Hi this is really just a vent
Hi, i haven't posted on her for about a year while i waited to get an appointment with a different consultant.
I was advised to look into my PTH by a more knowledgeable person on here than i am.
Today was my second appointment to discuss results of PTH and Thyroid. Didn't see consultant i saw last time just a young man instead registrar i think, who liaised with consultant. Brief update to recap, 2016 loads of thyroid symptoms that still persist, brain fog is even worse than it was feel like i have dementia, shout at myself on a regular basis, tired to the point i no longer work.
These are some of my results from the last 2 years:
TSH 0.38 0.05 0.13 0.1 0.05 range ( 0.35-5.5) before these, values of 0.04 0.06
PTH 8.5 15.9 18.3 13.2 13.2 range (1.95-8.49)
FT4 16 14 15 15 14 range (9-23)
FT3 5.5 5.3 5.6 5.8 range (3.5-6.5)
Serum Thyroglobulin Level 113.7 range (14.0-29.2)
Thyroid Peroxidase Antibodies 62 range (0-59) 11/04/2022 (also positive in 2017 no values)
with a note to say very high likely hood of developing auto immune thyroid disease and test every 3 months that was back in April never been tested since, this was also dismissed by registrar and consultant. The consultant was on the list from Thyroid uk. (already have IGa Nephropathy auto immune disease of kidney now have transplant which has no problems at the moment but there is a risk IGa could cause damage to the new kidney)
TRAB less than 1 range (1-1.8)
i have a number of Thyroid nodules, but they couldn't see parathyroid glands on ultra sound but not going to look again at parathyroid, but will look at nodules again.
Not going to look at pituitary gland as scanned in 2017 and nothing showed up then, but didn't think it was that suppressing the TSH.
Vitamins and minerals all on low range, i have held off taking supplements to try to get a true reading, stopped taking Vit D after reading the article about PTH that was recommended on here.
Registrar disagreed with the PTH article said i had high PTH due to low vit D and just to start taking them. ALSO TOLD ME TO GET A PET FOR COMPANY AS THAT MIGHT HELP ME. I have been told my symptoms are hypothyroidism but my result lean towards Hyperthyroidism but they are not going to try anything at all and to just get on with it.
My tiredness is nothing to do with my transplant started years before that, have had problems for many years, the brain fog is now really bad i feel i don't have a proper life anymore, thyroid problems are in the family. i used to work 9hr shifts, then go out cycling for a couple of hours loads of energy. Not now.
I am no further forward than i was a couple of years ago, i feel absolutely lousy, and after they have looked at my Thyroid nodules i will then look into raising all my vitamins and minerals after speaking with Renal consultant.
Just wanted to vent a bit, thanks for listening