online pharmacy recommendation : I am currently... - Thyroid UK

Thyroid UK

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online pharmacy recommendation

LittleMissTeapot profile image
19 Replies

I am currently paying fir a private prescription fir T3 5mcg and last time I got it filled at Boots it was £421 fir 3 months worth, horrified and I didn’t know where else to go. I live in Bournemouth.

I’ve got a new private prescription and looking for recommendations to get it filled online, but it’s a minefield for a newbie.

I’ve only got 4 tablets left, so get to get it filled quickly. Thanks for any advice.

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LittleMissTeapot
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19 Replies
seveneleven profile image
seveneleven

Smartway are good. It's more expensive to get 5mcg, so what's often easier is to get 20mcg tabs of Thybon Henning and quarter them, and this costs around £65 for 100 tabs at the moment (though it seems to vary between 60 and 80). So that would last you a lot longer.

LittleMissTeapot profile image
LittleMissTeapot in reply to seveneleven

Thank you I will into that, silly question - would I have to be prescribed 20mcg for it to be issued to be cut down if you know what I mean?

seveneleven profile image
seveneleven in reply to LittleMissTeapot

Hm, don't know, but my prescription is for 15mcg a day, and I had no problem asking them for 20mcg. I think they know people tend to split tabs. Can always phone them and ask - they're usually pretty helpful.

LittleMissTeapot profile image
LittleMissTeapot in reply to seveneleven

thanks, have sent them an email asking.

SlowDragon profile image
SlowDragonAdministrator

This is presumably a private prescription

5mcg capsules by Roma are cheaper than 5mcg tablets at £55 per 28

But Roma capsules don’t seem to work as well for many people

For by far cheapest option….You need your GP/endo to change prescription to 20mcg tablets and cut into 1/4’s

Thybon Henning 20mcg tablets are only £60-£80 per100 tablets. Not currently U.K. licensed

Online pharmacies

thyroiduk.org/if-you-are-hy...

Current prices NHS pays for U.K. licensed T3

Private prescription might be higher

healthunlocked.com/thyroidu...

How much T3 are you taking per day

LittleMissTeapot profile image
LittleMissTeapot in reply to SlowDragon

Yes, a private prescription as my Endo brushed it off completely. Dose 5mcg a day alongside my 10cg Levothyroxine.

Thank you I will look into the links

SlowDragon profile image
SlowDragonAdministrator in reply to LittleMissTeapot

Presumably you mean 100mcg levothyroxine

5mcg is small dose

Looking at previous post you have been on this dose about 3 months

Suggest you get FULL thyroid and vitamin testing done

Extremely important to test vitamin D, folate, ferritin and B12 at least annually

What vitamin supplements are you currently taking

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

On T3 - day before test split T3 as 2 or 3 smaller doses spread through the day with last dose 8-12 hours before test

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Tips on how to do DIY finger prick test

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65

(Doesn’t include thyroid antibodies)

monitormyhealth.org.uk/full...

10% off code here

thyroiduk.org/getting-a-dia...

LittleMissTeapot profile image
LittleMissTeapot in reply to LittleMissTeapot

Yes, typo error 100 mcg levothyroxine.

I was hoping to move to 10mcg of T3, but looking at HRT first and then look to up the T3 meds.

Last monitor my health bloods 2 weeks ago: tsh 0.38 / f3 4.1. T4 15. 5

Vit d in range, but Endo suggested more during winter.

Folate a little low, but iron overall in range

B12 in range

I take b12 1000mcg daily

Thyroid support - bio care ( selinium, etc)

Magnesium 600mg

Mito complex

Ginger

Thanks for your help!

SlowDragon profile image
SlowDragonAdministrator in reply to LittleMissTeapot

was test done as recommended …last dose levothyroxine 24 hours before test

Which brand of levothyroxine

Did you split T3 as 2.5mcg x 2 per day ….last dose 8-12 hours before test

FT4: 15.5 pmol/l (Range 12 - 22)

Ft4 only 35.00% through range

FT3: 4.1 pmol/l (Range 3.1 - 6.8)

Ft3 only 27.03% through range

Shows you’re under medicated

Suggest you increase levothyroxine by 25mcg and retest in 6-8 weeks

What’s actual vitamin results

How much vitamin D are you taking

Are you taking a daily vitamin B complex

What’s Mito complex?

LittleMissTeapot profile image
LittleMissTeapot in reply to SlowDragon

Thank you gir all of that.

Yes, stopped Levo 24 hours before, only water in the morning, test done by 8am. ( finger prick monitor my health)

I take T3 at same time as levothyroxine, so same time period.

Levo brand - mercurypharma - orange packet. My TSH has been really low 0.02, as came down from 125 mcg before surgery 31st July to 10mcg dosage for 6/8 weeks / last results based in this)

Vit d adequate 49nmol/L ( going yo start taking 1000 daily dose for colder months)

Anemia results broken down - HB 128g/L

Ferritin 121 ug/L

Tsat 36%

Active b12 68pmol/L

Folate 2 ug/L - low

I take vit b12 sublingual nutrgold 1000 daily

Mito in 2 capsules; b2 50mg / b3 100mg, magnesium 7omg, d ribose 200mg, carntine 100mg, n-acetyl cysteteine 100mg, cq10 100mg

Thyroid complex biocare iodine, selenium, zinc, tyrosine, vit -a 700ug, c 100mg, b1 10mg, b2 10mg, Nicole 10mg,

Thank you for your help

SlowDragon profile image
SlowDragonAdministrator in reply to LittleMissTeapot

Avoid any supplements that contain iodine (which is most supplements that say thyroid support)

Better to take separate selenium and zinc

LittleMissTeapot profile image
LittleMissTeapot in reply to SlowDragon

thank you, will look into that.

SlowDragon profile image
SlowDragonAdministrator in reply to LittleMissTeapot

Vit d adequate 49nmol/L

more likely to need 2000iu daily now, perhaps more in winter

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But improving to around 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via NHS private testing service when supplementing

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Interesting article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

SlowDragon profile image
SlowDragonAdministrator in reply to LittleMissTeapot

Active b12 68pmol/L

Folate 2 ug/L - low

Low B12 symptoms

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement and add a separate vitamin B Complex after a week

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week

B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Other options

healthunlocked.com/thyroidu....

Igennus B complex popular option too. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

LittleMissTeapot profile image
LittleMissTeapot in reply to SlowDragon

You are such a superstar and so patient writing all of that. I will have a loon at L if your recommendations and get ordered.

Thank you

LittleMissTeapot profile image
LittleMissTeapot in reply to SlowDragon

I just wanted to say, thank you to members on here, I have asked my private endo for 20mg prescription to be able to cut into 5mg - so a big difference in price. I sent information from here to her and she listened, without your support / information I wouldn't be able to continue T3 meds.

tattybogle profile image
tattybogle

Hi LittleMissTeapot , I'm shamelessly plugging this thyroid research petition ~ (it's asking the govt to give some of the £84Million CMA fine from the price hike of Liothyronine T3 to thyroid research) .

Please consider signing and SHARING this petition if you haven't already done so .. if you have signed already THANKYOU :)

healthunlocked.com/thyroidu...

Direct link to petition ~ petition.parliament.uk/peti...

"Give more funding for thyroid research and patients after price hike"

LittleMissTeapot profile image
LittleMissTeapot in reply to tattybogle

done! I shared it on my insta and other friends have signed as well when I saw this link on a thyroid trust post this week?. Soo important, thank you for flagging it here and I'm hoping others see these posts and sign and share it too!!

helvella profile image
helvellaAdministratorThyroid UK

The NHS prices for liothyronine are available on my blog.

However, although private prescription prices are based on these prices, they can cost considerably more. You have to ask each pharmacy.

Many of the other replies point out the options you have.

Current NHS Drug Tariff Liothyronine Prices

Link to a blog post of Monthly NHS Drug Tariff prices for Liothyronine products from January 2023 onwards.

Also includes link to information for Scotland.

helvella.blogspot.com/p/cur...

Last updated 27th August 2023

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