Advice on NDT sourcing or private endo to give me prescription - please PM

[Reefseeker]

After 2 years on combined T4/T3 treatment which has left me feeling much worse than when I was on NDT, with very suppressed TSH and very low levels of FT3 and FT4, I'm giving up the ghost and will try to go back onto NDT.

I am seeing the NHS endocrinologist next week with my 8 years of results showing much better statistics on NDT from 2014-2020, compared with my apparent complete inability to get T4 and T3 into range on combined T3/T4 (while TSH remains resolutely suppressed). I felt much better on NDT and have huge slumps between doses on T3; this morning I went for my blood tests and felt so ill with the 12-hour gap between my last T3 dose.

For context, I 'went it alone' after seeing Dr P many years ago and went onto NDT, doing my own testing. My GP finally bullied me back into the system by withholding my exemption certificate in January 2020, so I stopped the NDT and let them prescribe thyroxine while awaiting my endo appointment. Luckily the endo at Kingston Hospital could see from my results from T4 only and the fact I could barely walk through the door, that thyroxine wasn't cutting it. So we've been slowly upping levo and T3 ever since, but sadly this has led to no increase in T4/T3 levels which remain at the bottom of range and the TSH is still suppressed.

Next week I plan to ask the endocrinologist to prescribe NDT, showing him my results from the 5 years I was on it compared to my combined therapy results. I am sure he'll say no. If this is the case, I aim to go private to see if I can secure NDT that way, or manage it myself. I pay for my own private blood tests as the hospital always seem to lose mine!

Any advice welcome on how to manage this. Thank you.