New test results, help please

[chrissie1996]

Hello, I am attaching some new test results in the hope that someone can enlighten me as to the way forward with my struggling health. Mostly fatigue, feeling cold, lack of motivation, sore eyes & thoroughly fed up with the task at hand, sorry to be so glum. I have been working with a nutritionist for a year, have done a heavy metal de -tox , had my 6 amalgam fillings removed, sauna's ,Epsom salts baths, coffee enemas. Gluten/dairy free. Full on health improving journey but not feeling much better. Have tested positive for mould mycotoxins as well. I would be so grateful for any suggestions as to how to use the tests information moving forward.

Previous testing results Jan 2021 are:- B12 526 Range 187-883. Vitamin D 144. I am awaiting Saliva cortisol results. I am on 100 mcg Levothyroxine. My Cholesterol is 7.3, triglycerides 1.51, HDL 2.46, LDL 4.16, se non HDL 4.84, April 2021 = CRP1.3 range 0-5, Iron status 18.4 umol/L ( Range 6.6-26), TIBC 59 umol/L (Range 41-77), Transferrin saturation (Range 20-55), Ferritin 124ug/L. (Range 13-150).

Thank you lovely people. x

[lisabax]

The answer could be in your T4 conversion as FT4 is above range and FT3 is low in range. T3 is the active hormone. Adding in T3 and reducing T4 could be the answer, but I’m sure some more knowledgeable responders will contribute soon

[greygoose]

If your cholesterol is high it's because your FT3 is too low. As lisabax said, you don't convert very well, and that is why your health is not improving.

[fuchsia-pink]

Agree with the others. It might be a good time to get a referral to an endo and a trial of lio ... It's possible but tricky to get lio on the NHS. It's endo-only and not all of them will because (a) it's SO expensive; (b) it has a very short half-life so is tricky to measure and (c) a surprising number of them genuinely don't seem to think it works, and the thousands of us who have found it transformative are suffering from some strange shared delusion!

Have you had the list of T3-friendly endos from Dionne at Thyroid UK - [e-mail]

Also worth a sep post asking for recommendations of endos near-ish to you who are T3 friendly. You don't need to see the nearest person but must obv be reasonably convenient. Good luck x

[chrissie1996 in reply to fuchsia-pink]

Thank you so much all of you. I feel relieved that this is your feedback in the hope that I can get some energy back in my life. I saw an endocrinologist in the distant past, because of my swollen eyelid problem, waste of space.I am wondering about self medicating, I have managed to source some 25mcg Tiromel but not sure how to proceed with it.

I didn't know that there were actually endos that are T3 friendly.

I will ask Dionne for the list also.

I'm willing to travel anywhere, covid permitted of course.

Nuts isn't it, so quick to get referred & followed up at the Lipid clinic & prescribed Statins, from which I get muscle pain, so now refuse to take. Even had a genetic blood test to see if high cholesterol runs in my family, that was negative.

Do you think my iron results are ok?

[fuchsia-pink in reply to chrissie1996]

I get NHS lio .. but my endo isn't particularly clued up. Whereabouts are you?

If you do self-treat, I'd recommend dropping your levo first by 25 mcg a day (cos it's over-range) and waiting a week or so. Then add 1/4 of a lio tablet, and stay on that for another week or so, then build up to two 1/4 tablets (at different times of the day) and hold for 2 weeks; then 3 x 3/4 of a tablet (in 2 or 3 doses) etc until you're on a whole tablet. Stop if you feel good (or shaky) on the way up to a whole tablet. Experiment with taking it in 1, 2 or 3 doses during the day and see what works. When you're at a whole tablet (or an intermediate dose that suits you) hold for 6 - weeks and re-test bloods ie go low and slow to start with, and don't change two things (lio and levo) both together, so you can see how each element works for you

Once on combo, when you have blood tests leave 24 hours from taking last bit of levo and 8 - 12 hours from last bit of lio (and if you take lio all in one go in the morning like I do, split the dose the day before so you have half your usual dose 12 hours before the blood draw).

Don't know about iron - humanbean is the expert and will hopefully pop up in a bit x

[chrissie1996 in reply to fuchsia-pink]

Thank you Fuschia Pink.That's really great that you have helped me with how to build up to the correct dosage.

I see it's long & slow, after 25 years of being on Levothyroxine only & feeling like crap, I must now be patient & go slow.

I have dropped my thyroxine to 75mcg & added half the 25mcg Tiromel for the last few days , not really noticed anything different.

I will still try & see a T3 friendly endocrinologist .

I live in Streatham SW London.

I regularly go to Winchester when not in lockdown as I have a 4 & a half year old disabled granddaughter, whom I am desperate to help care for but tricky with such ongoing fatigue.

I'm so grateful for your help.

[chrissie1996]

Hi Jonathan, Thank you so much for your comments. I feel like crying with relief that there is a reason for all my awful symptoms, makes you feel like an outcast in society not being able to keep up with the world.

So glad you spelt out that my T3 is very low!

Thanks for the endo recommendation, would you mind sending me her details?

I live in London.

I have got Paul Robinsons book Recovering with T3, but have only glanced through it atm, I will get the Thyroid Patients Manual too.

Thanks again.

[chrissie1996]

How wonderful, you have given me so much hope as well as the other replies that I have gratefully received.Yes I see that I have to take time to improve, we all just need that hope that we can.

I'm so grateful for this site

[Caldereta]

Hi chrisse I am experiencing the very same issues symptom wise,my thyroid is showing over medicated the last test in Feb due another test next week specialist advised to alternate my levothyroxine I was on a 100 mg daily hes asked me to do do one day a hundred the next 125mg.I get s cold at times I have to get inthe bath to warm up my knuckles turn blue when I go in the bath then go normal.

I feel like I have flu like symptoms yet my temperature is normal .

I have a intermittent cough ,had amoxocillion for it.

But still have coughing spots you can hear the mucus,then another time it's gone.

Also had pain in my sternum bone and in the dips of my collar bone.

Whether this is all connected I don't know ,my gp says I was showing over medicated last test showed ,but like he said the symptoms are showing underactive ,I had a acute vit d deficiency which now has responded to the high doses I had to have.

I have also feel down ,weepy I am almost a recluse now from a very out going person don't feel I want to do anything .

Sorry I can't help with the levels 😔 as it takes some understanding, but I can assure you it's not a nice place to be,but at least you know your not alone in this thyroid battle.

Lots of love vivx

[chrissie1996 in reply to Caldereta]

Ah, you poor old thing, just like me. I will private msg you later. It's the pits isn't it? x

[Caldereta in reply to chrissie1996]

Yes feel worse chrisse since that idiot specialist,messed with my dosage,the best thing is he insisted he hadn't recieved my last test,I informed him my doctor had sent it because I have checked,and he said it was on the high side over medicated.So why increase it I feel much worse yes ok pm later xx

[chrissie1996 in reply to Caldereta]

Hi Caldereta,Was the idiot specialist an endocrinologist? I'm sorry that you are struggling so much. I have my lovely electric blanket to help keep me warm.

Have you done much learning about how to help yourself in your quest for health?

I have done so much on my health journey & still not yet getting relief as my original post mentioned.

How peculiar that they have raised your meds after showing over medicated.

The book Stop The Thyroid Madness by Jamie Bowman is good to read, its American & they have a Facebook support group. I have read & read & read again what people post, as well as reading on health unlocked.

We really must do as much as we can for ourselves & not rely on doctors.

Let me know how much you have learned on your journey.

All the best

[Winniepoo15]

Hi. Sorry to jump in, but could you possibly send me the endos details too please. Sounds like you’ve struck gold!