they didn’t say that literally, but they said ‘to reduce or stop dose to allow the natural pituitary/thyroid axis to take over again’ 🤦♀️)
I found another GP and she seems more open to continue levo.
But .. what is most familiar to me is your description of initially feeling good on the 25mcg. It made me realise what it’s like feeling ‘normal ‘ and how long ago it was that I’ve felt like that. How easy life is like that!
And after a few weeks, just like you, it started go down hill again till I probably felt worse than before.
I do think we really need to increase our dosage to keep feeling better.
Was it a "trial" for you too? Was your TSH "normal"? That's what my GP called it. A trial run because my TSH is normal according to him and the stupid endocrinologist he called for advice. I still have Levo left but I can't use it because I am afraid of running out or going through the same thing all over again.
I'm sorry to say but it seems to me he's set you upto fail. We've seen this before on the forum. And whilst on Levo your TSH will fall into the normal range, its what it does, but only whilst you take it.
Once you stop then your TSH will usually rise and carry on rising. I dont really understand what his thinking ( if any) is behind this. Especially if you felt better on Levo.
I dont know how you feel about sourcing your own Levo, its not illegal, lots of people purchase medication for personal use. I buy my T3 this way.
Levo is readily available and not expensive. If the NHS wont help you then its either going private or sourcing your own Levo, which is cheaper and means you are in control of your dose.
Sorry just seeing this after my last post. If anyone has recommendations for sourcing T4 and T3, would appreciate a PM please. Thank you so much Sparklingsunshine
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