Hi everyone ❤️
As some on here may know I had full thyroidectomy in May 2019 struggled with thyroid meds but got on T3, then in April 2020 I had 2 over range calciums which the gp reluctantly sent to the endo who requested PTH, calcium, vitamin D both blood tests in june/Aug came back as over range pth and top end calcium ( normocalcemic hyperparathiyroidism) endo wrote saying I probably have primary hyperparathiyroidism, but after several botched blood tests dismissed me from the endo clinic.
My last 2 bloods jan/Feb this year also show normocalcemic hyperparathiyroidism both being at the top end of normal, so my son just paid for me to see a private parathyroid surgeon in Oxford, (Friday 18th November) my ultra sound scan as picked up a 7mm nodule on the left side of my neck the very place I have all the throbbing pain, but the surgeon thinks it may be on a nerve. 😢
He also agrees my blood work shows there is something going on with my parathyroid glands, he said the ultrasound scan can not show what the nodule is only that there is one there, it could be an enlarged parathyroid gland an enlarged lymph node or a piece of left over thyroid from my thyroidectomy, he is trying to arrange for me to have a pet chlorine scan through the nhs at Liverpool, does anyone know if your thyroid can regenerate its self if a piece is left behind?
I'm so pleased something was found I now know I'm not going mad and I've not imagined this pain and the way I've been feeling since my parathyroid glands and calcium went over range 😢😢