New test results : Hello.I have just received my... - Thyroid UK

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New test results

ChickieBaker profile image
3 Replies

Hello.I have just received my latest blood test results and was hoping for some feedback before I see my doctor next week to review my Levothyroxine dosage. I should mention that since I last posted I have been diagnosed with Lichen Sclerosis ( another autoimmune disease )

CRP 5.570 ( range < 3 )

Ferritin 280 ( range 30-264 )

Folate 36 ( range > 7 )

Vitamin D 116 ( range 50-250 )

TSH 0.750 ( range 0.27-4.2 ) - Up from 0.412 last Oct 2023

T3 4.2 ( range 3.1-6.8 )

Thyroxine 18.9 ( range 12-22 )

Thyroglobulin antibodies 391 ( range 0-115 )

Thyroid Peroxidase 149 ( range 0-34 ) Up from 104 last Oct.

Should I be changing my dosage or staying at 75 for the time being.

Thanks in advance for any suggestions.

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ChickieBaker
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SlowDragon profile image
SlowDragonAdministrator

Reading your helpful profile you are 100% gluten free, almost dairy free

Might help cutting out dairy completely

No B12 result

Other vitamins are good

Was test early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

FT4: 18.9 pmol/l (Range 12 - 22)

Ft4 69.00% through range

FT3: 4.2 pmol/l (Range 3.1 - 6.8)

Ft3 only 29.73% through range

Worth trying small increase in Levo before considering getting T3 prescribed

Approx how much do you weigh in kilo?

Guidelines on dose by weight approx 1.6mcg per kilo of your weight per day

If GP won’t increase or if increase doesn’t increase Ft3

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists who will prescribe T3

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

ChickieBaker profile image
ChickieBaker in reply to SlowDragon

Hello.

I currently weigh 70kg. I have tried cutting out dairy altogether but it didn't make any difference to symptoms.

The blood test was done around 8am, only water and at least 24 hours after the previous dose of Levo ☺️

Please forgive me if these are stupid questions but would a delight increase in Levo bring the antibody numbers down ? Also why would I need to be prescribed T3, will that be in addition to the Levo ?

Just need to get my facts straight before I speak to my doctor.

Thanks.

SlowDragon profile image
SlowDragonAdministrator in reply to ChickieBaker

Ideally your Ft4 (levothyroxine/storage hormone ) should be at similar percentage as Ft3 (active hormone)

Naturally in a correctly working thyroid it would make 80-90% Ft4 but (crucially ) would also make 10-20% Ft3

Standard treatment is to just offer Ft4 (levothyroxine) as replacement thyroid hormone

BUT at least 20% of thyroid patients, especially if autoimmune and/or after menopause find their conversion of Ft4 to Ft3 is very poor……results in high Ft4 and low Ft3

Many many thyroid patients benefit from the addition of SMALL doses of T3 prescribed ALONGSIDE Levothyroxine

Usually as 2 or 3 x 5mcg per day

Many members on levothyroxine plus small dose T3 find they do best when BOTH Ft4 and Ft3 around 60-70% through range

because of recent exploitation and drastic increase in price of T3 …..up 6000% in 2016…..NHS became reluctant to prescribe

Price now dropped significantly and getting easier to get prescribed……but waiting lists of over a year means private is best way to get trial initially

Succinct Article on mistreatment of thyroid patients in U.K.

centralbylines.co.uk/big-ph...

And follow up

centralbylines.co.uk/big-ph...

Please consider signing this Government petition for much needed funding for helping to get better testing, treatment and understanding of thyroid disease

Petition started by forward looking, very pro T3, U.K. endocrinologist

We are trying to get 100,000 signatures

Considering there’s over 130,000 members here this should be achievable

petition.parliament.uk/peti...

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