Anyone out there in south Essex recently had ND... - Thyroid UK

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Anyone out there in south Essex recently had NDT removed by their endocrinologist

mainam profile image
19 Replies

I'd like to contact anyone else in the same area and situation as myself as I have recently had my NHS Armour prescription removedly a new endocrinologist. Please pm me if you're in this boat.

I need T3 and it seems I may get Levo + Lio - anyone taking this instead of NDT with success? I am so scared of going off Armour but the price and that of getting a private prescription is defeating me.

Many thanks.

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mainam
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19 Replies
SlowDragon profile image
SlowDragonAdministrator

NDT is much more expensive that levothyroxine plus T3

It might suit you …..provided they are going to prescribe T3 alongside levothyroxine

Very few people get Armour on NHS

1787 prescriptions in England in last year

That’s prescriptions…not people

Cost per prescription Approx £450

openprescribing.net/analyse...

62,854 Liothyronine prescriptions in England in last year

Cost per prescription Approx £137

openprescribing.net/analyse...

Alanna012 profile image
Alanna012 in reply toSlowDragon

Why is the cost per prescription so high for Armour? Is each prescription several bottles in advance?

SlowDragon profile image
SlowDragonAdministrator in reply toAlanna012

I just divided total cost by number of prescriptions

Usually prescriptions are two months worth of medications

Armour is expensive

Alanna012 profile image
Alanna012 in reply toSlowDragon

I would have thought though, that the NHS would get it at the same prices as some of the private pharmacies which tend to be £120 -£130ish so even two bottles per month shouldn't amount to so much. But then I wouldn't be surprised if the NHS was paying much more.

TSH110 profile image
TSH110 in reply toAlanna012

🤑 greed

Brightness14 profile image
Brightness14

I have only tried Armour back during Covid times when I could not get NDT Thyroid s.

I have no thyroid and since 2015 I then started on Thyroid s in 2016 with great success. It is much cheaper than Armour and may suit you too. You can self source it the order only takes around 10 days to arrive if you are in the UK. The cost is around 26p per pill.

Margo profile image
Margo in reply toBrightness14

Hello Brightness, How re you? Are you back on Thyroid S.

Brightness14 profile image
Brightness14 in reply toMargo

Hi Margo, yes I am back on Thyroid s and so far doing OK.. Will increase to 2.25 grains just to see how I go, thank you.

pennyannie profile image
pennyannie in reply toBrightness14

Hello Brightness :

Can I ask which batch number of Thyroid S is working well for you?

Brightness14 profile image
Brightness14 in reply topennyannie

The one I am using is new number is 23T01002 dated 25.1.23 to 25.1.26

pennyannie profile image
pennyannie in reply toBrightness14

Thank you :

Lalatoot profile image
Lalatoot

Mainam , Armour and NDT are not licensed for use in the UK. This means that any doctor writing a prescription for it must take personal responsibility for doing that. Not many NHS doctors are prepared to do this. Your new endocrinologist is not prepared to lay themselves on the line and continue your prescription.

TSH110 profile image
TSH110 in reply toLalatoot

and quite what sort of risk is it?It’s clap trap there is nothing innately dangerous about NDT. It was all there was from 1889 to more recent times, and it was very successful in treating hypothyrodism and still a m darn sight better than Levothyroxine monotherapy and easier to manage than synthetic combination therapy. It’s just another lame excuse to refuse to give us what we want by way of thyroid hormone therapy.

Treating us like children the cheek of it insinuating we are incapable of making informed, evidence based, decisions for our own health. They are quite happy to lay OUR health on the line by withholding it.

I was able to get myself better on NDT with ease, after two years of hell on Levothyroxine and decades before that of gaslighting by the medical profession. NDT renders them obsolete in my opinion, small wonder they don’t want us having any. Their mystique completely exposed as hokus pokus. There’s nothing complicated about taking NDT at all and it doesn’t need any doctors either.

When will this nonsense about NDT ever end?

Alanna012 profile image
Alanna012

It's looking to me like they're trying to push NDT out of being prescribed altogether with T3 and T4 as clemency.

Keeping NDT as a choice should be fought for as there are some patients who just don't do as well on synthetics as they do on NDT. It's not necessarily true in every case that T3 and T4 combo is an equivalent treatment and people could end up looking treated on paper with good T3 results, whilst not feeling completely well, even though synthetic combination treatment is good for many! This also applies in reverse.

Lalatoot profile image
Lalatoot in reply toAlanna012

The first fight is to get it licensed for use. Don't know what that involves or why the license was removed.

helvella profile image
helvellaAdministrator in reply toLalatoot

Have a look here:

helvella - The End of Thyroid BP

A brief note of one public statement about the final withdrawal of the UK product, Thyroid, BP. I suspect it summaries the attitude of the time..

helvella.blogspot.com/p/hel...

It is always important also to understand that the UK and USA products were formulated to different potencies. I suspect that had a effect on perception. One would look more potent than the other.

Alanna012 profile image
Alanna012 in reply toLalatoot

Yes! I think I read that ironies of ironies, NDT has to prove it's efficacy as a treatment now. The original treatment that worked for decades. It needs to jump through new testing hoops. I don't remember if it's in relation to being classified as a 'biologic' by the FDA.

I personally can't understand why.

radd profile image
radd in reply toAlanna012

'I personally can't understand why'

Does anybody? 🤷‍♀️

healthunlocked.com/thyroidu...

healthkiwi profile image
healthkiwi in reply toAlanna012

WHY? because NDT is such an old medicine that it can't be patented and branded, and so no-one in the pharmaceutical industry can make any money out of it.

And the medicines regulatory agencies - which are public bodies who are meant to work for US - collude with the pharmaceutical industry, alleging safety or efficacy reasons. Or now re-classifying it. 😡

As they say, when something doesn't make sense, follow the money. 🤬

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