New private test results : Hi, there would... - Thyroid UK

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New private test results

Jayne2564 profile image
18 Replies

Hi, there would someone be kind enough to cast their eye over my new results. I’m understanding that I have Hashimoto’s? I’m on 50mg of thyroxine daily but still having tiredness, sweats and aching limbs.

Many thanks

Jayne

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Jayne2564
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18 Replies
SeasideSusie profile image
SeasideSusieRemembering

Jayne2564

Not easy to make those figures out even on my PC's large monitor.

Any chance you can redo the picture and zoom in on just the results with ranges and leave everything else out, or type them into your post.

Jayne2564 profile image
Jayne2564 in reply toSeasideSusie

Will do 👍🏻

Jayne2564 profile image
Jayne2564 in reply toJayne2564

Hopefully better?

SlowDragon profile image
SlowDragonAdministrator

TSH is 4.19

You are extremely under medicated.

Ask GP for 25mcg dose increase in Levothyroxine asap

The aim of Levothyroxine is to take high enough dose to bring TSH down to around one and FT4 towards top of range (around 20) and FT3 will then increase, most people need FT3 around 5.5 minimum

Bloods should be retested 6-8 weeks after each dose increase

Your very high TPO antibodies confirm you have Hashimoto's

You need vitamin D tested. Very common to be low with Hashimoto's

Surprisingly your ferritin, B12 and folate are not too bad considering how hypothyroid you are

Jayne2564 profile image
Jayne2564 in reply toSlowDragon

Thank you I was diagnosed with low d3 18 months before I was diagnosed hypo so I take daily with folic acid 5mg, k2 b12 and magnesium was worried I might not be absorbing but thankfully looks like I am, I will call doc to up meds ASAP and look to going gluten free as I believe that helps Hashimoto’s

SlowDragon profile image
SlowDragonAdministrator in reply toJayne2564

So how much vitamin D are you supplementing and what is current level?

If not been retested, you need it done

Very common to not be supplementing enough. But vitamin D is toxic in excess so important to not just guess, but test twice yearly

Jayne2564 profile image
Jayne2564 in reply toSlowDragon

My level 18ths ago was 50nmol/L —60.00-150nmol

April 18 was 99nmol/L 60-150nmol

I take 10,000iu daily with co factors due re test October

SlowDragon profile image
SlowDragonAdministrator in reply toJayne2564

That's a very high dose. Your level was already high enough in April

Suggest you retest now and likely need to reduce to maintenance dose. Perhaps 1000iu-3000iu. Trial and error what each person needs

vitamindtest.org.uk

SlowDragon profile image
SlowDragonAdministrator in reply toJayne2564

Yes very high percentage of us with Hashimoto's are extremely gluten intolerant (you don't need any obvious symptoms)

You're doing well keeping vitamin levels up despite being very under medicated

Joanneconnor profile image
Joanneconnor in reply toSlowDragon

I’m extremely intolerant to gluten with no symptoms

SlowDragon profile image
SlowDragonAdministrator in reply toJoanneconnor

Then like many/most of us you presumably need to take on going daily vitamins to keep all levels optimal

Joanneconnor profile image
Joanneconnor in reply toSlowDragon

I don’t think I am able to use the vitamins I never see any vast improvement

SlowDragon profile image
SlowDragonAdministrator in reply toJoanneconnor

It's often not an immediate noticeable improvement, but getting levels optimal by regular supplements helps very many

It helps thyroid hormones to work

Exactly as demonstrated by this post by Jayne2564

Joanneconnor profile image
Joanneconnor in reply toSlowDragon

I supplemented for many months, didn’t feel any benefit or in results either 😕

SlowDragon profile image
SlowDragonAdministrator in reply toJoanneconnor

We often need high doses to make a difference. Or many find mouth spray options of vitamin D and B12 best as avoids poor gut function. There's even mouth spray iron now

Or sublingual B12 lozenges are popular

Joanneconnor profile image
Joanneconnor in reply toSlowDragon

Ohhh thanks I will look into that

SeasideSusie profile image
SeasideSusieRemembering

Jayne2564

Your TSH is still far too high, you have a long way to go. The aim of a treated hypo patient generally is for TSH to be 1 or below or wherever it needs to be for FT4 and FT3 to be in the upper part of their respective reference ranges when on Levo if that is where you feel well. So you need to continue with your retests - 6 weeks after your increase to 50mcg, then 25mcg increase, retest 6 weeks later, 25mcg increase, etc, until your levels are where they need to be for you to feel well.

Scroll down to Thyroxine Replacement Therapy in Primary Hypothyroidism in this article pathology.leedsth.nhs.uk/pa...

and you will see a box where it says

0.2 - 2.0 miu/L Sufficient Replacement

> 2.0 miu/L Likely under Replacement

You may want to refer your GP to this article, in conjunction with the Dr Toft article that I quoted in your previous thread and gave you Dionne's email details so that you could send for it.

Your raised TPO antibodies confirm autoimmune thyroid disease aka Hashimoto's which is where antibodies attack the thyroid and gradually destroy it. The antibody attacks cause fluctuations in symptoms and test results.

Most doctors dismiss antibodies as being of no importance and know little or nothing about Hashi's and how it affects the patient, test results and symptoms. You need to read, learn, understand and help yourself where Hashi's is concerned.

You can help reduce the antibodies by adopting a strict gluten free diet which has helped many members here. Gluten contains gliadin (a protein) which is thought to trigger autoimmune attacks so eliminating gluten can help reduce these attacks. You don't need to be gluten sensitive or have Coeliac disease for a gluten free diet to help.

Supplementing with selenium l-selenomethionine 200mcg daily can also help reduce the antibodies, as can keeping TSH suppressed.

Gluten/thyroid connection: chriskresser.com/the-gluten...

stopthethyroidmadness.com/h...

stopthethyroidmadness.com/h...

hypothyroidmom.com/hashimot...

thyroiduk.org.uk/tuk/about_...

The vitamins and minerals tested here show much better results than last time.

Jayne2564 profile image
Jayne2564 in reply toSeasideSusie

Thank you so much there is so much to learn, I’ve been taking vits etc religiously so it looks like that is paying off! Defo going gluten free as from now. Really appreciate your input many thanks 🙏🏻

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