After everyone was really helpful to me regarding my recent bloods, I wondered if someone could please advise me on how to help daughter with her health.
She is very symptomatic and suffers extremely with her mental health to the point of being pre diagnosed with autism whilst waiting for a full diagnosis from the autism team, she also suffers greatly with weight gain no matter what she does to lose weight.
She has lots of other symptoms aswell which I could list however these are the main ones which have a massive impact on her life.
There’s a big family link with thyroid disease in her family, there’s me, my sister and my son.
I’ll post her results in the hope that someone can help please.
she had bloods taken about 18 months ago and her tsh has risen considerably since then, her ft3 and ft4 have also risen
Thank you so much
Clare xx
Crp 9.97 range <~3
Ferritin 68.6 range 30-150
Folate serum 16.2 range 8.83-60.8
Vitamin b12 active 77.2 range 37.5-188
Vitamin d 65.5 range 50-250
Tsh 4.05 range 0.27-4.2
Free t3 6.2 range 3.1-6.8
Ft4 16.8 range 12-22
Thyroglobulin antibodies 23 range 0-115
Thyroid peroxidase antibodies 48.8 range 0-34
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Clare78uk2002
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What time of day was the blood draw? Had she eaten beforehand?
With a TSH over 4, she is technically hypo. But, a doctor would not recognise that because they like the TSH to be over-range before they will diagnose - preferably over 10! Which is why I ask what time the blood draw was because, as I'm sure you know, TSH is highest before 9 am.
However, with her high antibodies, and symptoms, they ought to take notice and at least give her a second blood test.
Her Frees are out of sinc with her TSH, which doesn't help interpretation of results. But, that's due to her Hashi's. Frees fluctuate as the immune system attacks her thyroid, and the TSH is slow to catch up. So, it would be a good idea to retest in about three months time.
Her ferritin, B12 and vit D are all lowish, which won't help her symptoms. Does she take any supplements?
She took her test at 9.30 am , no she hadn’t eaten since the night before.
She doesn’t take any supplements at the moment, I was waiting for her blood tests and then I will buy her the ones I was kindly told about for b12, b complex and vitamin d with k2, would there be any more that you would suggest?
Do you think it would be worth taking these results to the gp and explaining her symptoms and previous result in the hope that they would listen or is it too early to do this yet?
She’s really quite poorly mentally and physically and I’d like to do my best to give her back some quality of life.
Would it be worth maybe buying her some levothyroxine or a supplement to help her thyroid such as metavive ?
If she's going to take vit D, she should also take magnesium because the two work together. But, with the B complex and B12, that's quite enough to be getting on with at the moment. Only start one supplement at a time, and wait a couple of weeks before starting the next. Otherwise, if anything disagrees with her, you won't know which one it is and will have to start all over again.
I really don't know if it's worth showing these results to your doctor. Depends on the doctors him/herself and their attitude to patients. Some doctors just don't like you doing your own labs. If you get on well with the doctor, then by all means do show. Otherwise, wait until you have more evidence.
I can't comment on the utility of metavive, I've never tried it. But, I do feel starting it now could muddy the waters and make getting a diagnosis more difficult. So, if I were you, I'd hold off that, and privately bought levo, for the time being. Defininitely do not give her anything that calls itself 'thyroid support'! I doesn't support the thyroid and could make things worse. They are just glorified multi-vits and multi-vits are bad in so many ways. Just stick with the supplements mentioned above.
Amazing thank you, I will get the magnesium aswell.
I think I’ll book her in and at least try.
Sorry just to interpret what you said, would I start her on levothyroxine and if so what dose? Or did you mean hold off on that aswell as holding off on metavive ?
I will definitely stay away from anything with thyroid support !!
I meant hold off the levo as well. If you start her on that, it will completely change her blood test results and she'll never get a diagnosis. Levo is not a supplmement like vit D or B12, it is thyroid hormone replacement.
With a possible diagnosis of autism you would need to be very careful NOT to be seen to be medically interfering
Really NOT recommended to start her on any replacement thyroid hormones. It would dramatically skew any test results and then she would never get officially diagnosed as hypothyroid
Getting vitamin levels improved should improve symptoms and may increase TSH as conversion and uptake of thyroid hormones should improve…….so that she can get started on levothyroxine soon
Similarly gluten free (and dairy free) may improve symptoms and help with possible weight loss
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
A trial of strictly gluten free diet is always worth doing
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive she will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial
Good morning all, I was hoping for some more advice if possible please.
My daughter visited her gp a couple of days ago, we were armed with her blood results as above and a massive list of her symptoms.
The gp was not interested in her blood results, nor would she admit that she could have hashis, however she did ask her to book in for urgent blood tests and said that they may look at treating her as sub clinical hypothyroid.
My daughter has blood tests tomorrow so hopefully, fingers crossed she gets help with this, however it will take about a week for her results to come back and then god knows how long to then get an appointment to see the gp.
She cannot go on anymore being so poorly and is begging me to help her.
Any advice on what I can do to help please?
I’m thinking regardless of what her new bloods say that she needs to start levo as well as restart her vitamins (she’s on what was advised further up the post-obviously stopped vitamins until her blood test tomorrow).
I have some levothyroxine as I take it, so I could start her on this tomorrow.
Moving forward, if she doesn’t get a diagnosis then I can buy her some to take regularly, but she’d rather have a diagnosis.
What would anyone do in her position? She really is very poorly and is finding life very difficult at the moment, it’s heart breaking to see her this way.
Ps she only takes b12 and b complex at the moment, and was going to start vit-d and magnesium in a week or so, her blood test is at 9am, she won’t eat before hand.
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